This is the second issue of our newsletter.
In this new issue, you can find out more about :
- Ambassador and expert model
- Membership renewal
- International online donation campaign
- The NHS and its role in rare diseases
- Huidagene: a promising CRISPR-CAS13 technology
- Past and future events
- Our heroes
P.S. Don't hesitate to send us your comments, testimonials or suggestions. Your voice is important, and we're here to listen and support you every step of the way.


