{"id":21240,"date":"2023-11-03T21:49:09","date_gmt":"2023-11-03T21:49:09","guid":{"rendered":"https:\/\/dupmecp2.eu\/?p=21240"},"modified":"2025-12-01T14:57:54","modified_gmt":"2025-12-01T13:57:54","slug":"%cf%83%cf%85%ce%bd%ce%ad%ce%b4%cf%81%ce%b9%ce%bf-%cf%83%cf%84%ce%bf-%ce%bc%ce%ac%ce%bd%cf%84%cf%83%ce%b5%cf%83%cf%84%ce%b5%cf%81","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/el\/%cf%83%cf%85%ce%bd%ce%ad%ce%b4%cf%81%ce%b9%ce%bf-%cf%83%cf%84%ce%bf-%ce%bc%ce%ac%ce%bd%cf%84%cf%83%ce%b5%cf%83%cf%84%ce%b5%cf%81\/","title":{"rendered":"\u03a3\u03cd\u03bd\u03bf\u03c8\u03b7 \u03c4\u03bf\u03c5 \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03b1\u03ba\u03bf\u03cd \u03c3\u03c5\u03bd\u03b5\u03b4\u03c1\u03af\u03bf\u03c5 \u03c3\u03c4\u03bf \u039c\u03ac\u03bd\u03c4\u03c3\u03b5\u03c3\u03c4\u03b5\u03c1"},"content":{"rendered":"

\u03a3\u03c4\u03b9\u03c2 28 \u039f\u03ba\u03c4\u03c9\u03b2\u03c1\u03af\u03bf\u03c5, \u03bc\u03ad\u03bb\u03b7 \u03c4\u03b7\u03c2 \u03bf\u03bc\u03ac\u03b4\u03b1\u03c2 \u03bc\u03b1\u03c2: Ana (\u03bc\u03ad\u03bb\u03bf\u03c2 \u03c4\u03bf\u03c5 \u03b4\u03b9\u03bf\u03b9\u03ba\u03b7\u03c4\u03b9\u03ba\u03bf\u03cd \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03af\u03bf\u03c5), Caroline (\u03bc\u03ad\u03bb\u03bf\u03c2 \u03c4\u03bf\u03c5 \u03b4\u03b9\u03bf\u03b9\u03ba\u03b7\u03c4\u03b9\u03ba\u03bf\u03cd \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03af\u03bf\u03c5, \u03b1\u03bd\u03c4\u03b9\u03c0\u03c1\u03cc\u03b5\u03b4\u03c1\u03bf\u03c2), Jasmin (\u03c0\u03c1\u03ad\u03c3\u03b2\u03b5\u03b9\u03c1\u03b1 \u03c3\u03c4\u03b7 \u0393\u03b5\u03c1\u03bc\u03b1\u03bd\u03af\u03b1) \u03ba\u03b1\u03b9 \u03b7 Dr. Gudrun Gr\u00f6ppel (\u03b9\u03b1\u03c4\u03c1\u03b9\u03ba\u03ae \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03bf\u03b3\u03bd\u03ce\u03bc\u03bf\u03bd\u03b1\u03c2 \u03c4\u03bf\u03c5 MDS) \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03b5\u03af\u03c7\u03b1\u03bd \u03c3\u03c4\u03b7\u03bd \u03bf\u03b9\u03ba\u03bf\u03b3\u03b5\u03bd\u03b5\u03b9\u03b1\u03ba\u03ae \u03c3\u03c5\u03b3\u03ba\u03ad\u03bd\u03c4\u03c1\u03c9\u03c3\u03b7 \u03c4\u03bf\u03c5 MDS \u03c3\u03c4\u03bf \u039c\u03ac\u03bd\u03c4\u03c3\u03b5\u03c3\u03c4\u03b5\u03c1.<\/p>\n\n\n\n

\n
\"\"
\u03a4\u03bf \u03c4\u03c1\u03b1\u03c0\u03ad\u03b6\u03b9 DupMECP2 - \u03b1\u03c0\u03cc \u03b1\u03c1\u03b9\u03c3\u03c4\u03b5\u03c1\u03ac \u03c0\u03c1\u03bf\u03c2 \u03c4\u03b1 \u03b4\u03b5\u03be\u03b9\u03ac Jasmin, Ana, Caroline, H\u00e9l\u00e8ne, Gudrun<\/figcaption><\/figure>\n<\/figure>\n\n\n\n

\u0389\u03c4\u03b1\u03bd \u03bc\u03b9\u03b1 \u03b5\u03be\u03b1\u03b9\u03c1\u03b5\u03c4\u03b9\u03ba\u03ae \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b9\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03c4\u03c9\u03bd \u03c0\u03b1\u03c3\u03c7\u03cc\u03bd\u03c4\u03c9\u03bd \u03ba\u03b1\u03b9 \u03c4\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b9\u03c3\u03c4\u03ae\u03bc\u03bf\u03bd\u03b5\u03c2 \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b1\u03bd\u03c4\u03b7\u03b8\u03bf\u03cd\u03bd \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03bc\u03bf\u03b9\u03c1\u03b1\u03c3\u03c4\u03bf\u03cd\u03bd \u03c4\u03b9\u03c2 \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03af\u03b5\u03c2 \u03c4\u03bf\u03c5\u03c2 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b1\u03ba\u03bf\u03cd\u03c3\u03bf\u03c5\u03bd \u03b3\u03b9\u03b1 \u03c4\u03bf\u03c5\u03c2 \u03c4\u03c1\u03cc\u03c0\u03bf\u03c5\u03c2 \u03b2\u03b5\u03bb\u03c4\u03af\u03c9\u03c3\u03b7\u03c2 \u03c4\u03b7\u03c2 \u03c0\u03bf\u03b9\u03cc\u03c4\u03b7\u03c4\u03b1\u03c2 \u03b6\u03c9\u03ae\u03c2 \u03c4\u03c9\u03bd \u03c0\u03b1\u03c3\u03c7\u03cc\u03bd\u03c4\u03c9\u03bd, \u03c4\u03b9\u03c2 \u03b5\u03bd\u03b7\u03bc\u03b5\u03c1\u03ce\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03c0\u03c1\u03bf\u03bf\u03c0\u03c4\u03b9\u03ba\u03ae \u03c4\u03b7\u03c2 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ae\u03c2 \u03b4\u03bf\u03ba\u03b9\u03bc\u03ae\u03c2 \u03c4\u03b7\u03c2 Ionis \u03c4\u03bf 2024.<\/p>\n\n\n\n

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\"\"<\/figure>\n\n\n\n
\"\"<\/figure>\n<\/figure>\n\n\n\n

\u0391\u03ba\u03bf\u03bb\u03bf\u03c5\u03b8\u03b5\u03af \u03c0\u03b5\u03c1\u03af\u03bb\u03b7\u03c8\u03b7 \u03c4\u03c9\u03bd \u03ba\u03cd\u03c1\u03b9\u03c9\u03bd \u03b8\u03b5\u03bc\u03ac\u03c4\u03c9\u03bd \u03c0\u03bf\u03c5 \u03ba\u03b1\u03bb\u03cd\u03c6\u03b8\u03b7\u03ba\u03b1\u03bd \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03c9\u03bd \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03b9\u03ac\u03c3\u03b5\u03c9\u03bd:<\/p>\n\n\n\n

- \u039f \u0394\u03c1 Pehlivan \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03af\u03b1\u03c3\u03b5 \u03c4\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03bc\u03b1\u03c4\u03b1 \u03bc\u03b9\u03b1\u03c2 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae\u03c2 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7\u03c2 \u03c0\u03bf\u03c5 \u03b5\u03bd\u03c4\u03cc\u03c0\u03b9\u03c3\u03b5 \u03c3\u03c5\u03c3\u03c7\u03b5\u03c4\u03af\u03c3\u03b5\u03b9\u03c2 \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ce\u03bd \u03bc\u03b5\u03c4\u03b1\u03bb\u03bb\u03ac\u03be\u03b5\u03c9\u03bd \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bc\u03c0\u03c4\u03c9\u03bc\u03ac\u03c4\u03c9\u03bd \u03c4\u03bf\u03c5 \u03c3\u03c5\u03bd\u03b4\u03c1\u03cc\u03bc\u03bf\u03c5 \u03c3\u03b5 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2. \u0397 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7 \u03b1\u03c5\u03c4\u03ae \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03ad\u03bd\u03b1 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc \u03b2\u03ae\u03bc\u03b1 \u03c0\u03c1\u03bf\u03c2 \u03c4\u03b1 \u03b5\u03bc\u03c0\u03c1\u03cc\u03c2 \u03c3\u03c4\u03b7\u03bd \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03b1\u03c5\u03c4\u03bf\u03cd \u03c4\u03bf\u03c5 \u03c3\u03c5\u03bd\u03b4\u03c1\u03cc\u03bc\u03bf\u03c5. \u039f\u03b9 \u03c0\u03b1\u03c1\u03b5\u03c5\u03c1\u03b9\u03c3\u03ba\u03cc\u03bc\u03b5\u03bd\u03bf\u03b9 \u03b5\u03af\u03c7\u03b1\u03bd \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03c4\u03b7\u03bd \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03bd\u03b1 \u03b4\u03ce\u03c3\u03bf\u03c5\u03bd \u03b1\u03af\u03bc\u03b1 \u03c3\u03c4\u03bf\u03bd Dr Pehlivan \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b2\u03bf\u03b7\u03b8\u03ae\u03c3\u03bf\u03c5\u03bd \u03c3\u03c4\u03b7\u03bd \u03c0\u03b5\u03c1\u03b1\u03b9\u03c4\u03ad\u03c1\u03c9 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1. \u039f \u0394\u03c1 Pehlivan \u03bc\u03b1\u03c2 \u03ac\u03c6\u03b7\u03c3\u03b5 \u03c3\u03c9\u03bb\u03b7\u03bd\u03ac\u03c1\u03b9\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b1 \u03b4\u03b5\u03af\u03b3\u03bc\u03b1\u03c4\u03b1 \u03b1\u03af\u03bc\u03b1\u03c4\u03bf\u03c2. \u0395\u03ac\u03bd \u03b8\u03ad\u03bb\u03b5\u03c4\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b5\u03b9\u03c3\u03c6\u03ad\u03c1\u03b5\u03c4\u03b5 \u03c3\u03c4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03ac \u03c4\u03bf\u03c5, \u03c0\u03b1\u03c1\u03b1\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 \u03b5\u03c0\u03b9\u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03ae\u03c3\u03c4\u03b5 \u03bc\u03b1\u03b6\u03af \u03bc\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03b8\u03b1 \u03c3\u03b1\u03c2 \u03b4\u03ce\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b1 \u03b1\u03c0\u03b1\u03c1\u03b1\u03af\u03c4\u03b7\u03c4\u03b1 \u03c3\u03c9\u03bb\u03b7\u03bd\u03ac\u03c1\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03bf\u03b4\u03b7\u03b3\u03af\u03b5\u03c2.<\/p>\n\n\n\n

- \u0397 \u0394\u03c1 Christine Coquery \u03b1\u03c0\u03cc \u03c4\u03b7\u03bd Ionis Pharmaceutical \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b5 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03bf \u03c0\u03c1\u03cc\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1 MDS \u03bc\u03b5 \u03c4\u03bf \u03b1\u03bd\u03c4\u03b9\u03c3\u03b7\u03bc\u03b5\u03b9\u03ce\u03b4\u03b5\u03c2 \u03bf\u03bb\u03b9\u03b3\u03bf\u03bd\u03bf\u03c5\u03ba\u03bb\u03b5\u03bf\u03c4\u03af\u03b4\u03b9\u03bf (ASO) \u03bc\u03b5 \u03c4\u03b7\u03bd \u03bf\u03bd\u03bf\u03bc\u03b1\u03c3\u03af\u03b1 ION440. \u0397 \u039c\u03b5\u03bb\u03ad\u03c4\u03b7 \u03a6\u03c5\u03c3\u03b9\u03ba\u03ae\u03c2 \u0399\u03c3\u03c4\u03bf\u03c1\u03af\u03b1\u03c2 (NHS), \u03c0\u03bf\u03c5 \u03b4\u03b9\u03b5\u03be\u03ac\u03b3\u03b5\u03c4\u03b1\u03b9 \u03b1\u03c0\u03bf\u03ba\u03bb\u03b5\u03b9\u03c3\u03c4\u03b9\u03ba\u03ac \u03c3\u03c4\u03b9\u03c2 \u0397\u03a0\u0391, \u03ad\u03c7\u03b5\u03b9 \u03b1\u03c1\u03c7\u03af\u03c3\u03b5\u03b9 \u03c4\u03b7\u03bd \u03c0\u03c1\u03cc\u03c3\u03bb\u03b7\u03c8\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd. \u0397 \u03ba\u03bb\u03b9\u03bd\u03b9\u03ba\u03ae \u03b4\u03bf\u03ba\u03b9\u03bc\u03ae \u03c4\u03bf\u03c5 ION440 \u03ad\u03c7\u03b5\u03b9 \u03c0\u03c1\u03bf\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1\u03c4\u03b9\u03c3\u03c4\u03b5\u03af \u03bd\u03b1 \u03b4\u03b9\u03b5\u03be\u03b1\u03c7\u03b8\u03b5\u03af \u03c3\u03c4\u03b9\u03c2 \u0397\u03bd\u03c9\u03bc\u03ad\u03bd\u03b5\u03c2 \u03a0\u03bf\u03bb\u03b9\u03c4\u03b5\u03af\u03b5\u03c2, \u03c4\u03bf\u03bd \u039a\u03b1\u03bd\u03b1\u03b4\u03ac, \u03c4\u03b7\u03bd \u0399\u03c3\u03c0\u03b1\u03bd\u03af\u03b1, \u03c4\u03bf \u0397\u03bd\u03c9\u03bc\u03ad\u03bd\u03bf \u0392\u03b1\u03c3\u03af\u03bb\u03b5\u03b9\u03bf, \u03c4\u03b7 \u0393\u03b1\u03bb\u03bb\u03af\u03b1 \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u0391\u03c5\u03c3\u03c4\u03c1\u03b1\u03bb\u03af\u03b1, \u03bc\u03b5 \u03c4\u03b7\u03bd \u03b5\u03c0\u03b9\u03c6\u03cd\u03bb\u03b1\u03be\u03b7 \u03c4\u03b7\u03c2 \u03ad\u03b3\u03ba\u03c1\u03b9\u03c3\u03b7\u03c2 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03b1\u03c1\u03bc\u03cc\u03b4\u03b9\u03b5\u03c2 \u03b1\u03c1\u03c7\u03ad\u03c2. \u03a3\u03b5 \u03c0\u03c1\u03ce\u03c4\u03b7 \u03c6\u03ac\u03c3\u03b7, \u03c4\u03bf ION440 \u03b8\u03b1 \u03c7\u03bf\u03c1\u03b7\u03b3\u03b7\u03b8\u03b5\u03af \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03b5\u03ba\u03c4\u03b9\u03bc\u03b7\u03b8\u03b5\u03af \u03b7 \u03b1\u03c3\u03c6\u03ac\u03bb\u03b5\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03b7 \u03b1\u03bd\u03b5\u03ba\u03c4\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03b7\u03c2 ASO \u03c3\u03b5 \u03bc\u03b9\u03b1 \u03bc\u03b9\u03ba\u03c1\u03ae \u03bf\u03bc\u03ac\u03b4\u03b1 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd. \u03a0\u03b5\u03c1\u03b1\u03b9\u03c4\u03ad\u03c1\u03c9 \u03bb\u03b5\u03c0\u03c4\u03bf\u03bc\u03ad\u03c1\u03b5\u03b9\u03b5\u03c2 \u03b8\u03b1 \u03b4\u03bf\u03b8\u03bf\u03cd\u03bd \u03bc\u03cc\u03bb\u03b9\u03c2 \u03c4\u03bf \u03c0\u03c1\u03c9\u03c4\u03cc\u03ba\u03bf\u03bb\u03bb\u03bf \u03c4\u03b7\u03c2 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7\u03c2 \u03bb\u03ac\u03b2\u03b5\u03b9 \u03c4\u03b7\u03bd \u03ad\u03b3\u03ba\u03c1\u03b9\u03c3\u03b7 \u03c4\u03c9\u03bd \u03c1\u03c5\u03b8\u03bc\u03b9\u03c3\u03c4\u03b9\u03ba\u03ce\u03bd \u03b1\u03c1\u03c7\u03ce\u03bd.<\/p>\n\n\n\n

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Dr. Gudrun Gr\u00f6ppel, Caroline \u03ba\u03b1\u03b9 Ana<\/figcaption><\/figure>\n\n\n\n
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\u0394\u03b5\u03b9\u03b3\u03bc\u03b1\u03c4\u03bf\u03bb\u03b7\u03c8\u03af\u03b1 \u03b1\u03af\u03bc\u03b1\u03c4\u03bf\u03c2 \u03bc\u03b5 \u03c4\u03b7\u03bd Dr. Hilde Van Esch<\/figcaption><\/figure>\n\n\n\n
\"\"
Dr. Pehlivan, Dr. Coquery, Caroline \u03ba\u03b1\u03b9 Ana<\/figcaption><\/figure>\n<\/figure>\n\n\n\n

- \u0395\u03b9\u03b4\u03b9\u03ba\u03bf\u03af \u03b1\u03c0\u03cc \u03c4\u03bf \u039d\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03af\u03bf \u03a0\u03b1\u03af\u03b4\u03c9\u03bd \u03c4\u03bf\u03c5 \u03a4\u03ad\u03be\u03b1\u03c2 \u03c3\u03c4\u03bf \u03a7\u03b9\u03bf\u03cd\u03c3\u03c4\u03bf\u03bd \u03ad\u03b4\u03c9\u03c3\u03b1\u03bd \u03c0\u03bf\u03bb\u03cd\u03c4\u03b9\u03bc\u03b5\u03c2 \u03c3\u03c5\u03bc\u03b2\u03bf\u03c5\u03bb\u03ad\u03c2 \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b4\u03b9\u03b1\u03c7\u03b5\u03af\u03c1\u03b9\u03c3\u03b7 \u03b4\u03b9\u03b1\u03c6\u03cc\u03c1\u03c9\u03bd \u03c3\u03c5\u03bc\u03c0\u03c4\u03c9\u03bc\u03ac\u03c4\u03c9\u03bd \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bd\u03b4\u03ad\u03bf\u03bd\u03c4\u03b1\u03b9 \u03bc\u03b5 \u03c4\u03bf \u03c3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf, \u03cc\u03c0\u03c9\u03c2 \u03bf\u03b9 \u03b5\u03c0\u03b1\u03bd\u03b1\u03bb\u03b1\u03bc\u03b2\u03b1\u03bd\u03cc\u03bc\u03b5\u03bd\u03b5\u03c2 \u03bb\u03bf\u03b9\u03bc\u03ce\u03be\u03b5\u03b9\u03c2, \u03bf\u03b9 \u03b3\u03b5\u03bd\u03b9\u03ba\u03ad\u03c2 \u03b1\u03bd\u03b1\u03c0\u03c4\u03c5\u03be\u03b9\u03b1\u03ba\u03ad\u03c2 \u03ba\u03b1\u03b8\u03c5\u03c3\u03c4\u03b5\u03c1\u03ae\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b1 \u03b3\u03b1\u03c3\u03c4\u03c1\u03b5\u03bd\u03c4\u03b5\u03c1\u03b9\u03ba\u03ac \u03c0\u03c1\u03bf\u03b2\u03bb\u03ae\u03bc\u03b1\u03c4\u03b1.<\/p>\n\n\n\n

- \u039f \u0394\u03c1 Santosh (King's College, \u039b\u03bf\u03bd\u03b4\u03af\u03bd\u03bf) \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03af\u03b1\u03c3\u03b5 \u03bc\u03b9\u03b1 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7 \u03c0\u03b5\u03c1\u03af\u03c0\u03c4\u03c9\u03c3\u03b7\u03c2 \u03c0\u03bf\u03c5 \u03c5\u03c0\u03bf\u03b3\u03c1\u03ac\u03bc\u03bc\u03b9\u03c3\u03b5 \u03c4\u03b7 \u03b4\u03c5\u03bd\u03b1\u03c4\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03b7\u03c2 \u03a4\u039d \u03c9\u03c2 \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03bf\u03c5 \u03b5\u03c1\u03b3\u03b1\u03bb\u03b5\u03af\u03bf\u03c5 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b1\u03be\u03b9\u03bf\u03bb\u03cc\u03b3\u03b7\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03c3\u03c7\u03ad\u03c3\u03b7\u03c2 \u03bf\u03c6\u03ad\u03bb\u03bf\u03c5\u03c2-\u03ba\u03b9\u03bd\u03b4\u03cd\u03bd\u03bf\u03c5 \u03c4\u03b7\u03c2 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1\u03c2 \u03c3\u03b5 \u03bd\u03b5\u03b1\u03c1\u03bf\u03cd\u03c2 \u03bc\u03b7 \u03bf\u03bc\u03b9\u03bb\u03bf\u03cd\u03bd\u03c4\u03b5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2, \u03b9\u03b4\u03af\u03c9\u03c2 \u03b5\u03ba\u03b5\u03af\u03bd\u03bf\u03c5\u03c2 \u03bc\u03b5 \u03c3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf Rett.<\/p>\n\n\n\n

- \u0397 \u03ba\u03b1\u03b8\u03b7\u03b3\u03ae\u03c4\u03c1\u03b9\u03b1 Huda Zoghbi \u03ad\u03ba\u03bb\u03b5\u03b9\u03c3\u03b5 \u03c4\u03bf \u03c3\u03c5\u03bd\u03ad\u03b4\u03c1\u03b9\u03bf \u03b5\u03ba\u03c6\u03c1\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03c2 \u03c4\u03b7\u03bd \u03b5\u03c5\u03b3\u03bd\u03c9\u03bc\u03bf\u03c3\u03cd\u03bd\u03b7 \u03c4\u03b7\u03c2 \u03c0\u03c1\u03bf\u03c2 \u03cc\u03bb\u03b5\u03c2 \u03c4\u03b9\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2, \u03c4\u03bf\u03c5\u03c2 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03bf\u03c5\u03c2 \u03b4\u03c9\u03c1\u03b7\u03c4\u03ad\u03c2 \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bd\u03ad\u03b2\u03b1\u03bb\u03b1\u03bd \u03c3\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03ad\u03c1\u03b3\u03bf \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd \u03c0\u03c1\u03cc\u03bf\u03b4\u03cc \u03c4\u03bf\u03c5 \u03c0\u03c1\u03bf\u03c2 \u03c4\u03b7\u03bd \u03b1\u03bd\u03b1\u03ba\u03ac\u03bb\u03c5\u03c8\u03b7 \u03c6\u03b1\u03c1\u03bc\u03ac\u03ba\u03c9\u03bd. \u03a4\u03bf \u03bc\u03ae\u03bd\u03c5\u03bc\u03b1 \u03c4\u03b7\u03c2 \u03b5\u03bb\u03c0\u03af\u03b4\u03b1\u03c2 \u03c4\u03b7\u03c2 \u03b2\u03c1\u03af\u03c3\u03ba\u03b5\u03b9 \u03b2\u03b1\u03b8\u03b9\u03ac \u03b1\u03c0\u03ae\u03c7\u03b7\u03c3\u03b7 \u03c3\u03c4\u03b7\u03bd \u03ba\u03bf\u03b9\u03bd\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03bf\u03c5 MDS: \"\u0395\u03af\u03bc\u03b1\u03b9 \u03c0\u03bf\u03bb\u03cd \u03b1\u03b9\u03c3\u03b9\u03cc\u03b4\u03bf\u03be\u03b7 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03bc\u03ad\u03bb\u03bb\u03bf\u03bd \u03ba\u03b1\u03b9 \u03b5\u03af\u03bc\u03b1\u03b9 \u03c0\u03bf\u03bb\u03cd \u03b5\u03c5\u03b3\u03bd\u03ce\u03bc\u03c9\u03bd\".<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

\u03a3\u03c4\u03bf \u03c4\u03ad\u03bb\u03bf\u03c2 \u03c4\u03b7\u03c2 \u03b7\u03bc\u03ad\u03c1\u03b1\u03c2, \u03bf\u03b9 \u03b5\u03ba\u03c0\u03c1\u03cc\u03c3\u03c9\u03c0\u03bf\u03b9 \u03c4\u03c9\u03bd \u03b5\u03bd\u03ce\u03c3\u03b5\u03c9\u03bd \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03b8\u03b7\u03ba\u03b1\u03bd \u03c3\u03b5 \u03b4\u03b5\u03af\u03c0\u03bd\u03bf \u03c0\u03bf\u03c5 \u03b4\u03b9\u03bf\u03c1\u03b3\u03ac\u03bd\u03c9\u03c3\u03b5 \u03b7 Ionis. \u0389\u03c4\u03b1\u03bd \u03bc\u03b9\u03b1 \u03be\u03b5\u03c7\u03c9\u03c1\u03b9\u03c3\u03c4\u03ae \u03c3\u03c4\u03b9\u03b3\u03bc\u03ae \u03c0\u03bf\u03c5 \u03ad\u03c6\u03b5\u03c1\u03b5 \u03cc\u03bb\u03bf\u03c5\u03c2 \u03bc\u03b1\u03b6\u03af \u03ba\u03b1\u03b9 \u03bc\u03b1\u03c2 \u03b5\u03c0\u03ad\u03c4\u03c1\u03b5\u03c8\u03b5 \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b5\u03c7\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03c4\u03b9\u03c2 \u03c3\u03c5\u03b6\u03b7\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03bc\u03b1\u03c2 \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03b5\u03bd\u03cc\u03c2 \u03b3\u03b5\u03cd\u03bc\u03b1\u03c4\u03bf\u03c2.<\/p>\n\n\n\n

\n
\"\"
\u0394\u03b5\u03af\u03c0\u03bd\u03bf \u03bb\u03ae\u03be\u03b7\u03c2<\/figcaption><\/figure>\n\n\n\n
\"\"
Caroline (DupMECP2) \u03ba\u03b1\u03b9 Helen Coles-Harrington (\u03b4\u03b9\u03c0\u03bb\u03b1\u03c3\u03b9\u03b1\u03c3\u03bc\u03cc\u03c2 MECP2 UK)<\/figcaption><\/figure>\n<\/figure>\n\n\n\n

\u03a0\u03bf\u03bb\u03bb\u03ad\u03c2 \u03b5\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03af\u03b5\u03c2 \u03c3\u03c4\u03b7\u03bd MECP2 duplication UK \u03b3\u03b9\u03b1 \u03c4\u03b7 \u03b4\u03b9\u03bf\u03c1\u03b3\u03ac\u03bd\u03c9\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7\u03c2. \u039f\u03b9 \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03b9\u03ac\u03c3\u03b5\u03b9\u03c2 \u03c4\u03b7\u03c2 \u03b7\u03bc\u03ad\u03c1\u03b1\u03c2 \u03ad\u03c7\u03bf\u03c5\u03bd \u03ba\u03b1\u03c4\u03b1\u03b3\u03c1\u03b1\u03c6\u03b5\u03af \u03ba\u03b1\u03b9 \u03b8\u03b1 \u03b4\u03b9\u03b1\u03bd\u03b5\u03bc\u03b7\u03b8\u03bf\u03cd\u03bd \u03c3\u03cd\u03bd\u03c4\u03bf\u03bc\u03b1 \u03bc\u03b5 \u03c5\u03c0\u03cc\u03c4\u03b9\u03c4\u03bb\u03bf\u03c5\u03c2 \u03c3\u03b5 13 \u03b4\u03b9\u03b1\u03c6\u03bf\u03c1\u03b5\u03c4\u03b9\u03ba\u03ad\u03c2 \u03b3\u03bb\u03ce\u03c3\u03c3\u03b5\u03c2. <\/p>\n\n\n\n

\u0395\u03ac\u03bd \u03ad\u03c7\u03b5\u03c4\u03b5 \u03bf\u03c0\u03bf\u03b9\u03b5\u03c3\u03b4\u03ae\u03c0\u03bf\u03c4\u03b5 \u03b5\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2, \u03bc\u03b7 \u03b4\u03b9\u03c3\u03c4\u03ac\u03c3\u03b5\u03c4\u03b5 \u03bd\u03b1 \u03b5\u03c0\u03b9\u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03ae\u03c3\u03b5\u03c4\u03b5 \u03bc\u03b1\u03b6\u03af \u03bc\u03b1\u03c2.<\/p>","protected":false},"excerpt":{"rendered":"

Le 28 Octobre, des membres de notre \u00e9quipe : Ana (membre du conseil d’administration), Caroline (membre du conseil d’administration, vice-pr\u00e9sidente), Jasmin (Ambassadrice en allemagne) et le Dr. Gudrun Gr\u00f6ppel (expert […]<\/p>","protected":false},"author":1,"featured_media":21276,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-21240","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualite"],"yoast_head":"\nR\u00e9sum\u00e9 de la conf\u00e9rence des familles \u00e0 Manchester - DupMECP2<\/title>\n<meta name=\"description\" content=\"C'\u00e9tait une superbe occasion pour les familles touch\u00e9es et les scientifiques de se r\u00e9unir pour partager leurs exp\u00e9riences et entendre parler des moyens d'am\u00e9liorer la qualit\u00e9 de vie des personnes touch\u00e9es, des mises \u00e0 jour de la 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