{"id":33013,"date":"2025-05-13T17:21:57","date_gmt":"2025-05-13T15:21:57","guid":{"rendered":"https:\/\/dupmecp2.eu\/?post_type=tribe_events&p=33013"},"modified":"2025-08-13T11:02:41","modified_gmt":"2025-08-13T09:02:41","slug":"riunione-di-famiglia-manchester-2025","status":"publish","type":"tribe_events","link":"https:\/\/dupmecp2.eu\/it\/evento\/riunione-di-famiglia-manchester-2025\/","title":{"rendered":"2025 Riunione di famiglia a Manchester"},"content":{"rendered":"

Anche quest'anno, il MECP2 duplicazione UK ospiter\u00e0 il Family Day MDS a Manchester sabato 8 novembre 2025. L'incontro si terr\u00e0 presso il DoubleTree Hilton Hotel, direttamente all'aeroporto di Manchester.<\/p>\n

Il dottor Davut Pehlivan del Texas Children's Hospital e il team di Ionis parteciperanno all'incontro per fornire un aggiornamento sui progressi della ricerca di un trattamento.<\/p>\n

Il programma dettagliato sar\u00e0 reso noto al pi\u00f9 presto. Si ricorda tuttavia che il programma inizier\u00e0 alle 8.30.<\/p>\n

Saranno presenti anche membri della nostra associazione, che saranno lieti di aiutare nella traduzione in francese o tedesco.<\/p>\n

La registrazione \u00e8 gratuita e deve essere effettuata qui: https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSd-dLHjDTq7vidZazCnLTeQKbwF5NXLoCdVW9_OYHQyrc24SA\/viewform?usp=send_form<\/p>\n

Se desiderate trascorrere la notte o il fine settimana in hotel, \u00e8 stata predisposta una tariffa speciale per i partecipanti al Family Day MECP2. Ecco il link per effettuare la prenotazione: Email evento Hilton<\/a><\/p>\n

In collaborazione con l'associazione MECP2 Duplication Syndrome Deutschland e.V., offriamo un rimborso delle spese di viaggio alle famiglie che partecipano al Family Day 2025 della MDS.
\nLe famiglie possono richiedere un sostegno fino a 400 euro per famiglia per coprire parte delle spese di viaggio e di alloggio. Avete intenzione di partecipare al Family Day MDS di Manchester e desiderate un sostegno per le spese di viaggio?<\/p>\n

Richiedi ora l'assistenza compilando il modulo: https:\/\/forms.office.com\/e\/c1fcABTZTE<\/p>","protected":false},"excerpt":{"rendered":"

Anche quest'anno, il MECP2 duplicazione UK ospiter\u00e0 la Giornata della Famiglia MDS a Manchester sabato 8 novembre 2025. L'incontro si terr\u00e0 presso il DoubleTree Hilton Hotel [...].<\/p>","protected":false},"author":1,"featured_media":16284,"template":"","meta":{"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[],"class_list":["post-33013","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nR\u00e9union des familles 2025 \u00e0 Manchester - DupMECP2<\/title>\n<meta name=\"description\" content=\"Family meeting MECP2 duplication syndrome 2023 Manchester UK\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/it\/evento\/riunione-di-famiglia-manchester-2025\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"R\u00e9union des familles 2025 \u00e0 Manchester - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"Family meeting MECP2 duplication syndrome 2023 Manchester UK\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/it\/evento\/riunione-di-famiglia-manchester-2025\/\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:modified_time\" content=\"2025-08-13T09:02:41+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/05\/Manchester-e1717442236808.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1169\" \/>\n\t<meta property=\"og:image:height\" content=\"399\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Tempo di lettura stimato\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minuti\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/event\/family-meeting-manchester-2025\/\",\"url\":\"https:\/\/dupmecp2.eu\/event\/family-meeting-manchester-2025\/\",\"name\":\"R\u00e9union des familles 2025 \u00e0 Manchester - 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