{"id":31337,"date":"2024-12-11T20:14:39","date_gmt":"2024-12-11T19:14:39","guid":{"rendered":"https:\/\/dupmecp2.eu\/?p=31337"},"modified":"2025-01-30T21:18:50","modified_gmt":"2025-01-30T20:18:50","slug":"attune-study-2","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/en\/attune-study-2\/","title":{"rendered":"Demystifying the ATTUNE Study"},"content":{"rendered":"<p>In May 2024, Ionis published the ATTUNE study protocol on clinicaltrials.gov. <\/p>\n\n\n\n<p><\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background has-text-align-center wp-element-button\" href=\"https:\/\/clinicaltrials.gov\/study\/NCT06430385?cond=Mecp2DuplicationSyndrome&amp;rank=3\" style=\"border-radius:15px;background-color:#f7a13f\" target=\"_blank\" rel=\"noreferrer noopener\">To the study protocol<\/a><\/div>\n<\/div>\n\n\n\n<p><\/p>\n\n\n\n<p>With the aim of providing a better understanding to all, our team shortly after launched a global survey to collect questions about the study from families. We received over 150 questions from families across 18 countries. The questions were all addressed by MDS experts, including David Covini (DupMECP2), Katie Wester-Neal (MECP2 Duplication Foundation), Dr. Davut Pehlivan (NRI Houston), and Ionis\u2019 team, ensuring every response is accurate.   <\/p>\n\n\n\n<p>This e-booklet compiles the answers to the most frequent questions and concerns from families worldwide. <\/p>\n\n\n\n<p> These Q\/A have been categorized into three main sections: <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Trial Logistics, Procedures, and Communication <\/strong><strong>Procedures and Communication<\/strong> <\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Drug-Related Questions<\/strong> <\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Participants eligibility and selection<\/strong> <\/li>\n<\/ul>\n\n\n\n<div style=\"height:26px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-buttons has-white-background-color has-background is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\" id=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/12\/Ebook_Demystifying-the-attune-Study_FINAL.pdf\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" href=\"https:\/\/form.remeds.org\/250262886969979\" style=\"border-radius:15px;background-color:#f7a13f\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>To the e-book<\/strong> <\/a><\/div>\n<\/div>\n\n\n\n<div style=\"height:26px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p><\/p>\n\n\n\n<p>The content of this e-book is also the foundation for our two-part webinar series available on YouTube, providing another alternative format for families to obtain essential information. <\/p>\n\n\n\n<p><\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-outline is-style-outline--1\" id=\"https:\/\/youtu.be\/Z1NUj0aURxc?si=dupM-CKI7-Nx2EPg\"><a class=\"wp-block-button__link has-white-background-color has-text-color has-background has-link-color wp-element-button\" href=\"https:\/\/www.youtube.com\/watch?v=Z1NUj0aURxc\" style=\"border-radius:15px;color:#f7a13f\" target=\"_blank\" rel=\"noreferrer noopener\">to the webinar - Part 1 <\/a><\/div>\n\n\n\n<div class=\"wp-block-button is-style-outline is-style-outline--2\" id=\"https:\/\/youtu.be\/NdjIyt_Ygvw?si=j3DGlXka8slbyhpC\"><a class=\"wp-block-button__link has-white-background-color has-text-color has-background has-link-color wp-element-button\" href=\"https:\/\/www.youtube.com\/watch?v=NdjIyt_Ygvwt\" style=\"border-radius:15px;color:#f7a13f\" target=\"_blank\" rel=\"noreferrer noopener\">To the webinar - Part 2 <\/a><\/div>\n<\/div>\n\n\n\n<p><\/p>\n\n\n\n<p>Don't hesitate to contact us if you have any further questions. <\/p>\n\n\n\n<div class=\"wp-block-buttons is-content-justification-right is-layout-flex wp-container-core-buttons-is-layout-d445cf74 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" href=\"https:\/\/dupmecp2.eu\/en\/contact\/?lang=fr\" style=\"border-radius:15px;background-color:#55266c\">Contact us!<\/a><\/div>\n<\/div>\n\n\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>En mai 2024, Ionis a publi\u00e9 le protocole de l&rsquo;\u00e9tude ATTUNE sur clinicaltrials.gov. Dans le but de fournir une meilleure compr\u00e9hension \u00e0 tous, notre \u00e9quipe a lanc\u00e9 peu de temps [&hellip;]<\/p>","protected":false},"author":1,"featured_media":32463,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-31337","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualite"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>D\u00e9mystifier l&#039;\u00e9tude ATTUNE - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/en\/attune-study-2\/?lang=fr\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"D\u00e9mystifier l&#039;\u00e9tude ATTUNE - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"En mai 2024, Ionis a publi\u00e9 le protocole de l&rsquo;\u00e9tude ATTUNE sur clinicaltrials.gov. Dans le but de fournir une meilleure compr\u00e9hension \u00e0 tous, notre \u00e9quipe a lanc\u00e9 peu de temps [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/en\/attune-study-2\/?lang=fr\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:published_time\" content=\"2024-12-11T19:14:39+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-01-30T20:18:50+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/12\/The-E-Book.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1080\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Caroline\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Caroline\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/dupmecp2.eu\/etude-attune\/?lang=fr#article\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/etude-attune\/?lang=fr\"},\"author\":{\"name\":\"Caroline\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee\"},\"headline\":\"D\u00e9mystifier l&rsquo;\u00e9tude ATTUNE\",\"datePublished\":\"2024-12-11T19:14:39+00:00\",\"dateModified\":\"2025-01-30T20:18:50+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/etude-attune\/?lang=fr\"},\"wordCount\":212,\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/etude-attune\/?lang=fr#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/12\/The-E-Book.png\",\"articleSection\":[\"Actualit\u00e9\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/etude-attune\/?lang=fr\",\"url\":\"https:\/\/dupmecp2.eu\/etude-attune\/?lang=fr\",\"name\":\"D\u00e9mystifier l'\u00e9tude ATTUNE - 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