{"id":31071,"date":"2024-12-01T22:34:32","date_gmt":"2024-12-01T21:34:32","guid":{"rendered":"https:\/\/dupmecp2.eu\/en-cette-periode-de-fetes-aidons-les-autres-et-rendons-cette-periode-particulierement-memorable\/"},"modified":"2024-12-10T19:14:32","modified_gmt":"2024-12-10T18:14:32","slug":"christmas-tree-2024","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/en\/christmas-tree-2024\/","title":{"rendered":"Light up our Xmas tree & Make dreams come true"},"content":{"rendered":"
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Light up our Xmas tree & Make dreams come true<\/a><\/div>\n<\/div>\n\n

This holiday season, let\u2019s make it a wonderful time by helping others! <\/strong><\/h2>\n\n

At DupMECP2, we are dedicated to supporting children with MECP2 and their families the best we can and all year round. <\/p>\n\n

MECP2 Duplication Syndrome is a rare and devastating syndrome. Our team works tirelessly to raise awareness of rare genetic disorders, demystify research, and provide families with the resources and support they need.<\/strong><\/p>\n\n

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But we can\u2019t do what we do alone! We need your help! <\/strong><\/h3>\n\n
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Last year, with the help of our members, staff, family, and friends, we were able to bring you countless events, activities, and materials that helped raise awareness for MECP2 Duplication Syndrome. <\/p>\n\n\n\n

With your help in 2024, we were able to create a two-part webinar about the ATTUNE study, giving families and caregivers valuable information.<\/p>\n\n\n\n

This resource\u2019s goal was to offer clear, accessible information about the clinical trials that will soon start and help families prepare for the future. We were also very proud to be able to help financially families to support costs for expensive therapies and medical devices. <\/p>\n<\/div>\n\n\n\n

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