Rare Diseases Run 2027

We are proud to be one of 48 patient advocacy associations and groups in the field of rare diseases in Germany and Austria that are once again joining forces for the RARE DISEASES RUN 2027!

From the 22nd to the 28th of February 2027, take the chance to participate in the 6th edition of the Rare Diseases Run — a virtual event — to celebrate Rare Disease Day. Everyone can take part. You can simply choose your distance and show your support.

Discover the rare diseases run in our video

Every kilometer helps raise funds and support 48 rare disease organizations united behind the Rare Disease Run. 

You also have the opportunity to select a specific organization and support it directly with a donation.

This is how you can take part:

Registration costs from €10 and is possible until February 28, 2027. You can either register online (with a printable certificate) or opt for an additional package with a medal and a T-shirt. You specify your desired distance (500 m to marathon) and decide whether you want to run or walk.

When registering, don't forget:

• Enter “DupMECP2” under “Organization/Association”!
• You can allocate your donation to a specific organization - including DupMECP2!

Click here to register:

Join us in raising awareness of the fight against rare diseases, which affect more than 300 million people worldwide. Alone we are rare, together we are strong! Sign up today and run for a good cause!

Individuals, companies, and schools are warmly invited to raise awareness and show solidarity. If you or your organization would like to get involved, please contact us.

Together, we can make Rare Disease Day visible around the world.