{"id":14121,"date":"2023-01-30T19:24:57","date_gmt":"2023-01-30T19:24:57","guid":{"rendered":"https:\/\/dupmecp2.eu\/octapharma-unterstuetzt-und-spendet-fuer-den-verein-lasst-uns-mds-heilen-dupmecp2\/"},"modified":"2023-01-30T19:49:47","modified_gmt":"2023-01-30T19:49:47","slug":"octapharma-unterstuetzt-und-spendet-fuer-dupmecp2","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/en\/octapharma-unterstuetzt-und-spendet-fuer-dupmecp2\/","title":{"rendered":"Octapharma unterst\u00fctzt und spendet f\u00fcr den Verein \"Lasst uns MDS heilen: DupMECP2\" (Help us to understand MDS: DupMECP2)"},"content":{"rendered":"

MECP2-Genduplikation Syndrome (MDS) is a rare and severe neurogenic disorder affecting children. It is caused by a Genduplikation on the X chromosome, which leads to \u00dcberexpression of MeCP2 Proteins. The syndrome is characterised by schwere geistige Behinderung, Entwicklungsverz\u00f6gerung, Hypotonie, wiederkehrende Infektionen und das Auftreten von Krampfanf\u00e4llen, die zur R\u00fcckbildung f\u00fchren.<\/p>\n\n\n\n

Verschiedene Forschungsgruppen arbeiten hart daran, ein Heilmittel f\u00fcr MDS zu finden. The group led by Prof. Huda Zoghbi has found in a Tiermodell that the symptoms are reversible when the MeCP2 protein concentration is reduced.<\/p>\n\n\n\n

Octapharma ist ein Familienunternehmen, das Arzneimittel auf der Grundlage menschlicher Proteine aus menschlichen Zelllinien und menschlichem Plasma entwickelt und herstellt.<\/p>\n\n\n\n

Caroline Covini, Mitbegr\u00fcnderin des Vereins \"Lasst uns MDS heilen\" und Mutter eines betroffenen Jungen, ist Projektleiterin in der Forschung und Entwicklung bei Octapharma in Wien.<\/p>\n\n\n\n

In the summer of 2022, the Pharmaunternehmen is organising a V-Challenge for its female employees in Vienna. Alle Teilnehmenden konnten entweder laufen, Rad fahren oder gehen und so gemeinsam Kilometer sammeln. Am Ende der Challenge wurden in 88 Tagen \u00fcber 95 100 km geschafft. Diese Kilometer wurden von den Eigent\u00fcmern des Unternehmens in Spenden f\u00fcr gute Zwecke umgewandelt.<\/p>\n\n\n\n

Eigent\u00fcmer von Octapharma haben auch entschieden, eine Spende von 10 000 Euro an \"Lasst uns MDS heilen\" zu geben.<\/strong><\/p>\n\n\n\n

Hier sehen Sie die \u00dcbergabe des Spendenschecks durch Barbara Rangetiner, Gesch\u00e4ftsf\u00fchrerin von Octapharma Wien, an Caroline Covini.<\/p>\n\n\n\n

\n
\"\"<\/figure>\n<\/figure>\n\n\n\n

Diese Spende leistet einen wertvollen Beitrag zu:<\/p>\n\n\n\n

- Vielversprechenden Forschungsprojekten<\/p>\n\n\n\n

- Unterst\u00fctzung bei der Vorbereitung kommender klinischer Studien in Europa<\/p>\n\n\n\n

- Infrastrukturen f\u00fcr Kinder mit Behinderungen<\/p>\n\n\n\n

- Entwicklung des Vereins<\/p>\n\n\n\n

Wir danken Octapharma und ihren sportlichen Teilnehmer*innen f\u00fcr die Kilometer und ihre Unterst\u00fctzung f\u00fcr den Verein.<\/p>\n\n\n\n

Sie k\u00f6nnen weiterhin Ihre Unterst\u00fctzung zeigen und zu den Projekten des Vereins beitragen, indem Sie hier spenden:<\/p>\n\n\n\n

\n
Spenden<\/a><\/div>\n<\/div>\n\n\n\n
<\/div>\n\n\n\n
\n\n\n\n

Erfahren Sie mehr \u00fcber den Verein DupMECP2.eu<\/a><\/p>\n\n\n\n

LinkedIn : https:\/\/www.linkedin.com\/company\/lasst-uns-mds-heilen-lets-cure-mds\/<\/a><\/p>\n\n\n\n

Facebook : https:\/\/www.facebook.com\/dupmecp2<\/a> <\/p>\n\n\n\n

Instagram : https:\/\/www.instagram.com\/dupmecp2<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Das MECP2-Genduplikation Syndrom (MDS) ist eine seltene und fortschreitende neurogenetische St\u00f6rung, die Kinder betrifft. Sie wird durch eine Genduplikation auf dem X-Chromosom verursacht, die zu einer \u00dcberexpression des MeCP2-Proteins f\u00fchrt. […]<\/p>","protected":false},"author":1,"featured_media":14101,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[57,96],"tags":[],"class_list":["post-14121","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aktualitat","category-spendenaktionen"],"yoast_head":"\nOctapharma unterst\u00fctzt und spendet f\u00fcr den Verein \u201cLasst uns MDS heilen: DupMECP2\u201d - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/en\/octapharma-unterstuetzt-und-spendet-fuer-dupmecp2\/?lang=de\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Octapharma unterst\u00fctzt und spendet f\u00fcr den Verein \u201cLasst uns MDS heilen: DupMECP2\u201d - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"Das MECP2-Genduplikation Syndrom (MDS) ist eine seltene und fortschreitende neurogenetische St\u00f6rung, die Kinder betrifft. Sie wird durch eine Genduplikation auf dem X-Chromosom verursacht, die zu einer \u00dcberexpression des MeCP2-Proteins f\u00fchrt. 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