2025 Family Reunion in Manchester

Once again this year, the MECP2 Duplication UK association will host the MDS Family Day in Manchester on Saturday, November 8, 2025. The meeting will be held at the DoubleTree Hilton hotel directly at Manchester Airport.

Dr. Davut Pehlivan from Texas Children's Hospital, along with the Ionis team, will join the meeting and provide an update on the progress of research into a treatment.

The detailed program will be announced as soon as possible. However, please note that the program will begin at 8:30 a.m.

Members of our association will also be present and will be happy to assist with translation into French or German.

Registration is free and must be done here: https://docs.google.com/forms/d/e/1FAIpQLSd-dLHjDTq7vidZazCnLTeQKbwF5NXLoCdVW9_OYHQyrc24SA/viewform?usp=send_form

If you would like to stay overnight or for the weekend at the hotel, a special rate has been set up for those participating in the MECP2 Family Day. Here is the link to make a reservation: Hilton Event Email

In collaboration with the MECP2 Duplication Syndrome Deutschland e.V. association, we are offering a refund of travel expenses to families taking part in the MDS Family Day 2025.
Families can apply for support of up to €400 per family to cover part of their travel and accommodation costs. Are you planning to attend the MDS Family Day in Manchester and looking for support with travel costs?

Apply now for assistance by filling out the form: https://forms.office.com/e/c1fcABTZTE