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News

All articles about our actions and international updates

Medias

All television programs talking about the diagnosis, management and life of children with MECP2 duplication syndrome

All press articles talking about the diagnosis, management and life of children with MECP2 duplication syndrome

Scientific news

All articles about scientific breakthrough on MECP2 duplication syndrome

Testimonials

All articles about sharing experiences between families to enhance the life of children

Our newsletters

All newsletters published

Events

All national and international events concerning the syndrome

25 October 2024
October 25 - October 26

This important event will allow MDS specialists, scientists, and families to meet and discuss current developments in patient care and treatment. All family members, affected children, siblings and caregivers are […]

22 June 2024
All day

For organizational reasons, this event is postponed to a later time point - We thank you for your understanding! On the 22nd of June 2024, we will be hosting a […]

24 May 2024
May 24 - May 25

The Ober St. Veiter Grätzlfest is a beloved family festival organized by the Kaufleute Ober St. Veit. This year, it will take place on May 24th and 25th, 2024 in Ober St Veit […]

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