{"id":33013,"date":"2025-05-13T17:21:57","date_gmt":"2025-05-13T15:21:57","guid":{"rendered":"https:\/\/dupmecp2.eu\/?post_type=tribe_events&p=33013"},"modified":"2025-08-13T11:02:41","modified_gmt":"2025-08-13T09:02:41","slug":"riunione-di-famiglia-manchester-2025","status":"publish","type":"tribe_events","link":"https:\/\/dupmecp2.eu\/it\/evento\/riunione-di-famiglia-manchester-2025\/","title":{"rendered":"2025 Riunione di famiglia a Manchester"},"content":{"rendered":"

Cette ann\u00e9e encore, l\u2019association \u00ab MECP2 duplication UK \u00bb accueillera la journ\u00e9e des familles MDS \u00e0 Manchester ce samedi 8 novembre 2025. La r\u00e9union se tiendra \u00e0 l\u2019hotel DoubleTree Hilton directement \u00e0 l\u2019aeroport de Manchester.<\/p>\n

Le Dr. Davut Pehlivan du Texas Children\u2019s Hospital, ainsi que l\u2019\u00e9quipe d\u2018Ionis se joindront \u00e0 la r\u00e9union et feront le point sur la progression de la recherche pour un traitement.<\/p>\n

Le programme d\u00e9taill\u00e9 sera communiqu\u00e9 d\u00e8s que possible. Toutefois, pensez que le programme commencera \u00e0 8h30.<\/p>\n

Des membres de notre association seront \u00e9galement pr\u00e9sents et seront heureux d\u2019aider \u00e0 la traduction en fran\u00e7ais ou en allemand.<\/p>\n

L\u2019inscription est gratuite et doit se faire ici: https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSd-dLHjDTq7vidZazCnLTeQKbwF5NXLoCdVW9_OYHQyrc24SA\/viewform?usp=send_form<\/p>\n

Si vous souhaitez passer la nuit ou le week-end \u00e0 l\u2019h\u00f4tel, un tarif sp\u00e9cial a \u00e9t\u00e9 mis en place pour les personnes participant \u00e0 la journ\u00e9e des familles de MECP2. Voici le lien pour faire une r\u00e9servation: Hilton Event Email<\/a><\/p>\n

En collaboration avec l’association MECP2 Duplication Syndrom Deutschland e.V., nous offrons un remboursement des frais de voyage aux familles qui participeront au MDS Family Day 2025.
\nLes familles peuvent demander une aide allant jusqu’\u00e0 400 \u20ac par famille pour couvrir une partie de leurs frais de voyage et d’h\u00e9bergement. Envisagez-vous de participer au MDS Family Day \u00e0 Manchester et vous cherchez un soutien pour les frais de voyage ?<\/p>\n

Demande d\u00e8s maintenant une aide en remplissant le formulaire : https:\/\/forms.office.com\/e\/c1fcABTZTE<\/p>","protected":false},"excerpt":{"rendered":"

Anche quest'anno, il MECP2 duplicazione UK ospiter\u00e0 la Giornata della Famiglia MDS a Manchester sabato 8 novembre 2025. L'incontro si terr\u00e0 presso il DoubleTree Hilton Hotel [...].<\/p>","protected":false},"author":1,"featured_media":16284,"template":"","meta":{"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[],"class_list":["post-33013","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nR\u00e9union des familles 2025 \u00e0 Manchester - DupMECP2<\/title>\n<meta name=\"description\" content=\"Family meeting MECP2 duplication syndrome 2023 Manchester UK\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/it\/evento\/riunione-di-famiglia-manchester-2025\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"R\u00e9union des familles 2025 \u00e0 Manchester - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"Family meeting MECP2 duplication syndrome 2023 Manchester UK\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/it\/evento\/riunione-di-famiglia-manchester-2025\/\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:modified_time\" content=\"2025-08-13T09:02:41+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/05\/Manchester-e1717442236808.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1169\" \/>\n\t<meta property=\"og:image:height\" content=\"399\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Tempo di lettura stimato\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minuti\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/event\/family-meeting-manchester-2025\/\",\"url\":\"https:\/\/dupmecp2.eu\/event\/family-meeting-manchester-2025\/\",\"name\":\"R\u00e9union des familles 2025 \u00e0 Manchester - 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