400 km Rowing Challenge
400 km Rowing Challenge, with the Lomme Fire Brigade & the Armentières Rowing Club, on 18 March 2017.
400 km Rowing Challenge, with the Lomme Fire Brigade & the Armentières Rowing Club, on 18 March 2017.
Les Boucles du Cœur with Carrefour market from 8 May to 18 June 2017
Come and join us on Friday 9 June 2017 in the Paris region for the association's first information meeting on MECP2 Gene Duplication. This meeting, which is open to all, will be an opportunity for families and healthcare professionals to meet. We will have the pleasure of hosting this meeting with Professor Hilde Van Esch, geneticist [...].
Operation Bags and Wristbands with Carrefour market to support research from 30 October to 27 November 2017.
Operation Christmas with Lutti™ sweets during the 2017 festive season https://youtu.be/jXf5gZwHpNA
Come and run and walk in aid of the charity Les Petits Mecs P2 on 4 February 2018 in Herlies! Rando Raid, Rando Balade, Trail Crapahute, there will be something for everyone. And there'll be mud too! "La Crapahute sans boue, c'est pas la Crapahute" - Alain B. And as [...]
Do like our godmother Muriel HURTIS (world champion 4X100m relay) Take part in the challenge to cover 100,000 km with the Tape à l'œil foundation in aid of the charity Les Petits Mec P2 https://youtu.be/QBSGJ4QubDA
At the Spotlight in Lille. We look forward to seeing you there!
Théatre Sébastopol, Lille. Song/Cabaret/Magic/Hypnosis/Humour 2 hours of entertainment for all the family! Come one, come all! https://www.facebook.com/watch/?v=4164604122154
General Meeting les petits MeCP2 : Election of the bureau
Help researchers learn more about the sensory abilities of people with MECP2 gene duplication syndrome, which have been little studied until now.
This major event will provide an opportunity for doctors, scientists and families to meet and discuss current developments in the search for treatment and patient care. New therapeutic approaches will also be presented. To register: 2022 MECP2 Duplication Family Conference Registration (office.com)