{"id":14098,"date":"2023-01-30T19:24:57","date_gmt":"2023-01-30T19:24:57","guid":{"rendered":"https:\/\/dupmecp2.eu\/?p=14098"},"modified":"2023-01-30T19:45:10","modified_gmt":"2023-01-30T19:45:10","slug":"octapharma-spendet","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/de\/octapharma-spendet\/","title":{"rendered":"Octapharma spendet an \"Lasst uns MDS heilen: DUPMECP2\"."},"content":{"rendered":"

Das MECP2-Duplikationssyndrom (MDS) ist eine seltene, progressive neurogenetische Erkrankung, die Kinder betrifft. Sie wird durch die Duplikation eines Gens auf dem X-Chromosom verursacht, die zu einer \u00dcberexpression des Proteins MeCP2 f\u00fchrt. Das Syndrom ist durch schwere geistige Behinderung, Entwicklungsverz\u00f6gerung, Hypotonie, wiederkehrende Infektionen und das Auftreten von epileptischen Anf\u00e4llen, die zu einer R\u00fcckbildung f\u00fchren, gekennzeichnet.<\/p>\n\n\n\n

Verschiedene Forschungsgruppen arbeiten aktiv daran, eine Behandlung f\u00fcr dieses Syndrom zu finden. Die Gruppe von Professor Huda Zoghbi hat in einem Tiermodell gezeigt, dass die Symptome umkehrbar sind, wenn die Menge des Proteins MeCP2 korrigiert wird.<\/p>\n\n\n\n

Octapharma ist ein familiengef\u00fchrtes Pharmaunternehmen, das Medikamente auf der Grundlage von menschlichen Proteinen entwickelt und herstellt, die aus menschlichen Zelllinien und menschlichem Plasma gewonnen werden.<\/p>\n\n\n\n

Caroline Covini, Mitbegr\u00fcnderin des Vereins \"Lasst uns MDS heilen\" und Mutter eines Jungen mit MDS, ist Projektmanagerin im Bereich Forschung und Entwicklung bei Octapharma in Wien.<\/p>\n\n\n\n

Im Sommer 2022 veranstaltete das Pharmaunternehmen eine V-Challenge f\u00fcr seine Mitarbeiter in Wien. Alle Teilnehmer konnten entweder laufen, Rad fahren oder gehen. Am Ende der Challenge waren in 88 Tagen mehr als 95.100 km zur\u00fcckgelegt worden. Diese Kilometer wurden von den Eigent\u00fcmern des Unternehmens in Spenden f\u00fcr gute Zwecke umgewandelt.<\/p>\n\n\n\n

Die Eigent\u00fcmer von Octapharma haben beschlossen, 10 000 Euro an die Organisation \"Lasst uns MDS heilen\" zu spenden.<\/strong>.<\/p>\n\n\n\n

Hier sehen Sie Barbara Rangetiner, Gesch\u00e4ftsf\u00fchrerin von Octapharma Vienna, wie sie Caroline Covini den Scheck f\u00fcr die Spende von 10.000 \u20ac an den Verein \u00fcberreicht.<\/p>\n\n\n\n

\n
\"\"<\/figure>\n<\/figure>\n\n\n\n

Die Spende tr\u00e4gt zur Finanzierung von :<\/p>\n\n\n\n

- Forschungsprojekte<\/p>\n\n\n\n

- Die Unterst\u00fctzung bei der Durchf\u00fchrung der n\u00e4chsten klinischen Studien in Europa<\/p>\n\n\n\n

- Infrastruktur f\u00fcr Kinder mit Behinderungen<\/p>\n\n\n\n

- Die Entwicklung des Vereins<\/p>\n\n\n\n

Wir bedanken uns herzlich bei Octapharma und den sportlichen Teilnehmern f\u00fcr die zur\u00fcckgelegten Kilometer und ihre Unterst\u00fctzung der Organisation.<\/p>\n\n\n\n

Sie k\u00f6nnen Ihre Unterst\u00fctzung fortsetzen und zu den Projekten des Vereins beitragen, indem Sie direkt an den Verein spenden.<\/p>\n\n\n\n

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Spenden<\/a><\/div>\n<\/div>\n\n\n\n
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Mehr \u00fcber den Verein DupMECP2.eu<\/a><\/p>\n\n\n\n

LinkedIn : https:\/\/www.linkedin.com\/company\/lasst-uns-mds-heilen-lets-cure-mds\/<\/a><\/p>\n\n\n\n

Facebook : https:\/\/www.facebook.com\/dupmecp2<\/a> <\/p>\n\n\n\n

Instagram: https:\/\/www.instagram.com\/dupmecp2<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Le syndrome de duplication MECP2 (MDS) est une maladie neurog\u00e9n\u00e9tique rare et progressive qui touche les enfants. Il est caus\u00e9 par la duplication d’un g\u00e8ne sur le chromosome X entra\u00eenant […]<\/p>","protected":false},"author":1,"featured_media":14099,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7,94],"tags":[],"class_list":["post-14098","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualite","category-levee-fonds"],"yoast_head":"\nOctapharma fait un don \u00e0 l'association \u00ab\u00a0Lasst uns MDS heilen: DUPMECP2\u00bb - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/de\/octapharma-spendet\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Octapharma fait un don \u00e0 l'association \u00ab\u00a0Lasst uns MDS heilen: DUPMECP2\u00bb - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"Le syndrome de duplication MECP2 (MDS) est une maladie neurog\u00e9n\u00e9tique rare et progressive qui touche les enfants. Il est caus\u00e9 par la duplication d’un g\u00e8ne sur le chromosome X entra\u00eenant […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/de\/octapharma-spendet\/\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:published_time\" content=\"2023-01-30T19:24:57+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-01-30T19:45:10+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/01\/Mecp2-003.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1558\" \/>\n\t<meta property=\"og:image:height\" content=\"926\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Caroline\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Verfasst von\" \/>\n\t<meta name=\"twitter:data1\" content=\"Caroline\" \/>\n\t<meta name=\"twitter:label2\" content=\"Gesch\u00e4tzte Lesezeit\" \/>\n\t<meta name=\"twitter:data2\" content=\"2\u00a0Minuten\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/dupmecp2.eu\/octapharma-fait-un-don\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/octapharma-fait-un-don\/\"},\"author\":{\"name\":\"Caroline\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee\"},\"headline\":\"Octapharma fait un don \u00e0 l’association \u00ab\u00a0Lasst uns MDS heilen: DUPMECP2\u00bb\",\"datePublished\":\"2023-01-30T19:24:57+00:00\",\"dateModified\":\"2023-01-30T19:45:10+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/octapharma-fait-un-don\/\"},\"wordCount\":397,\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/octapharma-fait-un-don\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/01\/Mecp2-003.jpg\",\"articleSection\":[\"Actualit\u00e9\",\"Lev\u00e9es de fonds\"],\"inLanguage\":\"de\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/octapharma-fait-un-don\/\",\"url\":\"https:\/\/dupmecp2.eu\/octapharma-fait-un-don\/\",\"name\":\"Octapharma fait un don \u00e0 l'association \u00ab\u00a0Lasst uns MDS heilen: DUPMECP2\u00bb - 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