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News

All articles about our actions and international updates

Medias

All television programs talking about the diagnosis, management and life of children with MECP2 duplication syndrome

All press articles talking about the diagnosis, management and life of children with MECP2 duplication syndrome

Publications

All articles about scientific breakthrough on MECP2 duplication syndrome

Testimonials

All articles about sharing experiences between families to enhance the life of children

Our newsletters

All newsletters published

Events

All national and international events concerning the syndrome

08 November 2025
All day

Save the Date for the MECP2 Duplication Family meeting in Manchester! The association “MECP2 duplication UK” will host the MDS family conference day at the Holiday Inn in Manchester on […]

25 May 2025
9:00 am - 12:00 pm

A cycling day will take place on the 25th of May in Gramatneusiedl (Lower Austria, near Vienna) between 9 a.m. and 12 p.m. As part of this event, we will […]

24 February 2025
February 24 - March 2

We are proud to be one of the 11 new associations and patients advocacy groups in the field of rare diseases from Germany and Austria that will join the RARE […]

Summary of past Events

All summary of our past events

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