{"id":33433,"date":"2025-07-27T14:25:18","date_gmt":"2025-07-27T12:25:18","guid":{"rendered":"https:\/\/dupmecp2.eu\/?p=33433"},"modified":"2025-09-04T10:46:54","modified_gmt":"2025-09-04T08:46:54","slug":"lignano-2025","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/es\/lignano-2025\/","title":{"rendered":"Semana intensiva en Lignano - Un momento \u00fanico para nuestra familia"},"content":{"rendered":"
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Este a\u00f1o, nuestra familia tuvo la oportunidad de participar por primera vez en la Semana Intensiva de Lignano. Fue el Dr. Baumgartner quien nos la recomend\u00f3, y fue realmente una oportunidad inesperada.<\/p>\n\n\n\n

Al principio, no sab\u00edamos qu\u00e9 esperar. Pero esta semana ha superado con creces nuestras expectativas. No s\u00f3lo hemos encontrado nuevas fuerzas, sino que tambi\u00e9n hemos aprendido mucho sobre nosotros mismos, como familia y como pareja. Nos enriqueci\u00f3 especialmente el intercambio con otras familias que experimentan retos similares, en un esp\u00edritu de apertura, sinceridad y apoyo mutuo.<\/p>\n\n\n\n

Asistieron un total de diez familias de Austria, entre ellas dos familias con hijos afectados por el s\u00edndrome de duplicaci\u00f3n del gen MECP2: nosotros y la familia Covini, que tambi\u00e9n son fundadores de nuestra asociaci\u00f3n. Fue maravilloso vivir juntos este entorno \u00fanico y crear lazos m\u00e1s profundos a nivel personal.<\/p>\n\n\n\n

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El programa semanal era claro y estructurado, sin dejar de ser agradablemente distendido: todas las ma\u00f1anas se ofrec\u00edan a los padres charlas enriquecedoras sobre temas que nos conciernen a todos, pero que, en el d\u00eda a d\u00eda, suelen quedar relegados a un segundo plano. Estas charlas invitaban a la reflexi\u00f3n, abr\u00edan el camino a debates en grupo y fomentaban valiosos intercambios entre los c\u00f3nyuges.<\/p>\n\n\n\n

Mientras tanto, los ni\u00f1os afectados y sus hermanos sanos eran atendidos con esmero. Para ellos, lo m\u00e1s destacado era la discoteca infantil que se celebraba todas las noches, pura diversi\u00f3n para todos.<\/p>\n\n\n\n

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Poder dejar vagar la mente durante toda una semana no es algo que las familias con necesidades especiales puedan dar por sentado. Por eso estamos tan agradecidos de haber podido vivir este tiempo intenso y reparador en Italia.<\/p>\n\n\n\n

Ya estamos deseando que llegue el a\u00f1o que viene, y recomendamos de todo coraz\u00f3n esta experiencia a todas las familias con ni\u00f1os discapacitados.<\/p>\n\n\n\n

Familia Curic<\/strong>
Ana, Boris, Theo y Jan<\/p>\n\n\n\n

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M\u00e1s informaci\u00f3n sobre la semana intensiva<\/a><\/div>\n<\/div>\n\n\n\n
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<\/p>","protected":false},"excerpt":{"rendered":"

Cette ann\u00e9e, notre famille a eu l\u2019occasion de participer pour la toute premi\u00e8re fois \u00e0 la Semaine Intensive de Lignano. C\u2019est la Dre Baumgartner qui nous l\u2019a recommand\u00e9e, et ce […]<\/p>","protected":false},"author":1,"featured_media":33441,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[174],"tags":[],"class_list":["post-33433","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-temoignage"],"yoast_head":"\nSemaine Intensive \u00e0 Lignano \u2013 Un moment unique pour notre famille - DupMECP2<\/title>\n<meta name=\"description\" content=\"Cette ann\u00e9e, notre famille a eu l\u2019occasion de participer pour la toute premi\u00e8re fois \u00e0 la Semaine Intensive de Lignano...Nous recommandons de tout c\u0153ur cette exp\u00e9rience \u00e0 toutes les familles avec enfants en situation de handicap.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/es\/lignano-2025\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Semaine Intensive \u00e0 Lignano \u2013 Un moment unique pour notre famille - 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