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We are proud to be one of the 11 new associations and patients advocacy groups in the field of rare diseases from Germany and Austria that will join the RARE DISEASES RUN in 2025!
The RARE DISEASES RUN is Europe’s largest virtual running event for rare diseases, with over 4,000 participants in 2024. Preparations for the coming year have already started.
Save the date! The 4th RARE DISEASES RUN – the inclusive running week for rare diseases – will take place from 24.02.2025 to 02.03.2025!
In 2025, you will be able run, walk or roll for a total of 32 patients advocacy groups in the field of rare diseases. Corporate teams and schools are also welcome.
More information on how to register will follow shortly. If you would like to find out more or support us (e.g. through sponsorship), please write to us at: rdr@syngap.de