{"id":26034,"date":"2024-05-06T19:33:30","date_gmt":"2024-05-06T19:33:30","guid":{"rendered":"https:\/\/dupmecp2.eu\/apercu-de-la-vie-avec-le-syndrome-de-duplication-du-gene-mecp2\/"},"modified":"2024-05-07T18:47:56","modified_gmt":"2024-05-07T18:47:56","slug":"una-vision-general-de-la-vida-con-el-sindrome-de-duplicacion-del-gen-mecp2","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/es\/una-vision-general-de-la-vida-con-el-sindrome-de-duplicacion-del-gen-mecp2\/","title":{"rendered":"Visi\u00f3n general de la vida con el s\u00edndrome de duplicaci\u00f3n del gen MECP2"},"content":{"rendered":"<p>\"Die ganze Woche\" visit\u00f3 a la familia Curic. La madre de Jan comparti\u00f3 con valent\u00eda su historia de vida con el s\u00edndrome de duplicaci\u00f3n del gen MECP2. <\/p>\n\n<div data-wp-interactive=\"core\/file\" class=\"wp-block-file\"><object data-wp-bind--hidden=\"!state.hasPdfPreview\" hidden class=\"wp-block-file__embed\" data=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/05\/Die-Ganze-Woche_30042024_Jan.pdf\" type=\"application\/pdf\" style=\"width:100%;height:600px\" aria-label=\"Incrustado de Die Ganze Woche_30042024_Jan.\"><\/object><a id=\"wp-block-file--media-210a8d03-bd84-480e-96bb-87d8c97c3acb\" href=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/05\/Die-Ganze-Woche_30042024_Jan.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Die Ganze Woche_30042024_Jan<\/a><a href=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/05\/Die-Ganze-Woche_30042024_Jan.pdf\" class=\"wp-block-file__button wp-element-button\" download=\"\" aria-describedby=\"wp-block-file--media-210a8d03-bd84-480e-96bb-87d8c97c3acb\">Descargar<\/a><\/div>\n\n<p>Es importante contar historias como esta para concienciar sobre el s\u00edndrome. Tambi\u00e9n es importante mostrar lo crucial que es aunar esfuerzos para dar a ni\u00f1os como Jan un futuro mejor. <\/p>\n\n<p>\u00bfDesea colaborar? H\u00e1gase socio y ay\u00fadenos a avanzar en la investigaci\u00f3n y a poner en marcha ensayos cl\u00ednicos para el s\u00edndrome. <\/p>\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background wp-element-button\" href=\"https:\/\/dupmecp2.eu\/es\/mitglied-werden\/?lang=de\" style=\"border-radius:15px;background-color:#f7a13f\">Afiliarse como miembro<\/a><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>\u00ab Die ganze Woche \u00bb a rendu visite \u00e0 la famille Curic. La maman de Jan a courageusement partag\u00e9 son histoire avec le syndrome de duplication du g\u00e8ne MECP2. Il [&hellip;]<\/p>","protected":false},"author":1,"featured_media":26028,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[45,174],"tags":[],"class_list":["post-26034","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medias","category-temoignage"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Aper\u00e7u de la vie avec le syndrome de duplication du g\u00e8ne MECP2 - DupMECP2<\/title>\n<meta name=\"description\" content=\"\u00ab Die ganze Woche \u00bb a rendu visite \u00e0 la famille Curic. 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