{"id":17681,"date":"2023-07-05T21:02:12","date_gmt":"2023-07-05T19:02:12","guid":{"rendered":"https:\/\/dupmecp2.eu\/un-evenement-emouvant-pour-sensibiliser-et-soutenir-lassociation-dupmecp2-lasst-uns-mds-heilen\/"},"modified":"2025-09-03T17:18:23","modified_gmt":"2025-09-03T15:18:23","slug":"evento-sensibilizacion-apoyo-dupmecp2","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/es\/evento-sensibilizacion-apoyo-dupmecp2\/","title":{"rendered":"Un emotivo acto de sensibilizaci\u00f3n y apoyo a la organizaci\u00f3n ben\u00e9fica"},"content":{"rendered":"

El 18 de junio, Gramatneusiedl (Baja Austria) acogi\u00f3 un acontecimiento extraordinario que puso de relieve el esp\u00edritu de generosidad y comunidad. En el marco de la marcha ciclista organizada por la ciudad de Gramatneusiedl, se pidi\u00f3 a nuestra asociaci\u00f3n que atendiera el puesto de comida.<\/p>\n\n

Susanne y Gerald, estimados miembros del Consejo de Administraci\u00f3n, estuvieron en el centro de esta gira.<\/p>\n\n

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Organizaron y gestionaron el puesto de comida, donde se ofrec\u00eda comida y bebida a cambio de una donaci\u00f3n voluntaria. Cada donativo realizado durante el evento se destin\u00f3 a apoyar las iniciativas de la asociaci\u00f3n. El stand estuvo a pleno rendimiento, con m\u00e1s de un centenar de visitantes que mostraron su solidaridad y apoyo.<\/p>\n\n

Matteo, un valiente ni\u00f1o de 5 a\u00f1os, y Philipp, un resistente joven de 25 a\u00f1os, ambos con s\u00edndrome de duplicaci\u00f3n del gen MECP2, estuvieron presentes. Su inspiradora presencia puso de relieve los retos a los que se enfrentan las personas con esta enfermedad rara y amplific\u00f3 la importancia de la misi\u00f3n del evento.<\/p>\n\n

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El \u00e9xito de este acontecimiento se vio amplificado por la inestimable ayuda de amigos y simpatizantes, que se ofrecieron voluntarios para organizar y dirigir el stand mientras luc\u00edan con orgullo los colores de la asociaci\u00f3n. El evento result\u00f3 un \u00e9xito inolvidable.<\/p>\n\n

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Tambi\u00e9n queremos agradecer la contribuci\u00f3n de la empresa Stiegl, que proporcion\u00f3 todas las bebidas. Adem\u00e1s, se sirvieron deliciosos pasteles, caf\u00e9 incluido, y pastas para untar.<\/p>\n\n

Al recordar el acontecimiento, Gerald dice: \"Ich bin \u00fcberw\u00e4ltigt und unendlich dankbar\" (Estoy abrumado e infinitamente agradecido). Gerald est\u00e1 abrumado por los numerosos voluntarios que dedicaron su tiempo y energ\u00eda, agradecido por el ambiente vibrante y agradable que rein\u00f3 durante todo el acto, asombrado por el gran n\u00famero de visitantes que se unieron a \u00e9l, conmovido por el inmenso deseo de contribuir y marcar la diferencia, y animado por la curiosidad y el inter\u00e9s de los visitantes por saber m\u00e1s sobre la enfermedad.<\/p>\n\n

Susanne tambi\u00e9n expres\u00f3 sus sentimientos, exclamando: \"Was f\u00fcr ein toller Tag. Ich konnte und wollte meine Freudentr\u00e4nen nicht unterdr\u00fccken\" (Qu\u00e9 d\u00eda tan bonito. No pude ni quise contener mis l\u00e1grimas de alegr\u00eda).<\/p>\n\n

Expres\u00f3 su sincero agradecimiento a todos los que hab\u00edan hecho posible que el acto fuera un \u00e9xito rotundo para su asociaci\u00f3n. Reflexionando sobre el evento, Susanne dice: \"F\u00fcr mich war dieser Tag einer der emotionalsten seit Beginn unserer Reise. (Para m\u00ed fue uno de los d\u00edas m\u00e1s emotivos desde el comienzo de nuestro viaje).<\/p>\n\n

Dice: \"Es gibt kaum etwas Schlimmeres als Hoffnungslosigkeit und sein Kind leiden zu sehen\" (No hay nada peor que sentirse desesperado y ver sufrir a tu hijo).<\/p>\n\n

Su viaje contin\u00faa con renovada esperanza y determinaci\u00f3n por su hijo Philipp, sabiendo que no est\u00e1n solos.<\/p>\n\n

Susanne concluye: \"Muchas gracias a todos los que han hecho posible que hoy sea un gran d\u00eda para nuestra asociaci\u00f3n. 1000 gracias\".<\/p>\n\n

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Gracias al esfuerzo colectivo de organizadores, voluntarios, visitantes y patrocinadores, la asociaci\u00f3n recaud\u00f3 un total de 1.500 euros, lo que demuestra el incre\u00edble poder de la unidad y la compasi\u00f3n cuando se dirigen hacia una buena causa.<\/p>\n\n

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Queremos dar las gracias a Leni, Barbara, Ingrid, Nina, Robert, Hubert, Gerlinde, Albert, Susanne, Andi-Bub, Emilian y Marie por su inestimable ayuda.<\/p>\n\n

Nuestra asociaci\u00f3n desea agradecer una vez m\u00e1s a la empresa Stiegl su generosa donaci\u00f3n de bebidas. Tambi\u00e9n queremos dar las gracias a la oficina de seguros Klapa por organizar el acto y darnos la oportunidad de presentar nuestra asociaci\u00f3n, y a la pasteler\u00eda Hirnich por proporcionar los pasteles.<\/p>\n\n

Muchas gracias tambi\u00e9n a Liebesblick por el precioso material (camisetas, bolsas, pegatinas).<\/p>\n\n

Y por \u00faltimo, \u00a1muchas gracias a Silvie, que patrocin\u00f3 las camisetas de nuestra asociaci\u00f3n!<\/p>\n\n

La prensa tambi\u00e9n estuvo presente. El acto se public\u00f3 en dos peri\u00f3dicos locales. <\/p>\n\n

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Lea el art\u00edculo de N\u00d6N<\/a><\/div>\n\n\n\n
Lea el art\u00edculo de Servus Nachbar<\/a><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"

Le 18 juin, Gramatneusiedl (Basse-Autriche) a accueilli un \u00e9v\u00e9nement remarquable qui a mis en \u00e9vidence l’esprit de g\u00e9n\u00e9rosit\u00e9 et de communaut\u00e9. Dans le cadre de la balade \u00e0 v\u00e9lo organis\u00e9e […]<\/p>","protected":false},"author":1,"featured_media":16380,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[219],"tags":[],"class_list":["post-17681","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements"],"yoast_head":"\nUn \u00e9v\u00e9nement \u00e9mouvant pour sensibiliser et soutenir l'association - DupMECP2<\/title>\n<meta name=\"description\" content=\"Un \u00e9v\u00e9nement \u00e9mouvant en Autriche pour sensibiliser et soutenir l'association "Lasst uns MDS heilen". 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