{"id":26034,"date":"2024-05-06T19:33:30","date_gmt":"2024-05-06T19:33:30","guid":{"rendered":"https:\/\/dupmecp2.eu\/apercu-de-la-vie-avec-le-syndrome-de-duplication-du-gene-mecp2\/"},"modified":"2024-05-07T18:47:56","modified_gmt":"2024-05-07T18:47:56","slug":"apercu-de-la-vie-avec-le-syndrome-de-duplication-du-gene-mecp2","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/de\/apercu-de-la-vie-avec-le-syndrome-de-duplication-du-gene-mecp2\/","title":{"rendered":"Einblicke in das Leben mit dem MECP2-Genduplikationssyndrom"},"content":{"rendered":"<p>\u00ab Die ganze Woche \u00bb a rendu visite \u00e0 la famille Curic. La maman de Jan a courageusement partag\u00e9 son histoire avec le syndrome de duplication du g\u00e8ne MECP2. <\/p>\n\n<div data-wp-interactive=\"core\/file\" class=\"wp-block-file\"><object data-wp-bind--hidden=\"!state.hasPdfPreview\" hidden class=\"wp-block-file__embed\" data=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/05\/Die-Ganze-Woche_30042024_Jan.pdf\" type=\"application\/pdf\" style=\"width:100%;height:600px\" aria-label=\"Einbettung von Die Ganze Woche_30042024_Jan.\"><\/object><a id=\"wp-block-file--media-210a8d03-bd84-480e-96bb-87d8c97c3acb\" href=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/05\/Die-Ganze-Woche_30042024_Jan.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Die Ganze Woche_30042024_Jan<\/a><a href=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/05\/Die-Ganze-Woche_30042024_Jan.pdf\" class=\"wp-block-file__button wp-element-button\" download=\"\" aria-describedby=\"wp-block-file--media-210a8d03-bd84-480e-96bb-87d8c97c3acb\">Download<\/a><\/div>\n\n<p>Il est important de raconter de telles histoires pour faire prendre conscience du syndrome. Il est \u00e9galement important de montrer \u00e0 quel point il est crucial de se serrer les coudes pour offrir un avenir meilleur \u00e0 des enfants comme Jan. <\/p>\n\n<p>Vous voulez aider ? Devenez membre et aidez-nous \u00e0 faire avancer la recherche et \u00e0 faire d\u00e9marrer les essais cliniques pour le syndrome. <\/p>\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background wp-element-button\" href=\"https:\/\/dupmecp2.eu\/de\/mitglied-werden\/?lang=de\" style=\"border-radius:15px;background-color:#f7a13f\">Mitglied werden<\/a><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>\u00ab Die ganze Woche \u00bb a rendu visite \u00e0 la famille Curic. La maman de Jan a courageusement partag\u00e9 son histoire avec le syndrome de duplication du g\u00e8ne MECP2. Il [&hellip;]<\/p>","protected":false},"author":1,"featured_media":26028,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[45,174],"tags":[],"class_list":["post-26034","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medias","category-temoignage"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Aper\u00e7u de la vie avec le syndrome de duplication du g\u00e8ne MECP2 - DupMECP2<\/title>\n<meta name=\"description\" content=\"\u00ab Die ganze Woche \u00bb a rendu visite \u00e0 la famille Curic. 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