{"id":21297,"date":"2023-11-03T21:49:09","date_gmt":"2023-11-03T21:49:09","guid":{"rendered":"https:\/\/dupmecp2.eu\/zusammenfassung-der-mecp2-duplikation-syndrom-familiensitzung-in-manchester\/"},"modified":"2023-11-06T08:21:26","modified_gmt":"2023-11-06T08:21:26","slug":"zusammenfassung-familiensitzung-manchester","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/el\/zusammenfassung-familiensitzung-manchester\/","title":{"rendered":"\u03a3\u03cd\u03bd\u03bf\u03c8\u03b7 \u03c4\u03b7\u03c2 \u03c3\u03c5\u03bd\u03ad\u03bd\u03c9\u03c3\u03b7\u03c2 \u03b3\u03bf\u03bd\u03b9\u03b4\u03af\u03c9\u03bd MECP2 Duplikation Syndrom-Familiensitzung \u03c3\u03c4\u03bf \u039c\u03ac\u03bd\u03c4\u03c3\u03b5\u03c3\u03c4\u03b5\u03c1"},"content":{"rendered":"

Am 28. Oktober nahmen Mitglieder unseres Teams - Ana (Vorstandsmitglied), Caroline (Vorstandsmitglied, Vizepr\u00e4sidentin) \u03ba\u03b1\u03b9 Dr. Gudrun Gr\u00f6ppel (MDS-Medizinexpertin) - an dem MDS-Familientreffen in Manchester teil.<\/p>\n\n\n\n

\n
\"\"
Tisch von DupMECP2 - von links nach rechts: Jasmin, Ana, Caroline, H\u00e9l\u00e8ne, Gudrun<\/figcaption><\/figure>\n<\/figure>\n\n\n\n

Es war eine fantastische Gelegenheit f\u00fcr betroffene Familien und Wissenschaftler, sich zu versammeln, um Erfahrungen auszutauschen und M\u00f6glichkeiten zur Verbesserung der Lebensqualit\u00e4t von Betroffenen, Forschungsaktualisierungen und Perspektiven auf klinische Studien im Jahr 2024 zu h\u00f6ren.<\/p>\n\n\n\n

\n
\"\"<\/figure>\n\n\n\n
\"\"<\/figure>\n<\/figure>\n\n\n\n

\u0395\u03b4\u03ce \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03b9\u03b1 \u03c3\u03cd\u03bd\u03bf\u03c8\u03b7 \u03c4\u03c9\u03bd \u03ba\u03c5\u03c1\u03b9\u03cc\u03c4\u03b5\u03c1\u03c9\u03bd \u03b8\u03b5\u03bc\u03ac\u03c4\u03c9\u03bd, \u03c4\u03b1 \u03bf\u03c0\u03bf\u03af\u03b1 \u03c3\u03c4\u03b9\u03c2 \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03b9\u03ac\u03c3\u03b5\u03b9\u03c2 \u03b1\u03bd\u03c4\u03b9\u03bc\u03b5\u03c4\u03c9\u03c0\u03af\u03c3\u03c4\u03b7\u03ba\u03b1\u03bd:<\/p>\n\n\n\n

- \u039f Dr. Pehlivan \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03af\u03b1\u03c3\u03b5 \u03c4\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03bc\u03b1\u03c4\u03b1 \u03bc\u03b9\u03b1\u03c2 \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ae\u03c2 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7\u03c2, \u03b7 \u03bf\u03c0\u03bf\u03af\u03b1 \u03c4\u03b1\u03c5\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b5 \u03c4\u03b9\u03c2 \u03c3\u03c5\u03c3\u03c7\u03b5\u03c4\u03af\u03c3\u03b5\u03b9\u03c2 \u03bc\u03b5\u03c4\u03b1\u03be\u03cd \u03b3\u03b5\u03bd\u03b5\u03c4\u03b9\u03ba\u03ce\u03bd \u03bc\u03b5\u03c4\u03b1\u03bb\u03bb\u03ac\u03be\u03b5\u03c9\u03bd \u03ba\u03b1\u03b9 \u03c4\u03b7\u03c2 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7\u03c2 \u03c4\u03bf\u03c5 \u03c3\u03c5\u03bd\u03b4\u03c1\u03cc\u03bc\u03bf\u03c5 \u03c3\u03b5 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2. \u0397 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03b1\u03c5\u03c4\u03ae \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc \u03b2\u03ae\u03bc\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03ba\u03b1\u03c4\u03b1\u03bd\u03cc\u03b7\u03c3\u03b7 \u03b1\u03c5\u03c4\u03ce\u03bd \u03c4\u03c9\u03bd \u03c3\u03c5\u03bd\u03b4\u03c1\u03cc\u03bc\u03c9\u03bd. Teilnehmer hatten auch die Gelegenheit, Blutproben f\u00fcr die weitere genetische Forschung an Dr. Pehlivan abzugeben. \u039f Dr. Pehlivan \u03c5\u03c0\u03ad\u03b2\u03b1\u03bb\u03b5 \u03bf\u03c1\u03b9\u03c3\u03bc\u03ad\u03bd\u03b5\u03c2 \u03c0\u03c1\u03bf\u03c4\u03ac\u03c3\u03b5\u03b9\u03c2 \u03b3\u03b9\u03b1 Blutproben. Wenn Sie an der Teilnahme und Beitrag zur Forschung interessiert sind, kontaktieren Sie uns bitte, und wir stellen Ihnen die erforderlichen R\u00f6hrchen und Richtlinien zur Verf\u00fcgung.<\/p>\n\n\n\n

- \u0397 \u0394\u03c1 Christine Coquery \u03c4\u03b7\u03c2 Ionis Pharmaceutical \u03b4\u03b7\u03bc\u03bf\u03c3\u03af\u03b5\u03c5\u03c3\u03b5 \u03bc\u03b9\u03b1 \u03b5\u03bd\u03b7\u03bc\u03ad\u03c1\u03c9\u03c3\u03b7 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 \u03c4\u03bf \u03c0\u03c1\u03cc\u03b3\u03c1\u03b1\u03bc\u03bc\u03b1 MDS \u03bc\u03b5 \u03c4\u03b7 \u03c7\u03c1\u03ae\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03b1\u03bd\u03c4\u03b9-\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03b9\u03ba\u03bf\u03cd \u03bf\u03bb\u03b9\u03b3\u03bf\u03bd\u03bf\u03c5\u03ba\u03bb\u03b5\u03bf\u03c4\u03b9\u03b4\u03af\u03bf\u03c5 ION440. \u0397 \u039c\u03b5\u03bb\u03ad\u03c4\u03b7 \u03a6\u03c5\u03c3\u03b9\u03ba\u03ae\u03c2 \u0399\u03c3\u03c4\u03bf\u03c1\u03af\u03b1\u03c2 (NHS) \u03ad\u03c7\u03b5\u03b9 \u03ae\u03b4\u03b7 \u03c3\u03c5\u03bc\u03c0\u03b5\u03c1\u03b9\u03bb\u03ac\u03b2\u03b5\u03b9 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03c3\u03c4\u03b9\u03c2 \u0397\u03a0\u0391. Die klinische Studie ist in den USA, Kanada, Spanien, Gro\u00dfbritannien, Frankreich und Australien geplant, abh\u00e4ngig von der Zustimmung der respective Gesundheitsbeh\u00f6rden. \u039f \u03c3\u03c4\u03cc\u03c7\u03bf\u03c2 \u03c4\u03b7\u03c2 \u03b5\u03c6\u03b1\u03c1\u03bc\u03bf\u03b3\u03ae\u03c2 \u03c4\u03bf\u03c5 ION440 \u03c3\u03b5 \u03c0\u03c1\u03ce\u03c4\u03b7 \u03c6\u03ac\u03c3\u03b7 \u03b5\u03af\u03bd\u03b1\u03b9 \u03bd\u03b1 \u03ba\u03b1\u03c4\u03b1\u03b4\u03b5\u03b9\u03c7\u03b8\u03b5\u03af \u03b7 \u03b1\u03c3\u03c6\u03ac\u03bb\u03b5\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03b7 \u03bf\u03c1\u03b8\u03cc\u03c4\u03b7\u03c4\u03b1 \u03c4\u03bf\u03c5 ASO \u03c3\u03b5 \u03bc\u03b9\u03b1 \u03bc\u03b9\u03ba\u03c1\u03ae \u03bf\u03bc\u03ac\u03b4\u03b1 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd. \u03a0\u03b5\u03c1\u03b1\u03b9\u03c4\u03ad\u03c1\u03c9 \u03bb\u03b5\u03c0\u03c4\u03bf\u03bc\u03ad\u03c1\u03b5\u03b9\u03b5\u03c2 \u03b8\u03b1 \u03b4\u03b7\u03bc\u03bf\u03c3\u03b9\u03b5\u03c5\u03b8\u03bf\u03cd\u03bd \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03b1\u03c1\u03c7\u03ad\u03c2 \u03bc\u03b5\u03c4\u03ac \u03c4\u03b7\u03bd \u03ad\u03b3\u03ba\u03c1\u03b9\u03c3\u03b7 \u03c4\u03bf\u03c5 \u03c0\u03c1\u03c9\u03c4\u03bf\u03ba\u03cc\u03bb\u03bb\u03bf\u03c5 \u03c4\u03b7\u03c2 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7\u03c2.<\/p>\n\n\n\n

\n
\"\"
Dr. Gudrun Gr\u00f6ppel, Caroline und Ana<\/figcaption><\/figure>\n\n\n\n
\"\"
Blutabnahme mit Dr. Hilde Van Esch<\/figcaption><\/figure>\n\n\n\n
\"\"
Dr. Pehlivan, Dr. Coquery, Caroline und Ana<\/figcaption><\/figure>\n<\/figure>\n\n\n\n

- Spezialisten des Texas Children's Hospital in Houston gaben wertvolle Ratschl\u00e4ge zur Bew\u00e4ltigung verschiedener symptome im Zusammenhang mit dem Syndrom, wie der Umgang mit wiederkehrenden Infektionen, global Entwicklungsverz\u00f6gerungen und Magen-Darm-Problemen.<\/p>\n\n\n\n

\u039f Dr. Santosh (King's College, \u039b\u03bf\u03bd\u03b4\u03af\u03bd\u03bf) \u03c0\u03b1\u03c1\u03bf\u03c5\u03c3\u03af\u03b1\u03c3\u03b5 \u03bc\u03b9\u03b1 \u03bc\u03b5\u03bb\u03ad\u03c4\u03b7, \u03b7 \u03bf\u03c0\u03bf\u03af\u03b1 \u03b1\u03bd\u03ad\u03b4\u03b5\u03b9\u03be\u03b5 \u03c4\u03bf \u03b4\u03c5\u03bd\u03b1\u03bc\u03b9\u03ba\u03cc K\u00fcnstlicher Intelligenz (KI) \u03c9\u03c2 \u03c7\u03c1\u03ae\u03c3\u03b9\u03bc\u03bf \u03b5\u03c1\u03b3\u03b1\u03bb\u03b5\u03af\u03bf \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b1\u03be\u03b9\u03bf\u03bb\u03cc\u03b3\u03b7\u03c3\u03b7 \u03c4\u03bf\u03c5 Nutzen-Risiko-Verh\u00e4ltnisses einer Behandlung bei jungen nonverbalen Patienten, insbesondere bei Patienten mit dem Rett-Syndrom.<\/p>\n\n\n\n

- \u0397 \u03ba\u03b1\u03b8\u03b7\u03b3\u03ae\u03c4\u03c1\u03b9\u03b1 Huda Zoghbi \u03ad\u03ba\u03bb\u03b5\u03b9\u03c3\u03b5 \u03c4\u03bf \u03c3\u03c5\u03bd\u03ad\u03b4\u03c1\u03b9\u03bf \u03bc\u03b5 \u03ad\u03bd\u03b1 \u03bc\u03b5\u03b3\u03ac\u03bb\u03bf \u03b5\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03ce \u03c3\u03b5 \u03cc\u03bb\u03b5\u03c2 \u03c4\u03b9\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2, \u03c4\u03bf\u03c5\u03c2 \u03b5\u03c1\u03b5\u03c5\u03bd\u03b7\u03c4\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03bf\u03c5\u03c2 \u03c7\u03bf\u03c1\u03b7\u03b3\u03bf\u03cd\u03c2 \u03c0\u03bf\u03c5 \u03c3\u03c5\u03bd\u03ad\u03b2\u03b1\u03bb\u03b1\u03bd \u03c3\u03b5 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03ad\u03c1\u03b3\u03bf \u03ba\u03b1\u03b9 \u03c3\u03c4\u03b7\u03bd \u03b5\u03c0\u03b9\u03c4\u03c5\u03c7\u03af\u03b1 \u03c4\u03bf\u03c5 \u03c3\u03c4\u03bf \u03b4\u03c1\u03cc\u03bc\u03bf \u03c0\u03c1\u03bf\u03c2 \u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1. Ihre Botschaft der Hoffnung findet tiefes Echo in der MDS-Gemeinschaft: \" Ich bin sehr optimistisch in Bezug auf die Zukunft und sehr dankbar f\u00fcr Sie.\"<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Am Ende des Tages kamen Vertreter der Advocacy-Gruppen zu einem Abendessen zusammen, das von Ionis organized wurde. \u0389\u03c4\u03b1\u03bd \u03bc\u03b9\u03b1 \u03be\u03b5\u03c7\u03c9\u03c1\u03b9\u03c3\u03c4\u03ae \u03c3\u03c4\u03b9\u03b3\u03bc\u03ae, \u03c4\u03b7\u03bd \u03bf\u03c0\u03bf\u03af\u03b1 \u03b1\u03c0\u03cc\u03bb\u03b1\u03c5\u03c3\u03b1\u03bd \u03cc\u03bb\u03bf\u03b9 \u03ba\u03b1\u03b9 \u03b7 \u03bf\u03c0\u03bf\u03af\u03b1 \u03bc\u03b1\u03c2 \u03b5\u03c0\u03ad\u03c4\u03c1\u03b5\u03c8\u03b5 \u03bd\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5 \u03bf\u03c5\u03c3\u03b9\u03b1\u03c3\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c3\u03c5\u03bd\u03b1\u03bd\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2 \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03b5\u03bd\u03cc\u03c2 \u03b3\u03b5\u03cd\u03bc\u03b1\u03c4\u03bf\u03c2.<\/p>\n\n\n\n

\n
\"\"
Abendessen mit Ionis<\/figcaption><\/figure>\n\n\n\n
\"\"
Caroline (DupMECP2) \u03ba\u03b1\u03b9 Helen Coles-Harrington (\u03b4\u03b9\u03c0\u03bb\u03b1\u03c3\u03b9\u03b1\u03c3\u03bc\u03cc\u03c2 MECP2 UK)<\/figcaption><\/figure>\n<\/figure>\n\n\n\n

Vielen Dank an MECP2 Duplikation UK, die die Veranstaltung organized hat. Aufnahmen aller Pr\u00e4sentationen mit Untertiteln in 13 verschiedenen Sprachen werden in K\u00fcrze geteilt. <\/p>\n\n\n\n

Wenn Sie Fragen haben, z\u00f6gern Sie nicht, uns zu kontaktieren.<\/p>","protected":false},"excerpt":{"rendered":"

Am 28. Oktober nahmen Mitglieder unseres Teams – Ana (Vorstandsmitglied), Caroline (Vorstandsmitglied, Vizepr\u00e4sidentin) und Dr. Gudrun Gr\u00f6ppel (MDS-Medizinexpertin) – an dem MDS-Familientreffen in Manchester teil. Es war eine fantastische Gelegenheit […]<\/p>","protected":false},"author":1,"featured_media":21278,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[57],"tags":[],"class_list":["post-21297","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aktualitat"],"yoast_head":"\nZusammenfassung der MECP2 Duplikation Syndrom-Familiensitzung in Manchester - DupMECP2<\/title>\n<meta name=\"description\" content=\"Es war eine fantastische Gelegenheit f\u00fcr betroffene Familien und Wissenschaftler, sich zu versammeln, um Erfahrungen auszutauschen und M\u00f6glichkeiten zur Verbesserung der Lebensqualit\u00e4t von Betroffenen, Forschungsaktualisierungen und Perspektiven auf klinische Studien zu h\u00f6ren.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/el\/zusammenfassung-familiensitzung-manchester\/?lang=de\" \/>\n<meta property=\"og:locale\" content=\"el_GR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Zusammenfassung der MECP2 Duplikation Syndrom-Familiensitzung in Manchester - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"Es war eine fantastische Gelegenheit f\u00fcr betroffene Familien und Wissenschaftler, sich zu versammeln, um Erfahrungen auszutauschen und M\u00f6glichkeiten zur Verbesserung der Lebensqualit\u00e4t von Betroffenen, Forschungsaktualisierungen und Perspektiven auf klinische Studien zu h\u00f6ren.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/el\/zusammenfassung-familiensitzung-manchester\/?lang=de\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:published_time\" content=\"2023-11-03T21:49:09+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-11-06T08:21:26+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/11\/thumbnail_IMG_5123.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"1440\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Caroline\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u03a3\u03c5\u03bd\u03c4\u03ac\u03c7\u03b8\u03b7\u03ba\u03b5 \u03b1\u03c0\u03cc\" \/>\n\t<meta name=\"twitter:data1\" content=\"Caroline\" \/>\n\t<meta name=\"twitter:label2\" content=\"\u0395\u03ba\u03c4\u03b9\u03bc\u03ce\u03bc\u03b5\u03bd\u03bf\u03c2 \u03c7\u03c1\u03cc\u03bd\u03bf\u03c2 \u03b1\u03bd\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7\u03c2\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 \u03bb\u03b5\u03c0\u03c4\u03ac\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#article\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de\"},\"author\":{\"name\":\"Caroline\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee\"},\"headline\":\"Zusammenfassung der MECP2 Duplikation Syndrom-Familiensitzung in Manchester\",\"datePublished\":\"2023-11-03T21:49:09+00:00\",\"dateModified\":\"2023-11-06T08:21:26+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de\"},\"wordCount\":517,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/11\/thumbnail_IMG_5123.jpg\",\"articleSection\":[\"Aktualit\u00e4t\"],\"inLanguage\":\"el\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de\",\"url\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de\",\"name\":\"Zusammenfassung der MECP2 Duplikation Syndrom-Familiensitzung in Manchester - DupMECP2\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#primaryimage\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/11\/thumbnail_IMG_5123.jpg\",\"datePublished\":\"2023-11-03T21:49:09+00:00\",\"dateModified\":\"2023-11-06T08:21:26+00:00\",\"description\":\"Es war eine fantastische Gelegenheit f\u00fcr betroffene Familien und Wissenschaftler, sich zu versammeln, um Erfahrungen auszutauschen und M\u00f6glichkeiten zur Verbesserung der Lebensqualit\u00e4t von Betroffenen, Forschungsaktualisierungen und Perspektiven auf klinische Studien zu h\u00f6ren.\",\"breadcrumb\":{\"@id\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#breadcrumb\"},\"inLanguage\":\"el\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"el\",\"@id\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#primaryimage\",\"url\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/11\/thumbnail_IMG_5123.jpg\",\"contentUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/11\/thumbnail_IMG_5123.jpg\",\"width\":1920,\"height\":1440},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Accueil\",\"item\":\"https:\/\/dupmecp2.eu\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Aktualit\u00e4t\",\"item\":\"https:\/\/dupmecp2.eu\/category\/aktualitat\/?lang=de\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Zusammenfassung der MECP2 Duplikation Syndrom-Familiensitzung in Manchester\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/dupmecp2.eu\/#website\",\"url\":\"https:\/\/dupmecp2.eu\/\",\"name\":\"DupMECP2\",\"description\":\"EU\",\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/dupmecp2.eu\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"el\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/dupmecp2.eu\/#organization\",\"name\":\"DupMECP2\",\"url\":\"https:\/\/dupmecp2.eu\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"el\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/\",\"url\":\"\",\"contentUrl\":\"\",\"caption\":\"DupMECP2\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/\"}},{\"@type\":\"Person\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee\",\"name\":\"Caroline\",\"sameAs\":[\"https:\/\/dupmecp2.eu\"],\"url\":\"https:\/\/dupmecp2.eu\/el\/author\/417a2385dc37aa45\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"\u03a3\u03cd\u03bd\u03bf\u03c8\u03b7 \u03c4\u03b7\u03c2 \u03c3\u03c5\u03bd\u03ad\u03bd\u03c9\u03c3\u03b7\u03c2-\u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b1\u03c2 MECP2 Duplikation Syndrom-Familiensitzung \u03c3\u03c4\u03bf \u039c\u03ac\u03bd\u03c4\u03c3\u03b5\u03c3\u03c4\u03b5\u03c1 - DupMECP2","description":"Es war eine fantastische Gelegenheit f\u00fcr betroffene Familien und Wissenschaftler, sich zu versammeln, um Erfahrungen auszutauschen und M\u00f6glichkeiten zur Verbesserung der Lebensqualit\u00e4t von Betroffenen, Forschungsaktualisierungen und Perspektiven auf klinische Studien zu h\u00f6ren.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/dupmecp2.eu\/el\/zusammenfassung-familiensitzung-manchester\/?lang=de","og_locale":"el_GR","og_type":"article","og_title":"Zusammenfassung der MECP2 Duplikation Syndrom-Familiensitzung in Manchester - DupMECP2","og_description":"Es war eine fantastische Gelegenheit f\u00fcr betroffene Familien und Wissenschaftler, sich zu versammeln, um Erfahrungen auszutauschen und M\u00f6glichkeiten zur Verbesserung der Lebensqualit\u00e4t von Betroffenen, Forschungsaktualisierungen und Perspektiven auf klinische Studien zu h\u00f6ren.","og_url":"https:\/\/dupmecp2.eu\/el\/zusammenfassung-familiensitzung-manchester\/?lang=de","og_site_name":"DupMECP2","article_published_time":"2023-11-03T21:49:09+00:00","article_modified_time":"2023-11-06T08:21:26+00:00","og_image":[{"width":1920,"height":1440,"url":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/11\/thumbnail_IMG_5123.jpg","type":"image\/jpeg"}],"author":"Caroline","twitter_card":"summary_large_image","twitter_misc":{"\u03a3\u03c5\u03bd\u03c4\u03ac\u03c7\u03b8\u03b7\u03ba\u03b5 \u03b1\u03c0\u03cc":"Caroline","\u0395\u03ba\u03c4\u03b9\u03bc\u03ce\u03bc\u03b5\u03bd\u03bf\u03c2 \u03c7\u03c1\u03cc\u03bd\u03bf\u03c2 \u03b1\u03bd\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7\u03c2":"4 \u03bb\u03b5\u03c0\u03c4\u03ac"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#article","isPartOf":{"@id":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de"},"author":{"name":"Caroline","@id":"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee"},"headline":"Zusammenfassung der MECP2 Duplikation Syndrom-Familiensitzung in Manchester","datePublished":"2023-11-03T21:49:09+00:00","dateModified":"2023-11-06T08:21:26+00:00","mainEntityOfPage":{"@id":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de"},"wordCount":517,"commentCount":0,"publisher":{"@id":"https:\/\/dupmecp2.eu\/#organization"},"image":{"@id":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#primaryimage"},"thumbnailUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/11\/thumbnail_IMG_5123.jpg","articleSection":["Aktualit\u00e4t"],"inLanguage":"el","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#respond"]}]},{"@type":"WebPage","@id":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de","url":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de","name":"\u03a3\u03cd\u03bd\u03bf\u03c8\u03b7 \u03c4\u03b7\u03c2 \u03c3\u03c5\u03bd\u03ad\u03bd\u03c9\u03c3\u03b7\u03c2-\u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b1\u03c2 MECP2 Duplikation Syndrom-Familiensitzung \u03c3\u03c4\u03bf \u039c\u03ac\u03bd\u03c4\u03c3\u03b5\u03c3\u03c4\u03b5\u03c1 - DupMECP2","isPartOf":{"@id":"https:\/\/dupmecp2.eu\/#website"},"primaryImageOfPage":{"@id":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#primaryimage"},"image":{"@id":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#primaryimage"},"thumbnailUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/11\/thumbnail_IMG_5123.jpg","datePublished":"2023-11-03T21:49:09+00:00","dateModified":"2023-11-06T08:21:26+00:00","description":"Es war eine fantastische Gelegenheit f\u00fcr betroffene Familien und Wissenschaftler, sich zu versammeln, um Erfahrungen auszutauschen und M\u00f6glichkeiten zur Verbesserung der Lebensqualit\u00e4t von Betroffenen, Forschungsaktualisierungen und Perspektiven auf klinische Studien zu h\u00f6ren.","breadcrumb":{"@id":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#breadcrumb"},"inLanguage":"el","potentialAction":[{"@type":"ReadAction","target":["https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de"]}]},{"@type":"ImageObject","inLanguage":"el","@id":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#primaryimage","url":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/11\/thumbnail_IMG_5123.jpg","contentUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/11\/thumbnail_IMG_5123.jpg","width":1920,"height":1440},{"@type":"BreadcrumbList","@id":"https:\/\/dupmecp2.eu\/zusammenfassung-familiensitzung-manchester\/?lang=de#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Accueil","item":"https:\/\/dupmecp2.eu\/"},{"@type":"ListItem","position":2,"name":"Aktualit\u00e4t","item":"https:\/\/dupmecp2.eu\/category\/aktualitat\/?lang=de"},{"@type":"ListItem","position":3,"name":"Zusammenfassung der MECP2 Duplikation Syndrom-Familiensitzung in Manchester"}]},{"@type":"WebSite","@id":"https:\/\/dupmecp2.eu\/#website","url":"https:\/\/dupmecp2.eu\/","name":"DupMECP2","description":"\u0395\u0395","publisher":{"@id":"https:\/\/dupmecp2.eu\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/dupmecp2.eu\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"el"},{"@type":"Organization","@id":"https:\/\/dupmecp2.eu\/#organization","name":"DupMECP2","url":"https:\/\/dupmecp2.eu\/","logo":{"@type":"ImageObject","inLanguage":"el","@id":"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/","url":"","contentUrl":"","caption":"DupMECP2"},"image":{"@id":"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/"}},{"@type":"Person","@id":"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee","name":"\u039a\u03b1\u03c1\u03bf\u03bb\u03af\u03bd\u03b1","sameAs":["https:\/\/dupmecp2.eu"],"url":"https:\/\/dupmecp2.eu\/el\/author\/417a2385dc37aa45\/"}]}},"_links":{"self":[{"href":"https:\/\/dupmecp2.eu\/el\/wp-json\/wp\/v2\/posts\/21297","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dupmecp2.eu\/el\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dupmecp2.eu\/el\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/el\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/el\/wp-json\/wp\/v2\/comments?post=21297"}],"version-history":[{"count":0,"href":"https:\/\/dupmecp2.eu\/el\/wp-json\/wp\/v2\/posts\/21297\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/el\/wp-json\/wp\/v2\/media\/21278"}],"wp:attachment":[{"href":"https:\/\/dupmecp2.eu\/el\/wp-json\/wp\/v2\/media?parent=21297"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dupmecp2.eu\/el\/wp-json\/wp\/v2\/categories?post=21297"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dupmecp2.eu\/el\/wp-json\/wp\/v2\/tags?post=21297"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}