{"id":18053,"date":"2023-08-09T08:23:03","date_gmt":"2023-08-09T08:23:03","guid":{"rendered":"https:\/\/dupmecp2.eu\/dupmecp2-dans-servus-nachbar\/"},"modified":"2023-08-09T14:03:53","modified_gmt":"2023-08-09T14:03:53","slug":"dupmecp2-servus-nachbar","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/it\/dupmecp2-servus-nachbar\/","title":{"rendered":"DupMECP2 nel giornale \"Servus nachbar"},"content":{"rendered":"

Il giornale Servus Nachbar ha presentato l'associazione come parte del tour ciclistico organizzato dalla citt\u00e0 di Gramatneusiedl.<\/p>\n\n

Leggete l'articolo qui sotto (tradotto dal tedesco).<\/p>\n\n

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<\/div>\n\n

Il 18 giugno \u00e8 stata organizzata una gita in bicicletta a Gramatneusiedl. L'associazione ha allestito un punto di ristoro. \"Lasst uns MDS heilen - DupMECP2\" si impegna ad aiutare i bambini affetti dalla sindrome da duplicazione del gene MECP2. L'obiettivo dell'associazione \u00e8 quello di migliorare la qualit\u00e0 della vita dei bambini colpiti attraverso una serie di misure (educazione, sostegno ai progetti di ricerca, aiuto alle famiglie colpite). Il punto di ristoro \u00e8 stato visitato da molti ciclisti. Panini, torte e bevande sono stati consumati nel corso di vivaci discussioni. Molti membri dell'associazione hanno contribuito a rendere questo evento speciale. Gli organizzatori principali, la famiglia Molnar, hanno investito molto tempo nel laboratorio e sono stati felici del grande successo.<\/p>\n\n

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Leggi l'articolo<\/a><\/div>\n\n\n\n
Vedere l'evento<\/a><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"

Le journal \u00ab\u00a0Servus Nachbar\u00a0\u00bb pr\u00e9sente l’association dans le cadre du tour \u00e0 v\u00e9lo organis\u00e9 par la ville de Gramatneusiedl. Retrouvez l’article ci-dessous (traduit de l’allemand). Le 18 juin, un tour […]<\/p>","protected":false},"author":1,"featured_media":17767,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[45],"tags":[],"class_list":["post-18053","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medias"],"yoast_head":"\nDupMECP2 dans le journal "Servus nachbar" - DupMECP2<\/title>\n<meta name=\"description\" content=\"Le journal "Servus Nachbar" pr\u00e9sente l'association dans le cadre du tour \u00e0 v\u00e9lo organis\u00e9 par la ville de Gramatneusiedl. 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