{"id":33550,"date":"2025-09-27T07:07:05","date_gmt":"2025-09-27T05:07:05","guid":{"rendered":"https:\/\/dupmecp2.eu\/?p=33550"},"modified":"2025-10-01T10:17:38","modified_gmt":"2025-10-01T08:17:38","slug":"newsletter-september-2025","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/en\/newsletter-september-2025\/","title":{"rendered":"Newsletter September 2025"},"content":{"rendered":"<p>This is the sixth issue of our newsletter.<\/p>\n\n\n\n<p>In this issue, you will learn more about: <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Our heroes\n<ul class=\"wp-block-list\">\n<li>Holidays with a disabled child: why they count for more than you think<\/li>\n\n\n\n<li>Donations in memory of loved ones<\/li>\n<\/ul>\n<\/li>\n\n\n\n<li>Activities in the community\n<ul class=\"wp-block-list\">\n<li>REMEDS The international patient registry and medical survey platform for MECP2 Duplication Syndrome&nbsp;<\/li>\n\n\n\n<li>Survey results: MDS families ready for clinical trials<\/li>\n<\/ul>\n<\/li>\n\n\n\n<li>Research highlights\n<ul class=\"wp-block-list\">\n<li>ATTUNE study: 6 clinical sites currently open for recruitment<\/li>\n\n\n\n<li>Promising early results from the HERO Trial for MECP2 Duplication Syndrome<\/li>\n\n\n\n<li>A new step forward in the search for a cure: UMass Chan licenses siRNA technology &nbsp;<\/li>\n<\/ul>\n<\/li>\n\n\n\n<li>Save the Date <\/li>\n\n\n\n<li>Summary of past events<\/li>\n\n\n\n<li>Our sponsors<\/li>\n<\/ul>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>P.S. Don\u2019t hesitate to reach out to us with your feedback, stories, or suggestions. Your voice matters, and we are here to listen and support you every step of the way.  <\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background wp-element-button\" href=\"https:\/\/mailchi.mp\/dupmecp2\/newsletter-sept-2025-en\" style=\"border-radius:11px;background-color:#f7a13f\">To the Newsletter<\/a><\/div>\n<\/div>\n\n\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>This is the sixth issue of our newsletter. In this issue, you will find: P.S. Don't hesitate to contact us with your comments, stories or suggestions. Your voice counts and [...]<\/p>","protected":false},"author":1,"featured_media":29183,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[48],"tags":[222],"class_list":["post-33550","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-newsletters","tag-newsletter"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Newsletter Septembre 2025 - DupMECP2<\/title>\n<meta name=\"description\" content=\"Voici le cinqui\u00e8me num\u00e9ro de notre newsletter. Dans ce num\u00e9ro, vous pourrez lire des articles sur Aleix et ses parents, les temps forts de la recherche, nos activit\u00e9s et les prochains \u00e9v\u00e8nements. 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