{"id":25387,"date":"2023-12-18T11:41:57","date_gmt":"2023-12-18T11:41:57","guid":{"rendered":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/"},"modified":"2025-12-01T14:57:31","modified_gmt":"2025-12-01T13:57:31","slug":"nuestros-heroes-familia-prokop","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/es\/nuestros-heroes-familia-prokop\/","title":{"rendered":"Nuestros h\u00e9roes: la familia Prokop"},"content":{"rendered":"

Familia Prokop: Somos Jeannine, Michael, Emma (4) y Ben (1). Pronto nos trasladaremos a Alta Austria para ofrecer a Ben una mejor atenci\u00f3n m\u00e9dica y una plaza adecuada en el jard\u00edn de infancia. Tenemos la suerte de contar con toda nuestra familia y de participar activamente en la vida de la asociaci\u00f3n. <\/p>\n\n

\"\"<\/figure>\n\n

Me llamo Jeannine y soy embajadora de \"Lasst uns MDS heilen - DupMECP2\". Es importante mostrar que la asociaci\u00f3n existe y as\u00ed permitir que nuestros hijos tengan un futuro sin restricciones. Quiero apoyar a las familias y mostrarles que este viaje con el s\u00edndrome de duplicaci\u00f3n MECP2 no es un obst\u00e1culo. <\/p>\n\n

La vida es incre\u00edblemente colorida y maravillosa. Juntos podemos conseguir m\u00e1s de lo que logramos individualmente.<\/p>\n\n

Cuando Ben naci\u00f3 en junio de 2022, todo parec\u00eda normal, pero al cabo de unos meses qued\u00f3 claro que no se estaba desarrollando correctamente. Con cada infecci\u00f3n, perd\u00eda los hitos del desarrollo que hab\u00eda adquirido. Sufr\u00eda constantes neumon\u00edas y aspiraciones, y necesitaba ox\u00edgeno constante en el hospital, adem\u00e1s de antibi\u00f3ticos. Su mal estado de salud nos preocupaba enormemente y marc\u00f3 toda nuestra vida. Pasamos meses en el hospital.<\/p>\n\n

Los m\u00e9dicos de M\u00f6dling tambi\u00e9n estaban muy preocupados y ordenaron una prueba gen\u00e9tica. En abril de 2023 recibimos el diagn\u00f3stico, que fue un gran shock pero tambi\u00e9n una explicaci\u00f3n de lo que ten\u00eda Ben. Entonces lleg\u00f3 el momento de reorganizar nuestras vidas y digerir tanta informaci\u00f3n. <\/p>\n\n

El contacto con otras personas con la misma enfermedad, en particular David y Ana, me ayud\u00f3 a encontrar una forma de afrontar el diagn\u00f3stico. Muchas gracias a ellos por ello.<\/p>\n\n

Nuestro Ben es un ni\u00f1o brillante al que le gusta ser el centro de atenci\u00f3n. Le encanta jugar al escondite con su hermana mayor y leer libros. Se interesa mucho por su entorno, lo que supone una gran ventaja en la terapia. Se comunica muy claramente a trav\u00e9s de su lenguaje corporal y tiene un gran deseo de seguir desarroll\u00e1ndose.<\/p>\n\n

Es un peque\u00f1o rayo de sol y un luchador formidable. Estamos infinitamente agradecidos de tenerle y haremos todo lo humanamente posible para apoyarle.<\/p>","protected":false},"excerpt":{"rendered":"

Famille Prokop : Nous sommes Jeannine, Michael, Emma (4 ans) et Ben (1 an). Nous allons bient\u00f4t vivre en Haute-Autriche pour offrir \u00e0 Ben de meilleurs soins m\u00e9dicaux et lui […]<\/p>","protected":false},"author":1,"featured_media":22737,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[174],"tags":[],"class_list":["post-25387","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-temoignage"],"yoast_head":"\nNos H\u00e9ros: Famille Prokop - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/es\/nuestros-heroes-familia-prokop\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nos H\u00e9ros: Famille Prokop - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"Famille Prokop : Nous sommes Jeannine, Michael, Emma (4 ans) et Ben (1 an). Nous allons bient\u00f4t vivre en Haute-Autriche pour offrir \u00e0 Ben de meilleurs soins m\u00e9dicaux et lui […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/es\/nuestros-heroes-familia-prokop\/\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:published_time\" content=\"2023-12-18T11:41:57+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-12-01T13:57:31+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/01\/Jeannine.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"768\" \/>\n\t<meta property=\"og:image:height\" content=\"1024\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Caroline\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Caroline\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/\"},\"author\":{\"name\":\"Caroline\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee\"},\"headline\":\"Nos H\u00e9ros: Famille Prokop\",\"datePublished\":\"2023-12-18T11:41:57+00:00\",\"dateModified\":\"2025-12-01T13:57:31+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/\"},\"wordCount\":391,\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/01\/Jeannine.jpg\",\"articleSection\":[\"T\u00e9moignage\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/\",\"url\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/\",\"name\":\"Nos H\u00e9ros: Famille Prokop - DupMECP2\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/01\/Jeannine.jpg\",\"datePublished\":\"2023-12-18T11:41:57+00:00\",\"dateModified\":\"2025-12-01T13:57:31+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#primaryimage\",\"url\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/01\/Jeannine.jpg\",\"contentUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/01\/Jeannine.jpg\",\"width\":768,\"height\":1024},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Accueil\",\"item\":\"https:\/\/dupmecp2.eu\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"T\u00e9moignage\",\"item\":\"https:\/\/dupmecp2.eu\/category\/temoignage\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Nos H\u00e9ros: Famille Prokop\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/dupmecp2.eu\/#website\",\"url\":\"https:\/\/dupmecp2.eu\/\",\"name\":\"DupMECP2\",\"description\":\"EU\",\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/dupmecp2.eu\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/dupmecp2.eu\/#organization\",\"name\":\"DupMECP2\",\"url\":\"https:\/\/dupmecp2.eu\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/\",\"url\":\"\",\"contentUrl\":\"\",\"caption\":\"DupMECP2\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/\"}},{\"@type\":\"Person\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee\",\"name\":\"Caroline\",\"sameAs\":[\"https:\/\/dupmecp2.eu\"],\"url\":\"https:\/\/dupmecp2.eu\/es\/author\/417a2385dc37aa45\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Nuestros h\u00e9roes: familia Prokop - DupMECP2","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/dupmecp2.eu\/es\/nuestros-heroes-familia-prokop\/","og_locale":"es_ES","og_type":"article","og_title":"Nos H\u00e9ros: Famille Prokop - DupMECP2","og_description":"Famille Prokop : Nous sommes Jeannine, Michael, Emma (4 ans) et Ben (1 an). Nous allons bient\u00f4t vivre en Haute-Autriche pour offrir \u00e0 Ben de meilleurs soins m\u00e9dicaux et lui […]","og_url":"https:\/\/dupmecp2.eu\/es\/nuestros-heroes-familia-prokop\/","og_site_name":"DupMECP2","article_published_time":"2023-12-18T11:41:57+00:00","article_modified_time":"2025-12-01T13:57:31+00:00","og_image":[{"width":768,"height":1024,"url":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/01\/Jeannine.jpg","type":"image\/jpeg"}],"author":"Caroline","twitter_card":"summary_large_image","twitter_misc":{"Escrito por":"Caroline","Tiempo de lectura":"2 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#article","isPartOf":{"@id":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/"},"author":{"name":"Caroline","@id":"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee"},"headline":"Nos H\u00e9ros: Famille Prokop","datePublished":"2023-12-18T11:41:57+00:00","dateModified":"2025-12-01T13:57:31+00:00","mainEntityOfPage":{"@id":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/"},"wordCount":391,"publisher":{"@id":"https:\/\/dupmecp2.eu\/#organization"},"image":{"@id":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#primaryimage"},"thumbnailUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/01\/Jeannine.jpg","articleSection":["T\u00e9moignage"],"inLanguage":"es"},{"@type":"WebPage","@id":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/","url":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/","name":"Nuestros h\u00e9roes: familia Prokop - DupMECP2","isPartOf":{"@id":"https:\/\/dupmecp2.eu\/#website"},"primaryImageOfPage":{"@id":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#primaryimage"},"image":{"@id":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#primaryimage"},"thumbnailUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/01\/Jeannine.jpg","datePublished":"2023-12-18T11:41:57+00:00","dateModified":"2025-12-01T13:57:31+00:00","breadcrumb":{"@id":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/"]}]},{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#primaryimage","url":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/01\/Jeannine.jpg","contentUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/01\/Jeannine.jpg","width":768,"height":1024},{"@type":"BreadcrumbList","@id":"https:\/\/dupmecp2.eu\/nos-heros-famille-prokop\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Accueil","item":"https:\/\/dupmecp2.eu\/"},{"@type":"ListItem","position":2,"name":"T\u00e9moignage","item":"https:\/\/dupmecp2.eu\/category\/temoignage\/"},{"@type":"ListItem","position":3,"name":"Nos H\u00e9ros: Famille Prokop"}]},{"@type":"WebSite","@id":"https:\/\/dupmecp2.eu\/#website","url":"https:\/\/dupmecp2.eu\/","name":"DupMECP2","description":"UE","publisher":{"@id":"https:\/\/dupmecp2.eu\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/dupmecp2.eu\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Organization","@id":"https:\/\/dupmecp2.eu\/#organization","name":"DupMECP2","url":"https:\/\/dupmecp2.eu\/","logo":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/","url":"","contentUrl":"","caption":"DupMECP2"},"image":{"@id":"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/"}},{"@type":"Person","@id":"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee","name":"Caroline","sameAs":["https:\/\/dupmecp2.eu"],"url":"https:\/\/dupmecp2.eu\/es\/author\/417a2385dc37aa45\/"}]}},"_links":{"self":[{"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/posts\/25387","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/comments?post=25387"}],"version-history":[{"count":1,"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/posts\/25387\/revisions"}],"predecessor-version":[{"id":33565,"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/posts\/25387\/revisions\/33565"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/media\/22737"}],"wp:attachment":[{"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/media?parent=25387"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/categories?post=25387"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dupmecp2.eu\/es\/wp-json\/wp\/v2\/tags?post=25387"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}