{"id":32996,"date":"2024-08-21T08:23:00","date_gmt":"2024-08-21T06:23:00","guid":{"rendered":"https:\/\/dupmecp2.eu\/un-week-end-emouvant-pour-une-bonne-cause-a-la-fete-dober-st-veit\/"},"modified":"2025-02-21T08:38:23","modified_gmt":"2025-02-21T07:38:23","slug":"un-week-end-emouvant-pour-une-bonne-cause-a-la-fete-dober-st-veit","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/es\/un-week-end-emouvant-pour-une-bonne-cause-a-la-fete-dober-st-veit\/","title":{"rendered":"\u00a1Un fin de semana emocionante por una buena causa en el festival Ober St. Veit!"},"content":{"rendered":"<p><strong>La Ober St. Veiter Gr\u00e4tzlfest est un \u00e9v\u00e9nement familial \u00e9mouvant qui s&rsquo;est tenu les 24 et 25 mai 2024 dans le quartier d&rsquo;Ober St. Veit, \u00e0 Vienne (Autriche). Organis\u00e9e par l&rsquo;association des commer\u00e7ants locaux, la <em>Kaufleute Ober St. Veit<\/em>, elle a rassembl\u00e9 les habitants pour deux jours inoubliables de plaisir, de connexion et de g\u00e9n\u00e9rosit\u00e9. <\/strong><\/p>\n\n<p>Le festival proposait un programme fantastique con\u00e7u pour les familles, avec notamment un magicien qui a \u00e9merveill\u00e9 les spectateurs de tous \u00e2ges, des jeux et une tombola anim\u00e9e. Cette ann\u00e9e, la tombola \u00e9tait encore plus sp\u00e9ciale. Tous les b\u00e9n\u00e9fices, soit un total impressionnant de <strong>2800 euros<\/strong>, ont \u00e9t\u00e9 revers\u00e9s \u00e0 <em>notre association<\/em>.<br\/><br\/>  <\/p>\n\n<div style=\"height:33px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1920\" height=\"1080\" src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Gratzelfest-edited.jpg\" alt=\"\" class=\"wp-image-32988\" srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Gratzelfest-edited.jpg 1920w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Gratzelfest-edited-300x169.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Gratzelfest-edited-1024x576.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Gratzelfest-edited-768x432.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Gratzelfest-edited-1536x864.jpg 1536w\" sizes=\"(max-width: 1920px) 100vw, 1920px\" \/><\/figure>\n\n<div style=\"height:33px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p>Nous \u00e9tions fiers de participer \u00e0 cet \u00e9v\u00e9nement. Il nous a donn\u00e9 une merveilleuse occasion d&rsquo;expliquer le syndrome de duplication du g\u00e8ne MECP2 et de souligner les d\u00e9fis auxquels les familles touch\u00e9es par ce syndrome sont confront\u00e9es chaque jour. <br\/><br\/>Les visiteurs ont pu rencontrer et discuter avec nos copr\u00e9sidents et fondateurs, Caroline et David Covini, et leur fils Matteo \u00e0 notre stand. C&rsquo;\u00e9tait une exp\u00e9rience \u00e9mouvante de voir tant de gens s&rsquo;int\u00e9resser \u00e0 notre cause, et soutenir notre mission vers la recherche d&rsquo;un traitement.   <\/p>\n\n<p>Nous sommes profond\u00e9ment reconnaissants envers les <em>\u00ab Kaufleute Ober St. Veit \u00bb<\/em> d&rsquo;avoir organis\u00e9 un si bel \u00e9v\u00e9nement et d&rsquo;avoir fait un don g\u00e9n\u00e9reux. Gr\u00e2ce \u00e0 leurs efforts et \u00e0 l&rsquo;enthousiasme de la communaut\u00e9 locale, la Gr\u00e4tzlfest n&rsquo;a pas seulement \u00e9t\u00e9 un joyeux rassemblement familial, mais aussi une \u00e9tape importante dans la sensibilisation et le soutien \u00e0 la recherche sur le syndrome. <\/p>\n\n<p><strong>Merci \u00e0 tous ceux qui se sont arr\u00eat\u00e9s, qui ont tent\u00e9 leur chance \u00e0 la tombola et qui ont contribu\u00e9 \u00e0 faire la diff\u00e9rence pour le syndrome de duplication du g\u00e8ne MECP2 !<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>La Ober St. Veiter Gr\u00e4tzlfest est un \u00e9v\u00e9nement familial \u00e9mouvant qui s&rsquo;est tenu les 24 et 25 mai 2024 dans le quartier d&rsquo;Ober St. Veit, \u00e0 Vienne (Autriche). Organis\u00e9e par [&hellip;]<\/p>","protected":false},"author":1,"featured_media":26591,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[219],"tags":[],"class_list":["post-32996","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Un week-end \u00e9mouvant pour une bonne cause \u00e0 la f\u00eate d&#039;Ober St. Veit! - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/es\/un-week-end-emouvant-pour-une-bonne-cause-a-la-fete-dober-st-veit\/?lang=fr\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Un week-end \u00e9mouvant pour une bonne cause \u00e0 la f\u00eate d&#039;Ober St. Veit! - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"La Ober St. Veiter Gr\u00e4tzlfest est un \u00e9v\u00e9nement familial \u00e9mouvant qui s&rsquo;est tenu les 24 et 25 mai 2024 dans le quartier d&rsquo;Ober St. Veit, \u00e0 Vienne (Autriche). 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