Newsletter Dicembre 2023

This is the second issue of our newsletter.

In questo nuovo numero potrete scoprire di più su :

  • Modello di ambasciatore ed esperto
  • Rinnovo dell'affiliazione
  • International online donation campaign
  • The National Health Service and its role in rare diseases
  • Huidagene: a promising CRISPR-CAS13 technology
  • Eventi passati e futuri
  • I nostri eroi

Other published articles

Published videos

Aleix and his parents talk about their life with the syndrome

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