{"id":32980,"date":"2024-12-03T13:42:10","date_gmt":"2024-12-03T12:42:10","guid":{"rendered":"https:\/\/dupmecp2.eu\/resume-de-la-conference-sur-la-famille-2024-a-houston\/"},"modified":"2025-02-21T19:14:13","modified_gmt":"2025-02-21T18:14:13","slug":"resume-conference-familles-2024","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/es\/resume-conference-familles-2024\/","title":{"rendered":"Resumen de la Conferencia de la Familia 2024"},"content":{"rendered":"<p><strong>DupMECP2 a particip\u00e9 \u00e0 la Conf\u00e9rence des familles les 25 et 26 octobre 2024, au Duncan Neurological Research Institute \u00e0 Houston, Texas.<\/strong><\/p>\n\n<p>David Covini a particip\u00e9 \u00e0 la conf\u00e9rence et s&rsquo;est entretenu avec des experts et des familles sur les progr\u00e8s r\u00e9alis\u00e9s en mati\u00e8re de soins aux patients et de recherche d&rsquo;un m\u00e9dicament. ( Vous trouverez plus d&rsquo;informations sur notre participation \u00e0 la conf\u00e9rence de Houston).<br\/>La conf\u00e9rence a \u00e9t\u00e9 \u00e0 la fois instructive et profond\u00e9ment \u00e9mouvante. David a eu l&rsquo;occasion de rencontrer des chercheurs d\u00e9vou\u00e9s comme Davut Pehlivan et Huda Zoghbi, dont la passion et l&rsquo;engagement sont une v\u00e9ritable source d&rsquo;inspiration. Ce fut \u00e9galement l&rsquo;occasion de nouer des liens avec de nouvelles familles et de renforcer notre communaut\u00e9.   <\/p>\n\n<p><br\/><strong>\u201cJ&rsquo;ai eu la chance, pour la deuxi\u00e8me fois, de rencontrer des chercheurs passionn\u00e9s et g\u00e9niaux avec un grand c\u0153ur, ce qui ne va pas toujours de pair\u201d<\/strong>, dit David, en repensant \u00e0 ces deux journ\u00e9es intensives.<\/p>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1920\" height=\"1080\" src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited.jpg\" alt=\"\" class=\"wp-image-32907\" srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited.jpg 1920w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-300x169.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-1024x576.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-768x432.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-1536x864.jpg 1536w\" sizes=\"(max-width: 1920px) 100vw, 1920px\" \/><\/figure>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p>En tant que fier sponsor or de la conf\u00e9rence, nous appr\u00e9cions l&rsquo;accent mis par cet \u00e9v\u00e9nement sur le progr\u00e8s scientifique et le soutien aux familles. Nos discussions, en particulier avec l&rsquo;\u00e9quipe de Ionis et le Dr Zhenya Ivakine (projet CRISPR Cas9 \u00e0 Toronto), ont \u00e9t\u00e9 tr\u00e8s productives et contribueront \u00e0 faire avancer des projets de recherche cl\u00e9s. Nous nous r\u00e9jouissons des collaborations futures qui ont \u00e9merg\u00e9 de ces conversations.<br\/>Le NRI mettra bient\u00f4t \u00e0 disposition les pr\u00e9sentations enregistr\u00e9es et les diapositives.   <\/p>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1920\" height=\"1080\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited.jpg\" alt=\"\" class=\"wp-image-32937 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited.jpg 1920w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-300x169.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-1024x576.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-768x432.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-1536x864.jpg 1536w\" data-sizes=\"(max-width: 1920px) 100vw, 1920px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1920px; --smush-placeholder-aspect-ratio: 1920\/1080;\" \/><\/figure>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>","protected":false},"excerpt":{"rendered":"<p>DupMECP2 a particip\u00e9 \u00e0 la Conf\u00e9rence des familles les 25 et 26 octobre 2024, au Duncan Neurological Research Institute \u00e0 Houston, Texas. David Covini a particip\u00e9 \u00e0 la conf\u00e9rence et [&hellip;]<\/p>","protected":false},"author":1,"featured_media":32903,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[219],"tags":[],"class_list":["post-32980","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>R\u00e9sum\u00e9 de la conf\u00e9rence des familles 2024 - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/es\/resume-conference-familles-2024\/?lang=fr\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"R\u00e9sum\u00e9 de la conf\u00e9rence des familles 2024 - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"DupMECP2 a particip\u00e9 \u00e0 la Conf\u00e9rence des familles les 25 et 26 octobre 2024, au Duncan Neurological Research Institute \u00e0 Houston, Texas. 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