Newsletter Dezember 2023

Here you can find the second issue of our newsletters.

In dieser neuen Ausgabe erfahren Sie mehr über :

  • Botschafter- und Expertenmodell
  • Mitgliedschaft Verlängerung
  • Globale Online-Spendenaktion
  • NHS und seie Rolle bei selternen Krankheiten
  • Huidagene: eine vielversprechende CRISPR-CAS13 Technologie
  • Events
  • Unsere Helden

P.S. Don't worry about giving us your feedback, your ideas or suggestions. Your feedback is important, and we're here to help you and support you every step of the way.

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Published videos

Aleix and his parents talk about their life with the syndrome

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