{"id":32980,"date":"2024-12-03T13:42:10","date_gmt":"2024-12-03T12:42:10","guid":{"rendered":"https:\/\/dupmecp2.eu\/resume-de-la-conference-sur-la-famille-2024-a-houston\/"},"modified":"2025-02-21T19:14:13","modified_gmt":"2025-02-21T18:14:13","slug":"resumen-de-la-conferencia-de-familias-2024","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/es\/resumen-de-la-conferencia-de-familias-2024\/","title":{"rendered":"Resumen de la Conferencia de la Familia 2024"},"content":{"rendered":"<p class=\"wp-block-paragraph\"><strong>DupMECP2 particip\u00f3 en la Conferencia Familiar los d\u00edas 25 y 26 de octubre de 2024 en el Duncan Neurological Research Institute de Houston, Texas.<\/strong><\/p>\n\n<p class=\"wp-block-paragraph\">David Covini asisti\u00f3 a la conferencia y habl\u00f3 con expertos y familiares sobre los avances en la atenci\u00f3n al paciente y el descubrimiento de f\u00e1rmacos. ( M\u00e1s informaci\u00f3n sobre nuestra participaci\u00f3n en la conferencia de Houston).<br\/>La conferencia fue a la vez informativa y profundamente conmovedora. David tuvo la oportunidad de conocer a investigadores tan entregados como Davut Pehlivan y Huda Zoghbi, cuya pasi\u00f3n y compromiso son realmente inspiradores. Tambi\u00e9n fue una oportunidad para forjar v\u00ednculos con nuevas familias y fortalecer nuestra comunidad.   <\/p>\n\n<p class=\"wp-block-paragraph\"><br\/><strong>\"Tuve la suerte, por segunda vez, de conocer a unos investigadores apasionados y brillantes, con un gran coraz\u00f3n, lo que no siempre va de la mano\".<\/strong>dice David, recordando dos d\u00edas intensos.<\/p>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1920\" height=\"1080\" src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited.jpg\" alt=\"\" class=\"wp-image-32907\" srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited.jpg 1920w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-300x169.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-1024x576.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-768x432.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-1536x864.jpg 1536w\" sizes=\"(max-width: 1920px) 100vw, 1920px\" \/><\/figure>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p class=\"wp-block-paragraph\">Como orgulloso patrocinador de oro de la conferencia, apreciamos que el evento se centrara en el progreso cient\u00edfico y el apoyo a las familias. Nuestras conversaciones, en particular con el equipo de Ionis y el Dr. Zhenya Ivakine (proyecto CRISPR Cas9 en Toronto), fueron muy productivas y ayudar\u00e1n a avanzar en proyectos de investigaci\u00f3n clave. Esperamos con inter\u00e9s las futuras colaboraciones que han surgido de estas conversaciones.<br\/>El NRI publicar\u00e1 en breve las presentaciones grabadas y las diapositivas.   <\/p>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1920\" height=\"1080\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited.jpg\" alt=\"\" class=\"wp-image-32937 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited.jpg 1920w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-300x169.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-1024x576.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-768x432.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-1536x864.jpg 1536w\" data-sizes=\"(max-width: 1920px) 100vw, 1920px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1920px; --smush-placeholder-aspect-ratio: 1920\/1080;\" \/><\/figure>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>","protected":false},"excerpt":{"rendered":"<p>DupMECP2 a particip\u00e9 \u00e0 la Conf\u00e9rence des familles les 25 et 26 octobre 2024, au Duncan Neurological Research Institute \u00e0 Houston, Texas. David Covini a particip\u00e9 \u00e0 la conf\u00e9rence et [&hellip;]<\/p>","protected":false},"author":1,"featured_media":32903,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[219],"tags":[],"class_list":["post-32980","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>R\u00e9sum\u00e9 de la conf\u00e9rence des familles 2024 - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/es\/resumen-de-la-conferencia-de-familias-2024\/?lang=fr\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"R\u00e9sum\u00e9 de la conf\u00e9rence des familles 2024 - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"DupMECP2 a particip\u00e9 \u00e0 la Conf\u00e9rence des familles les 25 et 26 octobre 2024, au Duncan Neurological Research Institute \u00e0 Houston, Texas. 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