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The syndrome
The syndrome

Discovery of the syndrome

Origin

Transmission

Symptoms

Diagnosis

Prevalence

Syndrome in video

Other genetic duplications

Rett syndrom
The syndrome

Discovery of the syndrome

Origin

Transmission

Symptoms

Diagnosis

Prevalence

Syndrome in video

Other genetic duplications

Rett syndrom
Who we are
Who we are?

Our board members

Our MECP2 children

Our history

The other associations
Who we are?

Our board members

Our MECP2 children

Our history

The other associations
What we do
Support to families

Newly diagnosed

Medical and therapeutic follow-up

Exchange between families

Testimonies

Useful documents and links

Inform about research

Current projects

– Antisense Oligonucleotides

– Drug Repositioning

– SiRNA

– CRISPR

Registries

Expert webinars

Publications

Raise awareness and fund projects

Raise awareness

Fund projects

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Our donors
Support to families

Newly diagnosed

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– Antisense Oligonucleotides

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– SiRNA

– CRISPR

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Newsletter September 2023

It is with great joy and enthusiasm that we are releasing our very first newsletter. At the heart of our

October 3, 2023

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