{"id":23736,"date":"2023-12-18T11:41:57","date_gmt":"2023-12-18T11:41:57","guid":{"rendered":"https:\/\/dupmecp2.eu\/unsere-helden-die-familie-prokop\/"},"modified":"2024-03-22T07:10:22","modified_gmt":"2024-03-22T07:10:22","slug":"unsere-helden-die-familie-prokop","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/el\/unsere-helden-die-familie-prokop\/","title":{"rendered":"Unsere Helden: Die Familie Prokop"},"content":{"rendered":"<p>Wir sind Jeannine, Michael, Emma 4Jahre und Ben 1 Jahr. Wir wohnen bald in Ober\u00f6sterreich um f\u00fcr Ben eine bessere medizinische Versorgung zu erhalten und ihm einen f\u00fcr seine Bed\u00fcrfnisse entsprechenden Kindergartenplatz zu bieten. \u0395\u03af\u03bc\u03b1\u03c3\u03c4\u03b5 \u03c0\u03bf\u03bb\u03cd \u03b5\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03b7\u03bc\u03ad\u03bd\u03bf\u03b9 \u03c0\u03bf\u03c5 \u03cc\u03bb\u03b7 \u03b7 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03ac \u03bc\u03b1\u03c2 \u03b2\u03c1\u03af\u03c3\u03ba\u03b5\u03c4\u03b1\u03b9 \u03c0\u03af\u03c3\u03c9 \u03bc\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03c0\u03bf\u03c5 \u03b5\u03c1\u03b3\u03b1\u03b6\u03cc\u03bc\u03b1\u03c3\u03c4\u03b5 \u03bc\u03b1\u03b6\u03af \u03b3\u03b9\u03b1 \u03c4\u03bf\u03bd \u03c3\u03cd\u03bb\u03bb\u03bf\u03b3\u03cc \u03bc\u03b1\u03c2. <\/p>\n\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1920\" height=\"1080\" src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/03\/image0-edited.png\" alt=\"\" class=\"wp-image-23729\" srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/03\/image0-edited.png 1920w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/03\/image0-edited-300x169.png 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/03\/image0-edited-1024x576.png 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/03\/image0-edited-768x432.png 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/03\/image0-edited-1536x864.png 1536w\" sizes=\"(max-width: 1920px) 100vw, 1920px\" \/><\/figure>\n\n<p>\u039f\u03bd\u03bf\u03bc\u03ac\u03b6\u03bf\u03bc\u03b1\u03b9 Jeannine \u03ba\u03b1\u03b9 \u03b5\u03af\u03bc\u03b1\u03b9 \u03b7 Botschafterin \u03b3\u03b9\u03b1 \u03c4\u03bf Lasst uns MDS heilen - DupMECP2. \u0395\u03af\u03bd\u03b1\u03b9 \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc \u03bd\u03b1 \u03c3\u03c5\u03bd\u03b5\u03b9\u03b4\u03b7\u03c4\u03bf\u03c0\u03bf\u03b9\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5 \u03cc\u03c4\u03b9 \u03b1\u03c5\u03c4\u03cc \u03b4\u03af\u03bd\u03b5\u03b9 \u03c3\u03b5 \u03b5\u03bc\u03ac\u03c2 \u03ba\u03b1\u03b9 \u03c4\u03b1 \u03c0\u03b1\u03b9\u03b4\u03b9\u03ac \u03bc\u03b1\u03c2 \u03ad\u03bd\u03b1 \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03bf \u03bc\u03ad\u03bb\u03bb\u03bf\u03bd. \u0398\u03b1 \u03ae\u03b8\u03b5\u03bb\u03b1 \u03bd\u03b1 \u03c3\u03c4\u03b7\u03c1\u03af\u03be\u03c9 \u03c4\u03b9\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03c4\u03b9\u03c2 \u03b4\u03b9\u03b1\u03b2\u03b5\u03b2\u03b1\u03b9\u03ce\u03c3\u03c9 \u03cc\u03c4\u03b9 \u03b1\u03c5\u03c4\u03cc \u03c4\u03bf \u03c4\u03b1\u03be\u03af\u03b4\u03b9 \u03bc\u03b5 \u03ad\u03bd\u03b1 \u03c3\u03cd\u03bd\u03b4\u03c1\u03bf\u03bc\u03bf MECP2- Duplikationssyndrome \u03b4\u03b5\u03bd \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03b5\u03bc\u03c0\u03cc\u03b4\u03b9\u03bf. <\/p>\n\n<p>Leben ist auf unglaubliche Weise bunt und wundervoll. \u039c\u03b1\u03b6\u03af \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bc\u03b5 \u03bd\u03b1 \u03c0\u03b5\u03c4\u03cd\u03c7\u03bf\u03c5\u03bc\u03b5 \u03c0\u03bf\u03bb\u03cd \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1.<\/p>\n\n<p>Als Ben geboren wurde im Juni 2022 schien alles normal zu sein doch nach wenigen Monaten war uns klar, dass Ben sich nicht gew\u00f6hnlich Entwickelt. \u039a\u03ac\u03b8\u03b5 \u03c6\u03bf\u03c1\u03ac \u03c0\u03bf\u03c5 \u03c4\u03bf\u03bd \u03c7\u03c4\u03c5\u03c0\u03bf\u03cd\u03c3\u03b5 \u03bc\u03b9\u03b1 \u03bb\u03bf\u03af\u03bc\u03c9\u03be\u03b7, \u03c4\u03b1 \u03b1\u03bd\u03b1\u03c0\u03c4\u03c5\u03be\u03b9\u03b1\u03ba\u03ac \u03c4\u03bf\u03c5 \u03b5\u03c0\u03b9\u03c4\u03b5\u03cd\u03b3\u03bc\u03b1\u03c4\u03b1 \u03c5\u03c0\u03bf\u03bd\u03bf\u03bc\u03b5\u03cd\u03bf\u03bd\u03c4\u03b1\u03bd. Er litt an st\u00e4ndigen Pneumonien, Aspirierte, und ben\u00f6tigtet st\u00e4ndig Sauerstoffzufuhr im Krankenhaus sowie Antibiotika. Sein schlechter Gesundheitszustand besorgte uns sehr und bestimmte unser ganzes Leben. Wir verbrachten \u03bc\u03ae\u03bd\u03b5\u03c2 \u03c3\u03c4\u03bf \u03bd\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03af\u03bf.<\/p>\n\n<p>\u039f\u03b9 \u03b3\u03b9\u03b1\u03c4\u03c1\u03bf\u03af \u03ba\u03b1\u03b9 \u03bf\u03b9 \u03bd\u03bf\u03c3\u03bf\u03ba\u03cc\u03bc\u03b5\u03c2 \u03c3\u03c4\u03bf M\u00f6dling \u03ae\u03c4\u03b1\u03bd \u03b5\u03c0\u03af\u03c3\u03b7\u03c2 \u03c0\u03bf\u03bb\u03cd \u03b5\u03bd\u03c4\u03c5\u03c0\u03c9\u03c3\u03b9\u03b1\u03c3\u03bc\u03ad\u03bd\u03bf\u03b9 \u03ba\u03b1\u03b9 \u03ae\u03c4\u03b1\u03bd \u03c3\u03b5 \u03b8\u03ad\u03c3\u03b7 \u03bd\u03b1 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03bf\u03c0\u03bf\u03b9\u03ae\u03c3\u03bf\u03c5\u03bd \u03ad\u03bd\u03b1 Gen Test. \u03a4\u03bf\u03bd \u0391\u03c0\u03c1\u03af\u03bb\u03b9\u03bf \u03c4\u03bf\u03c5 2023 \u03bb\u03ac\u03b2\u03b1\u03bc\u03b5 \u03c4\u03bf Diganose \u03ba\u03b1\u03b9 \u03ae\u03c4\u03b1\u03bd \u03ad\u03bd\u03b1 \u03bc\u03b5\u03b3\u03ac\u03bb\u03bf \u03c3\u03bf\u03ba, \u03b1\u03bb\u03bb\u03ac \u03ba\u03b1\u03b9 \u03bc\u03b9\u03b1 \u03b5\u03b9\u03ba\u03cc\u03bd\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03bf \u03c4\u03b9 \u03b5\u03af\u03c7\u03b5 \u03bf \u039c\u03c0\u03b5\u03bd. Dann hie\u00df es das Leben neu sortieren, organisieren und so viele Informationen zu verarbeiten. <\/p>\n\n<p>\u0397 \u03b5\u03c0\u03b1\u03c6\u03ae \u03bc\u03b5 \u03ac\u03bb\u03bb\u03bf\u03c5\u03c2 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2, \u03ba\u03b1\u03b9 \u03b9\u03b4\u03b9\u03b1\u03af\u03c4\u03b5\u03c1\u03b1 \u03bc\u03b5 \u03c4\u03bf\u03bd David \u03ba\u03b1\u03b9 \u03c4\u03b7\u03bd Ana, \u03bc\u03bf\u03c5 \u03ad\u03b4\u03c9\u03c3\u03b5 \u03bc\u03b5\u03b3\u03ac\u03bb\u03b7 \u03b5\u03c5\u03c7\u03b1\u03c1\u03af\u03c3\u03c4\u03b7\u03c3\u03b7 \u03c3\u03c4\u03bf \u03bd\u03b1 \u03b2\u03c1\u03c9 \u03bc\u03b9\u03b1 \u03b4\u03b9\u03ad\u03be\u03bf\u03b4\u03bf \u03c3\u03c4\u03b7 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7. \u0388\u03bd\u03b1 \u03bc\u03b5\u03b3\u03ac\u03bb\u03bf \u03b5\u03c5\u03c7\u03b1\u03c1\u03b9\u03c3\u03c4\u03ce \u03b3\u03b9' \u03b1\u03c5\u03c4\u03cc.<\/p>\n\n<p>\u039f \u03b3\u03b9\u03bf\u03c2 \u03bc\u03b1\u03c2 \u039c\u03c0\u03b5\u03bd \u03b5\u03af\u03bd\u03b1\u03b9 \u03ad\u03bd\u03b1\u03c2 \u03c6\u03b9\u03bb\u03cc\u03b4\u03bf\u03be\u03bf\u03c2 \u03bd\u03ad\u03bf\u03c2 \u03c0\u03bf\u03c5 \u03b2\u03c1\u03af\u03c3\u03ba\u03b5\u03c4\u03b1\u03b9 \u03c0\u03ac\u03bd\u03c4\u03b1 \u03c3\u03b5 \u03ba\u03af\u03bd\u03b7\u03c3\u03b7. \u03a4\u03bf\u03c5 \u03b1\u03c1\u03ad\u03c3\u03b5\u03b9 \u03bd\u03b1 \u03c0\u03b1\u03af\u03b6\u03b5\u03b9 \u03c0\u03b1\u03b9\u03c7\u03bd\u03af\u03b4\u03b9\u03b1 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03b4\u03b9\u03b1\u03b2\u03ac\u03b6\u03b5\u03b9 \u03b2\u03b9\u03b2\u03bb\u03af\u03b1 \u03bc\u03b5 \u03c4\u03bf\u03bd \u03bc\u03b5\u03b3\u03ac\u03bb\u03bf \u03c4\u03bf\u03c5 Schwester Guck-Guck. \u0395\u03bd\u03b4\u03b9\u03b1\u03c6\u03ad\u03c1\u03b5\u03c4\u03b1\u03b9 \u03c0\u03bf\u03bb\u03cd \u03b3\u03b9\u03b1 \u03c4\u03bf \u03c0\u03b5\u03c1\u03b9\u03b2\u03ac\u03bb\u03bb\u03bf\u03bd \u03c4\u03bf\u03c5, \u03b3\u03b5\u03b3\u03bf\u03bd\u03cc\u03c2 \u03c0\u03bf\u03c5 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03b5\u03af \u03c3\u03b7\u03bc\u03b1\u03bd\u03c4\u03b9\u03ba\u03cc \u03c0\u03bb\u03b5\u03bf\u03bd\u03ad\u03ba\u03c4\u03b7\u03bc\u03b1 \u03c3\u03c4\u03b7 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1. Er kommuniziert sehr klar durch seine K\u00f6rpersprache und hat einen starken Willen sich weiterzuentwickeln.<\/p>\n\n<p>\u0395\u03af\u03bd\u03b1\u03b9 \u03ad\u03bd\u03b1\u03c2 \u03bc\u03b9\u03ba\u03c1\u03cc\u03c2 \u03ac\u03bd\u03b8\u03c1\u03c9\u03c0\u03bf\u03c2 \u03ba\u03b1\u03b9 \u03ad\u03bd\u03b1\u03c2 \u03c4\u03b5\u03c1\u03ac\u03c3\u03c4\u03b9\u03bf\u03c2 \u03c0\u03c1\u03c9\u03c4\u03b1\u03b8\u03bb\u03b7\u03c4\u03ae\u03c2. \u03a4\u03bf\u03c5 \u03b5\u03af\u03bc\u03b1\u03c3\u03c4\u03b5 \u03c0\u03c1\u03b1\u03b3\u03bc\u03b1\u03c4\u03b9\u03ba\u03ac \u03b5\u03c5\u03b3\u03bd\u03ce\u03bc\u03bf\u03bd\u03b5\u03c2 \u03ba\u03b1\u03b9 \u03b8\u03b1 \u03ba\u03ac\u03bd\u03bf\u03c5\u03bc\u03b5 \u03cc,\u03c4\u03b9 \u03bc\u03c0\u03bf\u03c1\u03bf\u03cd\u03bc\u03b5 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03c4\u03bf\u03bd \u03b2\u03bf\u03b7\u03b8\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5.<\/p>","protected":false},"excerpt":{"rendered":"<p>Wir sind Jeannine, Michael, Emma 4Jahre und Ben 1 Jahr. Wir wohnen bald in Ober\u00f6sterreich um f\u00fcr Ben eine bessere medizinische Versorgung zu erhalten und ihm einen f\u00fcr seine Bed\u00fcrfnisse [&hellip;]<\/p>","protected":false},"author":1,"featured_media":22738,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[171],"tags":[],"class_list":["post-23736","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-unsere-helden"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Unsere Helden: Die Familie Prokop - DupMECP2<\/title>\n<meta name=\"description\" content=\"Jeannine Prokop ist Botschafterin f\u00fcr Lasst uns MDS heilen \u2013 DupMECP2 und m\u00f6chte Familien unterst\u00fctzen, die mit MECP2-Duplikationssyndrom leben. 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