{"id":33616,"date":"2026-11-07T09:41:22","date_gmt":"2026-11-07T08:41:22","guid":{"rendered":"https:\/\/dupmecp2.eu\/?post_type=tribe_events&#038;p=33616"},"modified":"2026-11-11T15:25:06","modified_gmt":"2026-11-11T14:25:06","slug":"course-maladies-rares-2027","status":"publish","type":"tribe_events","link":"https:\/\/dupmecp2.eu\/es\/evento\/course-maladies-rares-2027\/","title":{"rendered":"Rare Diseases Run 2027"},"content":{"rendered":"<p>Estamos orgullosos de ser una de las 48 asociaciones de enfermedades raras y grupos de defensa de los pacientes en Alemania y Austria que unir\u00e1n sus fuerzas de nuevo para la RARE DISEASES RUN 2027.<\/p>\n<p><strong>Del 22 de febrero al 28 de febrero de 2027, participa en la 6\u00aa edici\u00f3n de la Carrera de las Enfermedades Raras -un evento virtual- para celebrar el D\u00eda de las Enfermedades Raras. Cualquiera puede participar. Puedes elegir tu distancia y mostrar tu apoyo.<\/strong><\/p>\n<p><a href=\"https:\/\/www.youtube.com\/watch?v=4x10_Vcl2_4\">Descubra la carrera por las enfermedades raras en nuestro v\u00eddeo<\/a><\/p>\n<p><strong>Chaque kilom\u00e8tre permet de collecter des fonds et de soutenir 48 organisations, unies derri\u00e8re la Course des maladies rares.\u00a0<\/strong><\/p>\n<p>Como opci\u00f3n, puede incluso elegir una organizaci\u00f3n ben\u00e9fica espec\u00edfica a la que apoyar con una donaci\u00f3n.<\/p>\n<p><u>He aqu\u00ed c\u00f3mo participar:<\/u><\/p>\n<p>La inscripci\u00f3n cuesta 10 euros y est\u00e1 abierta hasta el 28 de febrero de 2027. Puede elegir entre una simple inscripci\u00f3n en l\u00ednea (con un certificado imprimible) u optar por ventajas adicionales como una medalla y una camiseta. Puedes elegir la distancia (desde 500 m hasta un marat\u00f3n) y c\u00f3mo quieres participar (corriendo o andando).<\/p>\n<p>Cuando se inscriba, no olvide :<\/p>\n<ul>\n<li>introduzca \"DupMECP2\" en \"Organisation\/Verein\".<\/li>\n<li>Puedes elegir hacer una donaci\u00f3n a una organizaci\u00f3n ben\u00e9fica concreta, \u00a1incluida la nuestra!<\/li>\n<\/ul>\n<p class=\"translation-block\">Les inscriptions se font sur le lien suivant :&nbsp;<a href=\"https:\/\/my.raceresult.com\/319532\/registration\" target=\"_self\">https:\/\/my.raceresult.com\/319532\/registration<\/a><\/p>\n<p><strong>\u00danete a nosotros para concienciar sobre la lucha contra las enfermedades raras, que afectan a m\u00e1s de 300 millones de personas en todo el mundo. Solos somos raros, \u00a1juntos somos fuertes! \u00a1Inscr\u00edbete hoy y corre por una buena causa!<\/strong><\/p>\n<p data-start=\"281\" data-end=\"487\">Invitamos cordialmente a particulares, empresas y centros escolares a sensibilizarse y mostrar su solidaridad. Si usted o su organizaci\u00f3n desean participar, p\u00f3ngase en contacto con nosotros.<\/p>\n<p data-start=\"489\" data-end=\"580\">Juntos podemos hacer que el D\u00eda de las Enfermedades Raras sea visible en todo el mundo.<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Nous sommes fiers de faire partie des 48 associations et groupes de d\u00e9fense des patients dans le domaine des maladies rares en Allemagne et en Autriche, qui unissent \u00e0 nouveau [&hellip;]<\/p>","protected":false},"author":1,"featured_media":0,"template":"","meta":{"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[],"class_list":["post-33616","tribe_events","type-tribe_events","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Course pour les maladies rares 2027 - DupMECP2<\/title>\n<meta name=\"description\" content=\"Save the date! La 5\u00e9me course pour les maladies rares (RARE DISEASES RUN) - la semaine d&#039;action inclusive pour les maladies rares - aura lieu du 25 f\u00e9vrier au 1 mars 2026 !\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/es\/evento\/course-maladies-rares-2027\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Course pour les maladies rares 2027 - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"Save the date! La 5\u00e9me course pour les maladies rares (RARE DISEASES RUN) - la semaine d&#039;action inclusive pour les maladies rares - aura lieu du 25 f\u00e9vrier au 1 mars 2026 !\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/es\/evento\/course-maladies-rares-2027\/\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:modified_time\" content=\"2026-11-11T14:25:06+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/event\/course-maladies-rares-2027\/\",\"url\":\"https:\/\/dupmecp2.eu\/event\/course-maladies-rares-2027\/\",\"name\":\"Course pour les maladies rares 2027 - DupMECP2\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/#website\"},\"datePublished\":\"2026-11-07T08:41:22+00:00\",\"dateModified\":\"2026-11-11T14:25:06+00:00\",\"description\":\"Save the date! 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La 5\u00aa CARRERA DE LAS ENFERMEDADES RARAS, la semana de acci\u00f3n inclusiva por las enfermedades raras, tendr\u00e1 lugar del 25 de febrero al 1 de marzo de 2026.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/dupmecp2.eu\/es\/evento\/course-maladies-rares-2027\/","og_locale":"es_ES","og_type":"article","og_title":"Course pour les maladies rares 2027 - DupMECP2","og_description":"Save the date! 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