Insight into life with MECP2 duplication syndrome

“Die ganze Woche”, an austrian newspaper, visited the Curic family. Jan’s mom bravely shared her story with MECP2 Duplication Syndrome.

It’s important to tell stories like this to raise awareness of the syndrome. It’s also important to show how crucial it is to stand together and give children like Jan a better future.

Want to help? Become a member and help us to advance the research and start the clinical trial.

Other published posts

Published Videos

Aleix and his parents talk about life with MECP2 duplication syndrome

Our newsletter

Subscribe to the newsletter to stay informed of our actions and any scientific advances on the syndrome