{"id":17668,"date":"2023-07-05T21:02:12","date_gmt":"2023-07-05T19:02:12","guid":{"rendered":"https:\/\/dupmecp2.eu\/a-heartwarming-event-spreading-awareness-and-support-for-the-association-lasst-uns-mds-heilen\/"},"modified":"2025-02-21T08:39:18","modified_gmt":"2025-02-21T07:39:18","slug":"un-acto-conmovedor-de-sensibilizacion-y-apoyo-a-la-asociacion-lasst-uns-mds-heilen","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/es\/un-acto-conmovedor-de-sensibilizacion-y-apoyo-a-la-asociacion-lasst-uns-mds-heilen\/","title":{"rendered":"Un acto conmovedor de sensibilizaci\u00f3n y apoyo a la asociaci\u00f3n"},"content":{"rendered":"<p>El 18 de junio, Gramatneusiedl (Baja Austria) acogi\u00f3 un acontecimiento extraordinario que puso de manifiesto el esp\u00edritu de generosidad y comunidad. La ciudad de Gramatneusiedl organiz\u00f3 una excursi\u00f3n en bicicleta y nuestra asociaci\u00f3n \"Lasst uns MDS heilen\" pudo encargarse del puesto de refrescos.<\/p>\n\n\n\n<p>Susanne y Gerald, estimados miembros de la Junta Directiva, estaban en el coraz\u00f3n de este circuito.<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"16368\" src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-062023.jpg\" alt=\"\" class=\"wp-image-16368\" srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-062023.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-062023-300x225.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-062023-768x576.jpg 768w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n\n\n\n<p>Organizaron y gestionaron el puesto de avituallamiento, donde se pod\u00edan adquirir bebidas y alimentos a cambio de una donaci\u00f3n voluntaria. Todos y cada uno de los donativos realizados durante el evento se destinaron a apoyar las iniciativas de la asociaci\u00f3n. El puesto, lleno de actividad, recibi\u00f3 a m\u00e1s de un centenar de visitantes que mostraron su solidaridad y apoyo.<\/p>\n\n\n\n<p>Matteo, un valiente ni\u00f1o de 5 a\u00f1os, y Philipp, un resistente joven de 25 a\u00f1os, ambos afectados por el s\u00edndrome de duplicaci\u00f3n del gen MECP2, estuvieron presentes. Su inspiradora presencia arroj\u00f3 luz sobre los retos a los que se enfrentan las personas afectadas por esta rara enfermedad y amplific\u00f3 la importancia de la misi\u00f3n del evento.<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-2 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"16371\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Unterstuetzern.jpg\" alt=\"\" class=\"wp-image-16371 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Unterstuetzern.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Unterstuetzern-300x225.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Unterstuetzern-768x576.jpg 768w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/768;\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"768\" height=\"1024\" data-id=\"16365\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Matteo-Philipp-768x1024.jpg\" alt=\"\" class=\"wp-image-16365 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Matteo-Philipp-768x1024.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Matteo-Philipp-225x300.jpg 225w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Matteo-Philipp-1152x1536.jpg 1152w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Matteo-Philipp.jpg 1200w\" data-sizes=\"(max-width: 768px) 100vw, 768px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 768px; --smush-placeholder-aspect-ratio: 768\/1024;\" \/><\/figure>\n<\/figure>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large\"><img decoding=\"async\" width=\"640\" height=\"481\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-ueberblick.jpg\" alt=\"\" class=\"wp-image-16364 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-ueberblick.jpg 640w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-ueberblick-300x225.jpg 300w\" data-sizes=\"(max-width: 640px) 100vw, 640px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 640px; --smush-placeholder-aspect-ratio: 640\/481;\" \/><\/figure>\n\n\n\n<div style=\"height:25px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>El \u00e9xito de este acto se vio a\u00fan m\u00e1s magnificado por la inestimable ayuda de amigos y simpatizantes, que se ofrecieron voluntarios para organizar y gestionar el stand mientras luc\u00edan con orgullo los colores de la asociaci\u00f3n. El acto se convirti\u00f3 en un \u00e9xito inolvidable.<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-3 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image aligncenter size-large\"><img decoding=\"async\" width=\"1024\" height=\"768\" data-id=\"16366\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Nina.jpg\" alt=\"\" class=\"wp-image-16366 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Nina.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Nina-300x225.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-Nina-768x576.jpg 768w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/768;\" \/><\/figure>\n<\/figure>\n\n\n\n<p>Tambi\u00e9n nos gustar\u00eda destacar a la empresa Stiegl, \u00a1que don\u00f3 todas las bebidas! Adem\u00e1s, se ofrecieron deliciosos pasteles, incluido caf\u00e9, y deliciosas pastas para untar.<\/p>\n\n\n\n<p>Reflexionando sobre el acto, Gerald dice: \"Ich bin \u00fcberw\u00e4ltigt und unendlich dankbar\" (Estoy abrumado e infinitamente agradecido). Gerald est\u00e1 abrumado por los numerosos voluntarios que dedicaron su tiempo y energ\u00eda, agradecido por el ambiente vibrante y agradable que rein\u00f3 en todo momento, asombrado por el importante n\u00famero de visitantes que se sumaron, conmovido por la inmensa voluntad de contribuir y marcar la diferencia, y animado por la curiosidad y el inter\u00e9s de los visitantes por aprender m\u00e1s sobre la enfermedad.<\/p>\n\n\n\n<p>Susanne tambi\u00e9n comparti\u00f3 sus sentimientos, exclamando: \"Was f\u00fcr ein toller Tag. Ich konnte und wollte meine Freudentr\u00e4nen nicht unterdr\u00fccken\" (Qu\u00e9 gran d\u00eda. No pude ni quise contener mis l\u00e1grimas de alegr\u00eda).<\/p>\n\n\n\n<p>Expres\u00f3 su sincero agradecimiento a todos los que hicieron posible que el acto fuera un \u00e9xito rotundo para su asociaci\u00f3n. Recordando el evento, Susanne dice: \"F\u00fcr mich war dieser Tag einer der emotionalsten seit Beginn unserer Reise\" (Para m\u00ed, este d\u00eda fue uno de los m\u00e1s emotivos desde el comienzo de nuestro viaje). (Para m\u00ed, este d\u00eda fue uno de los m\u00e1s emotivos desde el comienzo de nuestro viaje).<\/p>\n\n\n\n<p>Confiesa: \"Es gibt kaum etwas Schlimmeres als Hoffnungslosigkeit und sein Kind leiden zu sehen\". (No hay nada peor que sentirse desesperado y ver sufrir a tu hijo).<\/p>\n\n\n\n<p>Su viaje contin\u00faa con renovada esperanza y determinaci\u00f3n por su hijo Philipp, sabiendo que no est\u00e1n solos.<\/p>\n\n\n\n<p>Susanne concluye: \"Danke vielmals an alle, die diesen Tag zu so einem guten Tag f\u00fcr unseren Verein machten. 1000 Danke\" (Muchas gracias a todos los que han hecho de este d\u00eda, un d\u00eda tan bueno para la asociaci\u00f3n).<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large\"><img decoding=\"async\" width=\"640\" height=\"481\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023.jpg\" alt=\"\" class=\"wp-image-16390 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023.jpg 640w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-2023-300x225.jpg 300w\" data-sizes=\"(max-width: 640px) 100vw, 640px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 640px; --smush-placeholder-aspect-ratio: 640\/481;\" \/><\/figure>\n\n\n\n<div style=\"height:25px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>Gracias a los esfuerzos colectivos de los organizadores, voluntarios, visitantes y patrocinadores solidarios, la asociaci\u00f3n recaud\u00f3 un total de 1.500 euros, lo que demuestra el incre\u00edble poder de la unidad y la compasi\u00f3n cuando se dirigen hacia una causa digna.<\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-4 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image aligncenter size-large\"><img decoding=\"async\" width=\"1024\" height=\"889\" data-id=\"16367\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-1024x889.jpg\" alt=\"\" class=\"wp-image-16367 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-1024x889.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-300x260.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-768x667.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle-1536x1333.jpg 1536w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/07\/Labstelle.jpg 1704w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/889;\" \/><\/figure>\n<\/figure>\n\n\n\n<p>Agradecemos a Leni, Barbara, Ingrid, Nina, Robert, Hubert, Gerlinde, Albert, Susanne, Andi-Bub, Emilian y Marie su inestimable ayuda.<\/p>\n\n\n\n<p>Nuestra asociaci\u00f3n desea agradecer de nuevo a la empresa Stiegl la generosa donaci\u00f3n de bebidas. Adem\u00e1s, nos gustar\u00eda dar las gracias a la oficina de seguros Klapa por la organizaci\u00f3n y la oportunidad de presentar nuestra asociaci\u00f3n y a la pasteler\u00eda Hirnich, por proporcionar los pasteles.<\/p>\n\n\n\n<p>Muchas gracias tambi\u00e9n a Liebesblick por el precioso material (camisetas, bolsas, pegatinas).<\/p>\n\n\n\n<p>Por \u00faltimo, pero no por ello menos importante, \u00a1\u00a1\u00a1muchas gracias a la querida Silvie, que patrocin\u00f3 las camisetas de nuestra asociaci\u00f3n!!!<\/p>\n\n\n\n<p>La prensa tambi\u00e9n estuvo presente. El acto apareci\u00f3 en dos peri\u00f3dicos locales. <\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-5 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><a href=\"https:\/\/www.noen.at\/schwechat\/gramatneusiedl-fruehschoppen-bei-der-feuerwehr-und-radeln-fuer-den-guten-zweck-372726016\"><img decoding=\"async\" data-id=\"17758\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag-DupMECP2-Article-NOeM.png\" alt=\"\" class=\"wp-image-17758 lazyload\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 755px; --smush-placeholder-aspect-ratio: 755\/789;\" \/><\/a><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><a href=\"https:\/\/www.instagram.com\/p\/Ctq8-JeIKO6\/?utm_source=ig_web_copy_link&amp;igshid=MzRlODBiNWFlZA==\"><img decoding=\"async\" width=\"1024\" height=\"1024\" data-id=\"17765\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar-1024x1024.jpg\" alt=\"\" class=\"wp-image-17765 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar-1024x1024.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar-300x300.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar-150x150.jpg 150w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar-768x769.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/08\/Radwandertag_Servus-Nachbar.jpg 1170w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/1024;\" \/><\/a><\/figure>\n<\/figure>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" href=\"https:\/\/www.noen.at\/schwechat\/gramatneusiedl-fruehschoppen-bei-der-feuerwehr-und-radeln-fuer-den-guten-zweck-372726016\" style=\"border-radius:15px;background-color:#f7a13f\" target=\"_blank\" rel=\"noreferrer noopener\">Al art\u00edculo N\u00d6N<\/a><\/div>\n\n\n\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" href=\"https:\/\/www.instagram.com\/p\/Ctq8-JeIKO6\/?utm_source=ig_web_copy_link&amp;igshid=MzRlODBiNWFlZA==\" style=\"border-radius:15px;background-color:#f7a13f\">Al art\u00edculo Servus Nachbar<\/a><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>On June 18th, Gramatneusiedl (Lower Austria) hosted a remarkable event that showcased the spirit of generosity and community. Within the bike tour was organized by the city of Gramatneusiedl, our [&hellip;]<\/p>","protected":false},"author":1,"featured_media":16375,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[216],"tags":[],"class_list":["post-17668","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-event"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>A heartwarming event spreading awareness and support for the association - DupMECP2<\/title>\n<meta name=\"description\" content=\"A heartwarming event in Austria spreading awareness and support for the association \u201cLasst uns MDS heilen\u201d Learn more about the inspiring missions, MECP2 duplication syndrome, and the supportive community behind this event.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/es\/un-acto-conmovedor-de-sensibilizacion-y-apoyo-a-la-asociacion-lasst-uns-mds-heilen\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A heartwarming event spreading awareness and support for the association - 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