Newsletter – April 2024

Here is the third issue of our newsletter.

In this issue, you will learn more about:

  • Research highlights : CRISPR-Cas13 and Huidagene
  • Summary of Events in January and February 2024
  • Save the Date of Our Next Events
  • Families share their story: A day in the life of Zac’s family
  • Our Heroes: Shedding Lights on Dr. Gröppel
  • Happening in the association
  • DupMECP2 in the press
  • Global online fundraising campaign
  • Ambassadors and Experts’ model
  • Our sponsors

P.S. Don’t hesitate to reach out to us with your feedback, stories, or suggestions. Your voice matters, and we are here to listen and support you every step of the way.

Other published posts

Published Videos

Aleix and his parents talk about life with MECP2 duplication syndrome

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