{"id":15730,"date":"2023-03-19T10:08:20","date_gmt":"2023-03-19T10:08:20","guid":{"rendered":"https:\/\/dupmecp2.eu\/?post_type=tribe_events&#038;p=15730"},"modified":"2023-03-20T12:11:31","modified_gmt":"2023-03-20T12:11:31","slug":"fragebogen-fur-die-vorbereitung-von-webinaren-uber-das-mecp2-duplikationssyndrom","status":"publish","type":"tribe_events","link":"https:\/\/dupmecp2.eu\/de\/event\/fragebogen-fur-die-vorbereitung-von-webinaren-uber-das-mecp2-duplikationssyndrom\/","title":{"rendered":"Fragebogen zur Vorbereitung von Webinaren \u00fcber das MECP2-Genduplikationssyndrom"},"content":{"rendered":"<p>\"DupMECP2.eu - Lasst uns MDS heilen\" arbeitet zusammen mit anderen internationalen Organisationen mit Ionis Pharmaceuticals an einer Reihe von Webinaren, die darauf ausgelegt sind, Schl\u00fcsselthemen in der Arzneimittelentwicklung zu beleuchten. Gemeinsam wollen wir sicherstellen, dass die Patientengemeinschaft die Bildung, Unterst\u00fctzung und Ressourcen erh\u00e4lt, die sie ben\u00f6tigt, um die Entwicklung von Medikamenten f\u00fcr seltene Krankheiten zu verstehen. Zu diesem Zweck bereitet Ionis eine Reihe von Webinaren mit dem Titel \"Clinical Readiness Webinar Series\" vor.<\/p>\n<p>Um den Inhalt der n\u00e4chsten Webinare gezielt auf die Fragen der Familien auszurichten, sammeln wir Feedback aus der MECP2-Duplikationssyndrom-Gemeinschaft.<\/p>\n<p>Nutzen Sie die Gelegenheit, die Webinare mitzugestalten, damit sie Ihre Erwartungen besser erf\u00fcllen k\u00f6nnen. Die Umfrage ist anonym und sollte nicht l\u00e4nger als 5 bis 10 Minuten dauern.\u00a0<u>Ihr Feedback ist sehr hilfreich, damit wir mit der Gestaltung der Webinare beginnen k\u00f6nnen.<\/u>\u00a0Die Umfrage wird ge\u00f6ffnet\u00a0<strong>bis zum 26. M\u00e4rz 2023<\/strong>.<\/p>\n<p>DIE UMFRAGE IST F\u00dcR ALLE OFFEN UND IN ENGLISCH, DEUTSCH, FRANZ\u00d6SISCH, ITALIENISCH UND SPANISCH VERF\u00dcGBAR. Teilen Sie sie mit anderen betroffenen Familien, Verwandten und Freunden, die vielleicht daran interessiert sind, mehr \u00fcber Ionis und die bevorstehenden klinischen Studien zu erfahren.<\/p>\n<p>Die Umfrage finden Sie hier:\u00a0<a href=\"https:\/\/forms.office.com\/Pages\/ResponsePage.aspx?id=hq_44ZXuGEe9DTdbNzZsg3nLPaw2nYVHh0pzG16xwXpUOU9HQ1dTRjFLOEpTR0JWVDdRRkNGQzlYUS4u\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/forms.office.com\/Pages\/ResponsePage.aspx?id=hq_44ZXuGEe9DTdbNzZsg3nLPaw2nYVHh0pzG16xwXpUOU9HQ1dTRjFLOEpTR0JWVDdRRkNGQzlYUS4u<\/a><\/p>\n<p>Vielen Dank f\u00fcr Ihre Zeit. Bitte z\u00f6gern Sie nicht, uns zu kontaktieren, wenn Sie Fragen haben.<\/p>","protected":false},"excerpt":{"rendered":"<p>\"DupMECP2.eu - Lasst uns MDS heilen\" arbeitet zusammen mit anderen internationalen Organisationen mit Ionis Pharmaceuticals an einer Reihe von Webinaren, die darauf ausgelegt sind, die Schl\u00fcsselthemen in [...] zu beleuchten.<\/p>","protected":false},"author":1,"featured_media":15731,"template":"","meta":{"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[],"class_list":["post-15730","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Questionnaire pour la pr\u00e9paration de webinaires sur le syndrome de duplication du g\u00e8ne MECP2 - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/de\/event\/fragebogen-fur-die-vorbereitung-von-webinaren-uber-das-mecp2-duplikationssyndrom\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Questionnaire pour la pr\u00e9paration de webinaires sur le syndrome de duplication du g\u00e8ne MECP2 - 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