{"id":16362,"date":"2023-07-05T21:02:12","date_gmt":"2023-07-05T21:02:12","guid":{"rendered":"https:\/\/dupmecp2.eu\/?p=16362"},"modified":"2023-08-09T08:57:12","modified_gmt":"2023-08-09T08:57:12","slug":"herzerwaermende-veranstaltung","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/es\/herzerwaermende-veranstaltung\/","title":{"rendered":"Un evento herc\u00faleo para la Asociaci\u00f3n"},"content":{"rendered":"

El 18 de junio tuvo lugar en Gramatneusiedl (Baja Austria) un evento muy concurrido en el que se destac\u00f3 el esp\u00edritu de solidaridad y solidaridad. En el marco de una visita guiada organizada por los comerciantes de Gramatneusiedl, nuestra asociaci\u00f3n \"Saludemos al MDS\" present\u00f3 el laboratorio.<\/p>\n\n\n\n

Susanne y Gerald, miembros del Consejo de Administraci\u00f3n de \"Lasst uns MDS heilen\", se han convertido en el punto de partida de este recorrido.<\/p>\n\n\n\n

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Getr\u00e4nke und Speisen gegen eine freiwillige Spende erh\u00e4ltlich. Cada uno de los actos estaba destinado a apoyar las iniciativas de la asociaci\u00f3n. El stand acogi\u00f3 a un centenar de visitantes, que demostraron su solidaridad y apoyo.<\/p>\n\n\n\n

Matteo, un ni\u00f1o tap\u00f3n de 5 a\u00f1os, y Philipp, de 26, que es un ni\u00f1o peque\u00f1o y sufre el s\u00edndrome MECP2-Genduplikation, fueron admitidos. Su inspiradora actitud puso de manifiesto las necesidades que afrontan las personas afectadas por este grave trastorno y confirm\u00f3 la importancia de la misi\u00f3n de la conferencia.<\/p>\n\n\n\n

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El \u00e9xito de este evento se debi\u00f3 en gran medida a la ayuda incondicional de amigos y colaboradores, que participaron activamente en la organizaci\u00f3n y el mantenimiento de los stands y contribuyeron a mejorar la imagen de la asociaci\u00f3n. El acontecimiento fue un \u00e9xito rotundo.<\/p>\n\n\n\n

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\u00a1Hervorzuheben gilt auch die Firma Stiegl, welche s\u00e4mtliche Getr\u00e4nke spendete! \u00a1Weiters wurden leckere Mehlspeisen inkl. Kaffee und pikante Aufstrich Brote angeboten!<\/p>\n\n\n\n

Gerald reflexiona sobre la conferencia: \"Estoy entusiasmado y agradecido\". Est\u00e1 encantado con los numerosos voluntarios que invirtieron su tiempo y energ\u00eda, agradecido por el ambiente agradable y distendido que rein\u00f3 durante la conferencia, impresionado por el gran n\u00famero de visitantes, die sich anschlossen, bewegt von der immense Bereitschaft, beizutragen und einen Unterschied zu machen, und erfreut \u00fcber die Neugier und das Interesse der Besucher, mehr \u00fcber die Erkrankung zu erfahren.<\/p>\n\n\n\n

Auch Susanne teilt ihre Gef\u00fchle: \"Was f\u00fcr ein toller Tag. Ich konnte und wollte meine Freudentr\u00e4nen nicht unterdr\u00fccken\".<\/p>\n\n\n\n

Expresa su m\u00e1s sincero agradecimiento a todos los que han hecho de la conferencia un gran \u00e9xito para su asociaci\u00f3n. Susanne afirma: \"Para m\u00ed, este d\u00eda ha sido uno de los m\u00e1s emotivos desde el comienzo de nuestro viaje\".<\/p>\n\n\n\n

Sie gesteht: \"Es gibt kaum etwas Schlimmeres als Hoffnungslosigkeit und sein Kind leiden zu sehen\".<\/p>\n\n\n\n

Su viaje transcurre con gran tristeza y tristeza por su hijo Philipp, que sabe que no est\u00e1 solo.<\/p>\n\n\n\n

Susanne concluye con las siguientes palabras: \"Much\u00edsimas gracias a todos los que han hecho de este un gran d\u00eda para nuestra asociaci\u00f3n. 1000 Dank\".<\/p>\n\n\n\n

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Gracias a la ayuda conjunta de organizadores, voluntarios, clientes y patrocinadores, se han podido recaudar un total de 1.500 euros para la asociaci\u00f3n, lo que pone de manifiesto el valor a\u00f1adido de la participaci\u00f3n y el compromiso con una causa com\u00fan.<\/p>\n\n\n\n

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Agradecemos a Leni, Barbara, Ingrid, Nina, Robert, Hubert, Gerlinde, Albert, Susanne, Andi-Bub, Emilian y Marie su amable ayuda.<\/p>\n\n\n\n

Unser Verein m\u00f6chte sich nochmals bei der Firma Stiegl f\u00fcr die gro\u00dfz\u00fcgige Getr\u00e4nkespende bedanken. Muchas gracias a Versicherungsb\u00fcro Klapa por organizar y permitirnos presentar nuestra asociaci\u00f3n y a Konditorei Hirnich por suministrar el kuchen.<\/p>\n\n\n\n

Vielen Dank auch an Liebesblick f\u00fcr das wundersch\u00f6ne Material (T-Shirts, Taschen, Aufkleber).<\/p>\n\n\n\n

Por \u00faltimo, pero no por ello menos importante, un cordial agradecimiento a la querida Silvie, patrocinadora de nuestra asociaci\u00f3n.<\/p>\n\n\n\n

La prensa tambi\u00e9n se mostr\u00f3 muy interesada. El acto se public\u00f3 en dos peri\u00f3dicos locales. <\/p>\n\n\n\n

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Zum N\u00d6N Artikel<\/a><\/div>\n\n\n\n
Zum Servus Nachbar Artikel<\/a><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"

Am 18. Juni fand in Gramatneusiedl (Nieder\u00f6sterreich) eine bemerkenswerte Veranstaltung statt, die den Geist der Gro\u00dfz\u00fcgigkeit und Gemeinschaftlichkeit zeigte. Im Rahmen einer organisierten Radtour, die von den Kaufleuten von Gramatneusiedl […]<\/p>","protected":false},"author":1,"featured_media":16371,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[57,96],"tags":[],"class_list":["post-16362","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aktualitat","category-spendenaktionen"],"yoast_head":"\nEine herzerw\u00e4rmende Veranstaltung f\u00fcr den Verein - DupMECP2<\/title>\n<meta name=\"description\" content=\"Eine Veranstaltung in Gramatneusiedl (\u00d6sterreich), die das Bewusstsein f\u00fcr den Verein 'Lasst uns MDS heilen' st\u00e4rkt. 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