Here is the fifth issue of our newsletter.
In this issue, you will learn more about:
- Plomet: A story of hope, support, and advocacy for MECP2 Duplication Syndrome
- Research highlights
- ATTUNE webinar series and ebook
- Survey mapping potential participation in MECP2 Duplication Syndrome trials
- Two clinical trials for MDS : ATTUNE & HERO
- Save the Date
- Summary of past events
- Happening in the association
- A very successful Christmas
- Our ambitions for 2025
- Meet our new team members
- Renew your membership
- Our sponsors
P.S. Don’t hesitate to reach out to us with your feedback, stories, or suggestions. Your voice matters, and we are here to listen and support you every step of the way.
