Newsletter - April 2024

This is the third issue of our newsletter.

In this new issue, you can find out more about :

  • Research highlights: CRISPR-Cas13 and Huidagene
  • Summary of events in January and February 2024
  • Our next events
  • Families share their stories: A day in the life of Zac's family
  • Our heroes: Spotlight on Dr Gröppel
  • News from the association
  • DupMECP2 in the press
  • Global online fundraising campaign
  • Ambassador and expert model
  • Our sponsors

P.S. Don't hesitate to send us your comments, testimonials or suggestions. Your voice is important, and we're here to listen and support you every step of the way.

Other published articles

Published videos

Aleix and his parents talk about their life with the syndrome

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