{"id":33453,"date":"2025-03-14T16:54:00","date_gmt":"2025-03-14T15:54:00","guid":{"rendered":"https:\/\/dupmecp2.eu\/?p=33453"},"modified":"2025-09-03T17:20:44","modified_gmt":"2025-09-03T15:20:44","slug":"rare-disease-run-2025","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/en\/rare-disease-run-2025\/","title":{"rendered":"Rare disease run 2025"},"content":{"rendered":"<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>We are delighted to share the great success of the Rare Disease Run 2025! For this fourth edition, thanks to our amazing participants, donors, and supporters, we raised a total of \u20ac41,600 for 33 organizations fighting rare diseases.<\/p>\n\n\n\n<p><strong>Of this amount, \u20ac750 was donated directly to our association. These funds will greatly contribute to our mission of supporting families affected by MECP2 gene duplication syndrome. These funds will go a long way in supporting our mission to help families affected by MECP2 Duplication Syndrome.<\/strong><\/p>\n\n\n\n<p>This year's event was a celebration of solidarity, as runners, walkers, and supporters came together for a common cause. A huge thank you to each and every one of you!<\/p>\n\n\n\n<p>We also want to extend our appreciation to the organizers of the Rare Disease Run, whose dedication, hard work, and commitment to making this event a success is invaluable. Their tireless efforts ensure that these types of events continue to raise awareness and funds for rare diseases, like MECP2 Duplication Syndrome, which so often go unnoticed.<\/p>\n\n\n\n<p>Looking ahead, we are already excited for next year and can't wait to join forces with all of you again in 2026. Together, we are stronger \u2014 and together, we will continue to make a meaningful difference in the lives of those affected by rare diseases.<\/p>\n\n\n\n<p>Let\u2019s keep moving forward \u2014 for rare diseases and for a better tomorrow.<\/p>\n\n\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>Nous sommes ravis de pouvoir partager l&rsquo;incroyable succ\u00e8s de la Rare Disease Run 2025 ! Pour cette 4\u00e8me \u00e9dition, gr\u00e2ce \u00e0 nos formidables participants, donateurs et supporters, nous avons atteint [&hellip;]<\/p>","protected":false},"author":1,"featured_media":33455,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[219],"tags":[],"class_list":["post-33453","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>La course pour les maladies rares 2025 - DupMECP2<\/title>\n<meta name=\"description\" content=\"Nous sommes ravis de pouvoir partager l&#039;incroyable succ\u00e8s de la Rare Disease Run 2025 ! 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Pour cette 4\u00e8me \u00e9dition, gr\u00e2ce \u00e0 nos formidables participants, donateurs et supporters, nous avons atteint le montant total de 41 600 \u20ac r\u00e9colt\u00e9s pour 33 organisations qui luttent contre les maladies rares.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/en\/rare-disease-run-2025\/\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:published_time\" content=\"2025-03-14T15:54:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-09-03T15:20:44+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/09\/RDR2025.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1080\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Caroline\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Caroline\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/dupmecp2.eu\/rare-disease-run-2025\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/rare-disease-run-2025\/\"},\"author\":{\"name\":\"Caroline\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee\"},\"headline\":\"La course pour les maladies rares 2025\",\"datePublished\":\"2025-03-14T15:54:00+00:00\",\"dateModified\":\"2025-09-03T15:20:44+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/rare-disease-run-2025\/\"},\"wordCount\":252,\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/rare-disease-run-2025\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/09\/RDR2025.jpg\",\"articleSection\":[\"\u00c9v\u00e9nements pass\u00e9s\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/rare-disease-run-2025\/\",\"url\":\"https:\/\/dupmecp2.eu\/rare-disease-run-2025\/\",\"name\":\"La course pour les maladies rares 2025 - DupMECP2\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/rare-disease-run-2025\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/rare-disease-run-2025\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/09\/RDR2025.jpg\",\"datePublished\":\"2025-03-14T15:54:00+00:00\",\"dateModified\":\"2025-09-03T15:20:44+00:00\",\"description\":\"Nous sommes ravis de pouvoir partager l'incroyable succ\u00e8s de la Rare Disease Run 2025 ! 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