{"id":33013,"date":"2025-05-13T17:21:57","date_gmt":"2025-05-13T15:21:57","guid":{"rendered":"https:\/\/dupmecp2.eu\/?post_type=tribe_events&#038;p=33013"},"modified":"2025-08-13T11:02:41","modified_gmt":"2025-08-13T09:02:41","slug":"encuentro-familiar-manchester-2025","status":"publish","type":"tribe_events","link":"https:\/\/dupmecp2.eu\/es\/evento\/encuentro-familiar-manchester-2025\/","title":{"rendered":"2025 Reuni\u00f3n familiar en Manchester"},"content":{"rendered":"<p>Un a\u00f1o m\u00e1s, MECP2 duplication UK acoger\u00e1 el D\u00eda de la Familia MDS en Manchester el s\u00e1bado 8 de noviembre de 2025. La reuni\u00f3n se celebrar\u00e1 en el DoubleTree Hilton Hotel directamente en el aeropuerto de Manchester.<\/p>\n<p>El Dr. Davut Pehlivan del Texas Children's Hospital y el equipo de Ionis se unir\u00e1n a la reuni\u00f3n para ofrecer una actualizaci\u00f3n sobre el progreso de la investigaci\u00f3n de un tratamiento.<\/p>\n<p>El programa detallado se anunciar\u00e1 lo antes posible. No obstante, tenga en cuenta que el programa comenzar\u00e1 a las 8.30 horas.<\/p>\n<p>Tambi\u00e9n estar\u00e1n presentes miembros de nuestra asociaci\u00f3n, que estar\u00e1n encantados de ayudar con la traducci\u00f3n al franc\u00e9s o al alem\u00e1n.<\/p>\n<p>La inscripci\u00f3n es gratuita y debe hacerse aqu\u00ed: https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSd-dLHjDTq7vidZazCnLTeQKbwF5NXLoCdVW9_OYHQyrc24SA\/viewform?usp=send_form<\/p>\n<p>Si desea pasar la noche o el fin de semana en el hotel, se ha establecido una tarifa especial para los participantes en el D\u00eda de la Familia MECP2. Aqu\u00ed est\u00e1 el enlace para hacer una reserva: <a href=\"https:\/\/eventsathilton.com\/show\/67b34731099ae0a5588adec1\">Hilton Evento Correo electr\u00f3nico<\/a><\/p>\n<p>En colaboraci\u00f3n con la asociaci\u00f3n MECP2 Duplication Syndrome Deutschland e.V., ofrecemos un reembolso de los gastos de viaje a las familias que participen en el MDS Family Day 2025.<br \/>\nLas familias pueden solicitar una ayuda de hasta 400 euros por familia para cubrir parte de sus gastos de viaje y alojamiento. Tiene previsto asistir al D\u00eda de la Familia del MDS en Manchester y necesita ayuda para los gastos de viaje?<\/p>\n<p>Solicite ahora ayuda rellenando el formulario: https:\/\/forms.office.com\/e\/c1fcABTZTE<\/p>","protected":false},"excerpt":{"rendered":"<p>Un a\u00f1o m\u00e1s, MECP2 duplication UK acoger\u00e1 el D\u00eda de la Familia MDS en Manchester el s\u00e1bado 8 de noviembre de 2025. La reuni\u00f3n se celebrar\u00e1 en el DoubleTree Hilton Hotel [...].<\/p>","protected":false},"author":1,"featured_media":16284,"template":"","meta":{"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[],"class_list":["post-33013","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>R\u00e9union des familles 2025 \u00e0 Manchester - DupMECP2<\/title>\n<meta name=\"description\" content=\"Family meeting MECP2 duplication syndrome 2023 Manchester UK\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/es\/evento\/encuentro-familiar-manchester-2025\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"R\u00e9union des familles 2025 \u00e0 Manchester - 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