{"id":31074,"date":"2024-12-01T22:34:32","date_gmt":"2024-12-01T21:34:32","guid":{"rendered":"https:\/\/dupmecp2.eu\/ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos\/"},"modified":"2024-12-04T20:34:08","modified_gmt":"2024-12-04T19:34:08","slug":"ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/en\/ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos\/","title":{"rendered":"Ilumina tu \u00e1rbol de Navidad y haz realidad nuestros sue\u00f1os"},"content":{"rendered":"<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background has-text-align-center wp-element-button\" href=\"https:\/\/visufund.com\/dupmecp2-xmas-2024\" style=\"border-radius:15px;background-color:#f7a13f\">\u00a1Ilumina nuestro \u00e1rbol de Navidad!<\/a><\/div>\n<\/div>\n\n<h2 class=\"wp-block-heading\"><strong>\u00a1Esta temporada navide\u00f1a, hag\u00e1mosla un momento maravilloso ayudando a los dem\u00e1s! <\/strong><\/h2>\n\n<p>En DupMECP2, nos dedicamos a apoyar a los ni\u00f1os con MECP2 y sus familias lo mejor que podamos y durante todo el a\u00f1o. <\/p>\n\n<p>El s\u00edndrome de duplicaci\u00f3n MECP2 es un s\u00edndrome raro y devastador. <strong>Nuestro equipo trabaja incansablemente para crear conciencia sobre los trastornos gen\u00e9ticos raros, desmitificar la investigaci\u00f3n y brindar a las familias los recursos y el apoyo que necesitan.<\/strong><\/p>\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h3 class=\"wp-block-heading\"><strong>Pero no podemos hacer lo que hacemos solos. \u00a1Necesitamos tu ayuda!  <\/strong><\/h3>\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"has-text-align-left\">El a\u00f1o pasado, con la ayuda de nuestros miembros, personal, familiares y amigos, pudimos ofrecerles innumerables eventos, actividades y materiales que ayudaron a crear conciencia sobre el s\u00edndrome de duplicaci\u00f3n MECP2. <\/p>\n\n\n\n<p class=\"has-text-align-left\">Con su ayuda, en 2024 pudimos crear un seminario web de dos partes sobre el estudio ATTUNE, brindando a las familias y cuidadores informaci\u00f3n valiosa.<\/p>\n\n\n\n<p>The aim of this guide was to provide clear and accessible information about the clinical trials that will soon begin, and to help families prepare for the future. Tambi\u00e9n nos enorgulleci\u00f3 mucho poder ayudar econ\u00f3micamente a las familias a sufragar los costos de terapias y dispositivos m\u00e9dicos costos. <\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Welcome to Lasst uns MDS heilen - DupMECP2\" width=\"800\" height=\"450\" data-src=\"https:\/\/www.youtube.com\/embed\/Uz-4yW966Zg?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" class=\"lazyload\" data-load-mode=\"1\"><\/iframe>\n<\/div><\/figure>\n<\/div>\n<\/div>\n\n<div style=\"height:66px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h2 class=\"wp-block-heading\"><strong>\u00bfC\u00f3mo puedes ayudar?<\/strong><\/h2>\n\n<p>Este a\u00f1o, puedes marcar la diferencia de una manera verdaderamente significativa. <strong>Te invitamos a unirte a nosotros para hacer realidad tus sue\u00f1os en esta temporada navide\u00f1a. <\/strong>Muestre su apoyo a nuestras misiones decorando nuestro \u00e1rbol de Navidad virtual.<\/p>\n\n<h3 class=\"wp-block-heading\"><strong>Cada luz del \u00e1rbol ilumina nuestras esperanzas, muestra su apoyo y nos permite hacer una diferencia para nuestros peque\u00f1os h\u00e9roes.<\/strong><\/h3>\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p><\/p>\n\n\n\n<p>Al decorar nuestro \u00e1rbol de Navidad virtual, puedes ayudar a mejorar la vida de los ni\u00f1os y las familias. Each ornament you place in the tree helps us to: <\/p>\n<\/blockquote>\n\n<ul class=\"wp-block-list\">\n<li><strong>Apoyar a las familias brind\u00e1ndoles informaci\u00f3n y actualizaciones, as\u00ed como tambi\u00e9n respaldar los costos de las terapias.<\/strong><\/li>\n\n\n\n<li><strong>Concientizaci\u00f3n sobre el s\u00edndrome de duplicaci\u00f3n MECP2 y el trastorno gen\u00e9tico raro<\/strong><\/li>\n\n\n\n<li><strong>Stepping up research into innovative technologies to find a cure<\/strong><\/li>\n<\/ul>\n\n<div style=\"height:66px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h2 class=\"wp-block-heading\"><strong>How does it work?<\/strong><\/h2>\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<ol class=\"wp-block-list\">\n<li>Visita nuestro \u00e1rbol de navidad virtual.<\/li>\n\n\n\n<li>Elija una o m\u00e1s estrellas o adornos.<\/li>\n\n\n\n<li>Deja un deseo de Navidad y sube una foto para personalizar tu mensaje en nuestro \u00e1rbol (opcional) <\/li>\n\n\n\n<li>Comparte el enlace con tus amigos para amplificar tu buena acci\u00f3n y crear una cascada.<\/li>\n<\/ol>\n<\/div>\n<\/div>\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background has-text-align-center wp-element-button\" href=\"https:\/\/visufund.com\/dupmecp2-xmas-2024\" style=\"border-radius:15px;background-color:#f7a13f\">\u00a1Ilumina nuestro \u00e1rbol!<\/a><\/div>\n<\/div>\n\n<div style=\"height:43px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h3 class=\"wp-block-heading has-text-align-center\">We hope this year will be a great and significant one.<\/h3>\n\n<div style=\"position: relative; width: 100%; overflow: hidden; padding-top: 100%;\"><iframe style=\"position: absolute; top: 0; left: 0; bottom: 0; right: 0; width: 100%; height: 100%; border: none;\" data-src=\"https:\/\/visufund.com\/38640?embed=1&#038;tourloop=1\" title=\"P\u00e1gina de Visufund\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" class=\"lazyload\" data-load-mode=\"1\"><\/iframe><\/div>\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" href=\"https:\/\/visufund.com\/dupmecp2-xmas-2024\" style=\"border-radius:15px;background-color:#f7a13f\">\u00a1Apoya nuestras misiones!<\/a><\/div>\n<\/div>\n\n<div style=\"height:69px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>\u00a1Esta temporada navide\u00f1a, hag\u00e1mosla un momento maravilloso ayudando a los dem\u00e1s! En DupMECP2, nos dedicamos a apoyar a los ni\u00f1os con MECP2 y sus familias lo mejor que podamos y [&hellip;]<\/p>","protected":false},"author":1,"featured_media":30890,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[116],"tags":[],"class_list":["post-31074","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-recaudacion-de-fondos"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Ilumina tu \u00e1rbol de Navidad y haz realidad nuestros sue\u00f1os - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/en\/ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos\/?lang=es\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ilumina tu \u00e1rbol de Navidad y haz realidad nuestros sue\u00f1os - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"\u00a1Esta temporada navide\u00f1a, hag\u00e1mosla un momento maravilloso ayudando a los dem\u00e1s! 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