{"id":23736,"date":"2023-12-18T11:41:57","date_gmt":"2023-12-18T11:41:57","guid":{"rendered":"https:\/\/dupmecp2.eu\/unsere-helden-die-familie-prokop\/"},"modified":"2024-03-22T07:10:22","modified_gmt":"2024-03-22T07:10:22","slug":"unsere-helden-die-familie-prokop","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/en\/unsere-helden-die-familie-prokop\/","title":{"rendered":"Unsere Helden: Die Familie Prokop"},"content":{"rendered":"

Wir sind Jeannine, Michael, Emma 4Jahre und Ben 1 Jahr. Wir wohnen bald in Ober\u00f6sterreich um f\u00fcr Ben eine bessere medizinische Versorgung zu erhalten und ihm einen f\u00fcr seine Bed\u00fcrfnisse entsprechenden Kindergartenplatz zu bieten. We are very pleased that our entire family is behind us and that we are working together for our association. <\/p>\n\n

\"\"<\/figure>\n\n

My name is Jeannine and I'm the Botschafterin for Lasst uns MDS heilen - DupMECP2. It's important to realise that this gives us and our children a better future. I would like to support families and assure them that this journey with an MECP2- Duplikationssyndrome is no hindrance. <\/p>\n\n

Leben ist auf unglaubliche Weise bunt und wundervoll. Together we can achieve much more.<\/p>\n\n

Als Ben geboren wurde im Juni 2022 schien alles normal zu sein doch nach wenigen Monaten war uns klar, dass Ben sich nicht gew\u00f6hnlich Entwickelt. Every time he had an infection, his developmental skills were lost. Er litt an st\u00e4ndigen Pneumonien, Aspirierte, und ben\u00f6tigtet st\u00e4ndig Sauerstoffzufuhr im Krankenhaus sowie Antibiotika. Sein schlechter Gesundheitszustand besorgte uns sehr und bestimmte unser ganzes Leben. Wir verbrachten Monate im Krankenhaus.<\/p>\n\n

The doctors and nurses in M\u00f6dling were also very impressed, and gave us a good test. In April 2023, we received the Diganose and it was a big shock, but also an insight into what Ben had. Dann hie\u00df es das Leben neu sortieren, organisieren und so viele Informationen zu verarbeiten. <\/p>\n\n

The contact with other patients, and especially with David and Ana, has given me a great deal of pleasure in finding a way through to the diagnosis. A big thank you for this.<\/p>\n\n

Our son Ben is an ambitious young man who is always on the move. He loves playing games and reading books with his granddaughter. He is very interested in his surroundings, which is a major bonus in therapy. Er kommuniziert sehr klar durch seine K\u00f6rpersprache und hat einen starken Willen sich weiterzuentwickeln.<\/p>\n\n

He's a small man and an enormous champion. We are truly grateful to him and will do everything we can to support him.<\/p>","protected":false},"excerpt":{"rendered":"

Wir sind Jeannine, Michael, Emma 4Jahre und Ben 1 Jahr. Wir wohnen bald in Ober\u00f6sterreich um f\u00fcr Ben eine bessere medizinische Versorgung zu erhalten und ihm einen f\u00fcr seine Bed\u00fcrfnisse […]<\/p>","protected":false},"author":1,"featured_media":22738,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[171],"tags":[],"class_list":["post-23736","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-unsere-helden"],"yoast_head":"\nUnsere Helden: Die Familie Prokop - DupMECP2<\/title>\n<meta name=\"description\" content=\"Jeannine Prokop ist Botschafterin f\u00fcr Lasst uns MDS heilen \u2013 DupMECP2 und m\u00f6chte Familien unterst\u00fctzen, die mit MECP2-Duplikationssyndrom leben. Erfahren Sie mehr \u00fcber Bens Reise und wie wir gemeinsam eine uneingeschr\u00e4nkte Zukunft f\u00fcr Kinder wie ihn schaffen k\u00f6nnen.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/en\/unsere-helden-die-familie-prokop\/?lang=de\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Unsere Helden: Die Familie Prokop - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"Jeannine Prokop ist Botschafterin f\u00fcr Lasst uns MDS heilen \u2013 DupMECP2 und m\u00f6chte Familien unterst\u00fctzen, die mit MECP2-Duplikationssyndrom leben. 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