{"id":17681,"date":"2023-07-05T21:02:12","date_gmt":"2023-07-05T19:02:12","guid":{"rendered":"https:\/\/dupmecp2.eu\/un-evenement-emouvant-pour-sensibiliser-et-soutenir-lassociation-dupmecp2-lasst-uns-mds-heilen\/"},"modified":"2025-09-03T17:18:23","modified_gmt":"2025-09-03T15:18:23","slug":"evenement-sensibilisieren-unterstutzen-dupmecp2","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/de\/evenement-sensibilisieren-unterstutzen-dupmecp2\/","title":{"rendered":"Eine bewegende Veranstaltung zur Sensibilisierung und Unterst\u00fctzung der Organisation"},"content":{"rendered":"<p>Am 18. Juni fand in Gramatneusiedl (Nieder\u00f6sterreich) eine bemerkenswerte Veranstaltung statt, die den Geist der Gro\u00dfz\u00fcgigkeit und der Gemeinschaft hervorhob. Im Rahmen der von der Stadt Gramatneusiedl organisierten Fahrradtour war unser Verein mit der Betreuung des Versorgungsstandes betraut.<\/p>\n\n<p>Susanne und Gerald, gesch\u00e4tzte Mitglieder des Verwaltungsrats, waren das Herzst\u00fcck dieser Tour.<\/p>\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"16368\" src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-062023.jpg\" alt=\"\" class=\"wp-image-16368\" srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-062023.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-062023-300x225.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-062023-768x576.jpg 768w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n\n<p>Sie organisierten und betreuten den Versorgungsstand, an dem Getr\u00e4nke und Essen gegen eine freiwillige Spende erh\u00e4ltlich waren. Jede Spende, die w\u00e4hrend der Veranstaltung get\u00e4tigt wurde, floss in die Unterst\u00fctzung der Initiativen des Vereins. Am Stand herrschte reges Treiben und \u00fcber 100 Besucher zeigten ihre Solidarit\u00e4t und Unterst\u00fctzung.<\/p>\n\n<p>Anwesend waren Matteo, ein mutiges f\u00fcnfj\u00e4hriges Kind, und Philipp, ein belastbarer 25-j\u00e4hriger junger Mann, die beide am MECP2-Genduplikationssyndrom leiden. Ihre inspirierende Pr\u00e4senz verdeutlichte die Herausforderungen, mit denen Menschen mit dieser seltenen Krankheit konfrontiert sind, und verst\u00e4rkte die Bedeutung der Mission der Veranstaltung.<\/p>\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-2 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"16371\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Unterstuetzern.jpg\" alt=\"\" class=\"wp-image-16371 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Unterstuetzern.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Unterstuetzern-300x225.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Unterstuetzern-768x576.jpg 768w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/768;\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"768\" height=\"1024\" data-id=\"16365\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Matteo-Philipp-768x1024.jpg\" alt=\"\" class=\"wp-image-16365 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Matteo-Philipp-768x1024.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Matteo-Philipp-225x300.jpg 225w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Matteo-Philipp-1152x1536.jpg 1152w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Matteo-Philipp.jpg 1200w\" data-sizes=\"(max-width: 768px) 100vw, 768px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 768px; --smush-placeholder-aspect-ratio: 768\/1024;\" \/><\/figure>\n<\/figure>\n\n<figure class=\"wp-block-image aligncenter size-large\"><img decoding=\"async\" width=\"640\" height=\"481\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-ueberblick.jpg\" alt=\"\" class=\"wp-image-16364 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-ueberblick.jpg 640w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-ueberblick-300x225.jpg 300w\" data-sizes=\"(max-width: 640px) 100vw, 640px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 640px; --smush-placeholder-aspect-ratio: 640\/481;\" \/><\/figure>\n\n<div style=\"height:25px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p>Der Erfolg dieser Veranstaltung wurde durch die unsch\u00e4tzbare Hilfe von Freunden und Unterst\u00fctzern verst\u00e4rkt, die sich freiwillig meldeten, um den Stand zu organisieren und zu betreuen, w\u00e4hrend sie stolz die Farben der Organisation trugen. Die Veranstaltung entwickelte sich zu einem unvergesslichen Erfolg.<\/p>\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-3 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image aligncenter size-large\"><img decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"16366\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Nina.jpg\" alt=\"\" class=\"wp-image-16366 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Nina.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Nina-300x225.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Nina-768x576.jpg 768w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/768;\" \/><\/figure>\n<\/figure>\n\n<p>Wir m\u00f6chten auch den Beitrag der Firma Stiegl hervorheben, die alle Getr\u00e4nke spendiert hat! Au\u00dferdem wurden k\u00f6stliches Geb\u00e4ck, einschlie\u00dflich Kaffee, und leckere Aufstriche serviert.<\/p>\n\n<p>Wenn Gerald an die Veranstaltung zur\u00fcckdenkt, sagt er: \"Ich bin \u00fcberw\u00e4ltigt und unendlich dankbar\". Gerald ist \u00fcberw\u00e4ltigt von den vielen Freiwilligen, die ihre Zeit und Energie einsetzten, dankbar f\u00fcr die vibrierende und angenehme Atmosph\u00e4re, die w\u00e4hrend der gesamten Veranstaltung herrschte, erstaunt \u00fcber die gro\u00dfe Zahl von Besuchern, die sich ihm anschlossen, bewegt von der enormen Bereitschaft, einen Beitrag zu leisten und etwas zu bewirken, und ermutigt von der Neugier und dem Interesse der Besucher, mehr \u00fcber die Krankheit zu erfahren.<\/p>\n\n<p>Susanne dr\u00fcckte ihre Gef\u00fchle ebenfalls aus, indem sie ausrief: \"Was f\u00fcr ein toller Tag. Ich konnte und wollte meine Freudentr\u00e4nen nicht unterdr\u00fccken\" (Was f\u00fcr ein sch\u00f6ner Tag). Ich konnte und wollte meine Freudentr\u00e4nen nicht zur\u00fcckhalten\").<\/p>\n\n<p>Sie dr\u00fcckte ihre aufrichtige Dankbarkeit gegen\u00fcber all jenen aus, die diese Veranstaltung zu einem durchschlagenden Erfolg f\u00fcr ihren Verband gemacht hatten. R\u00fcckblickend auf dieses Ereignis sagte Susanne: \"F\u00fcr mich war dieser Tag einer der emotionalsten seit Beginn unserer Reise.\" (F\u00fcr mich war dieser Tag einer der emotionalsten seit Beginn unserer Reise).<\/p>\n\n<p>Sie gesteht: \"Es gibt kaum etwas Schlimmeres als Hoffnungslosigkeit und sein Kind leiden zu sehen\".<\/p>\n\n<p>Ihre Reise geht mit neuer Hoffnung und Entschlossenheit f\u00fcr ihren Sohn Philipp weiter, da sie wissen, dass sie nicht allein sind.<\/p>\n\n<p>Susanne schloss: \"Danke vielmals an alle, die diesen Tag zu einem so guten Tag f\u00fcr unseren Verein gemacht haben. 1000 Dank\".<\/p>\n\n<figure class=\"wp-block-image aligncenter size-large\"><img decoding=\"async\" width=\"640\" height=\"481\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023.jpg\" alt=\"\" class=\"wp-image-16390 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023.jpg 640w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-300x225.jpg 300w\" data-sizes=\"(max-width: 640px) 100vw, 640px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 640px; --smush-placeholder-aspect-ratio: 640\/481;\" \/><\/figure>\n\n<div style=\"height:25px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p>Dank der gemeinsamen Anstrengungen von Organisatoren, Freiwilligen, Besuchern und Sponsoren kamen insgesamt 1500 Euro f\u00fcr den Verein zusammen, was die unglaubliche Macht von Einigkeit und Mitgef\u00fchl zeigt, wenn sie auf einen guten Zweck gerichtet sind.<\/p>\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-4 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image aligncenter size-large\"><img decoding=\"async\" width=\"1024\" height=\"889\" data-id=\"16367\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-1024x889.jpg\" alt=\"\" class=\"wp-image-16367 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-1024x889.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-300x260.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-768x667.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-1536x1333.jpg 1536w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle.jpg 1704w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/889;\" \/><\/figure>\n<\/figure>\n\n<p>Wir danken Leni, Barbara, Ingrid, Nina, Robert, Hubert, Gerlinde, Albert, Susanne, Andi-Bub, Emilian und Marie f\u00fcr ihre unsch\u00e4tzbare Hilfe.<\/p>\n\n<p>Unser Verein m\u00f6chte sich noch einmal bei der Firma Stiegl f\u00fcr die gro\u00dfz\u00fcgige Getr\u00e4nkespende bedanken. Au\u00dferdem m\u00f6chten wir uns beim Versicherungsb\u00fcro Klapa f\u00fcr die Organisation und die M\u00f6glichkeit, unseren Verein vorzustellen, sowie bei der Konditorei Hirnich, die die Kuchen zur Verf\u00fcgung gestellt hat, bedanken.<\/p>\n\n<p>Ein gro\u00dfes Dankesch\u00f6n geht auch an Liebesblick f\u00fcr das sch\u00f6ne Material (T-Shirts, Taschen, Aufkleber).<\/p>\n\n<p>Und schlie\u00dflich ein gro\u00dfes Dankesch\u00f6n an die liebe Silvie, die die T-Shirts unseres Vereins gesponsert hat!!!<\/p>\n\n<p>Die Presse war ebenfalls anwesend! Die Veranstaltung wurde in zwei Lokalzeitungen ver\u00f6ffentlicht. <\/p>\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-5 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><a href=\"https:\/\/www.noen.at\/schwechat\/gramatneusiedl-fruehschoppen-bei-der-feuerwehr-und-radeln-fuer-den-guten-zweck-372726016\"><img decoding=\"async\" data-id=\"17758\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag-DupMECP2-Article-NOeM.png\" alt=\"\" class=\"wp-image-17758 lazyload\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 755px; --smush-placeholder-aspect-ratio: 755\/789;\" \/><\/a><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><a href=\"https:\/\/www.instagram.com\/p\/Ctq8-JeIKO6\/?utm_source=ig_web_copy_link&amp;igshid=MzRlODBiNWFlZA==\"><img decoding=\"async\" width=\"1024\" height=\"1024\" data-id=\"17765\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar-1024x1024.jpg\" alt=\"\" class=\"wp-image-17765 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar-1024x1024.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar-300x300.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar-150x150.jpg 150w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar-768x769.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar.jpg 1170w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/1024;\" \/><\/a><\/figure>\n<\/figure>\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" href=\"https:\/\/www.noen.at\/schwechat\/gramatneusiedl-fruehschoppen-bei-der-feuerwehr-und-radeln-fuer-den-guten-zweck-372726016\" style=\"border-radius:15px;background-color:#f7a13f\" target=\"_blank\" rel=\"noreferrer noopener\">Lesen Sie den N\u00d6N-Artikel<\/a><\/div>\n\n\n\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" href=\"https:\/\/www.instagram.com\/p\/Ctq8-JeIKO6\/?utm_source=ig_web_copy_link&amp;igshid=MzRlODBiNWFlZA==\" style=\"border-radius:15px;background-color:#f7a13f\">Den Artikel Servus Nachbar lesen<\/a><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Le 18 juin, Gramatneusiedl (Basse-Autriche) a accueilli un \u00e9v\u00e9nement remarquable qui a mis en \u00e9vidence l&rsquo;esprit de g\u00e9n\u00e9rosit\u00e9 et de communaut\u00e9. Dans le cadre de la balade \u00e0 v\u00e9lo organis\u00e9e [&hellip;]<\/p>","protected":false},"author":1,"featured_media":16380,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[219],"tags":[],"class_list":["post-17681","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Un \u00e9v\u00e9nement \u00e9mouvant pour sensibiliser et soutenir l&#039;association - DupMECP2<\/title>\n<meta name=\"description\" content=\"Un \u00e9v\u00e9nement \u00e9mouvant en Autriche pour sensibiliser et soutenir l&#039;association &quot;Lasst uns MDS heilen&quot;. 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