{"id":17668,"date":"2023-07-05T21:02:12","date_gmt":"2023-07-05T19:02:12","guid":{"rendered":"https:\/\/dupmecp2.eu\/a-heartwarming-event-spreading-awareness-and-support-for-the-association-lasst-uns-mds-heilen\/"},"modified":"2025-02-21T08:39:18","modified_gmt":"2025-02-21T07:39:18","slug":"serdeczne-wydarzenie-szerzace-swiadomosc-i-wsparcie-dla-stowarzyszenia-lasst-uns-mds-heilen","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/pl\/serdeczne-wydarzenie-szerzace-swiadomosc-i-wsparcie-dla-stowarzyszenia-lasst-uns-mds-heilen\/","title":{"rendered":"Wzruszaj\u0105ce wydarzenie szerz\u0105ce \u015bwiadomo\u015b\u0107 i wsparcie dla stowarzyszenia"},"content":{"rendered":"

18 czerwca w Gramatneusiedl (Dolna Austria) odby\u0142o si\u0119 niezwyk\u0142e wydarzenie, kt\u00f3re ukaza\u0142o ducha hojno\u015bci i wsp\u00f3lnoty. W ramach wycieczki rowerowej zorganizowanej przez miasto Gramatneusiedl, nasze stowarzyszenie \"Lasst uns MDS heilen\" otrzyma\u0142o pozwolenie na prowadzenie stoiska gastronomicznego.<\/p>\n\n\n\n

Susanne i Gerald, szanowani cz\u0142onkowie zarz\u0105du, byli sercem tego obwodu.<\/p>\n\n\n\n

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Zorganizowali i zarz\u0105dzali stoiskiem uzupe\u0142niania zapas\u00f3w, gdzie napoje i \u017cywno\u015b\u0107 by\u0142y dost\u0119pne za dobrowoln\u0105 darowizn\u0119. Ka\u017cdy datek przekazany podczas wydarzenia zosta\u0142 przeznaczony na wsparcie inicjatyw stowarzyszenia. Stoisko, t\u0119tni\u0105ce \u017cyciem, powita\u0142o ponad setk\u0119 odwiedzaj\u0105cych, kt\u00f3rzy okazali swoj\u0105 solidarno\u015b\u0107 i wsparcie.<\/p>\n\n\n\n

Obecni byli Matteo, dzielny 5-latek i Philipp, odporny 25-latek, obaj \u017cyj\u0105cy z zespo\u0142em duplikacji genu MECP2. Ich inspiruj\u0105ca obecno\u015b\u0107 rzuci\u0142a \u015bwiat\u0142o na wyzwania stoj\u0105ce przed osobami dotkni\u0119tymi t\u0105 rzadk\u0105 chorob\u0105 i wzmocni\u0142a znaczenie misji wydarzenia.<\/p>\n\n\n\n

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Sukces tego wydarzenia zosta\u0142 dodatkowo wzmocniony przez nieocenion\u0105 pomoc przyjaci\u00f3\u0142 i sympatyk\u00f3w, kt\u00f3rzy zg\u0142osili si\u0119 na ochotnika do organizacji i obs\u0142ugi stoiska, dumnie nosz\u0105c barwy stowarzyszenia. Wydarzenie okaza\u0142o si\u0119 niezapomnianym sukcesem.<\/p>\n\n\n\n

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Chcieliby\u015bmy r\u00f3wnie\u017c podkre\u015bli\u0107 firm\u0119 Stiegl, kt\u00f3ra przekaza\u0142a wszystkie napoje! Ponadto zapewniono pyszne wypieki, w tym kaw\u0119 i pyszne pasty do smarowania.<\/p>\n\n\n\n

Odnosz\u0105c si\u0119 do tego wydarzenia, Gerald m\u00f3wi: \"Ich bin \u00fcberw\u00e4ltigt und unendlich dankbar\" (Jestem przyt\u0142oczony i niesko\u0144czenie wdzi\u0119czny). Gerald jest przyt\u0142oczony licznymi wolontariuszami, kt\u00f3rzy po\u015bwi\u0119cili sw\u00f3j czas i energi\u0119, wdzi\u0119czny za \u017cyw\u0105 i przyjemn\u0105 atmosfer\u0119, kt\u00f3ra panowa\u0142a przez ca\u0142y czas, zachwycony znaczn\u0105 liczb\u0105 odwiedzaj\u0105cych, kt\u00f3rzy do\u0142\u0105czyli, poruszony ogromn\u0105 ch\u0119ci\u0105 wniesienia wk\u0142adu i dokonania zmian, a tak\u017ce podbudowany ciekawo\u015bci\u0105 i zainteresowaniem odwiedzaj\u0105cych, aby dowiedzie\u0107 si\u0119 wi\u0119cej o chorobie.<\/p>\n\n\n\n

Susanne r\u00f3wnie\u017c podzieli\u0142a si\u0119 swoimi odczuciami, wykrzykuj\u0105c: \"Was f\u00fcr ein toller Tag. Ich konnte und wollte meine Freudentr\u00e4nen nicht unterdr\u00fccken\" (Co za wspania\u0142y dzie\u0144. Nie mog\u0142am i nie chcia\u0142am powstrzymywa\u0107 \u0142ez rado\u015bci).<\/p>\n\n\n\n

Wyrazi\u0142a swoje szczere uznanie dla wszystkich, kt\u00f3rzy sprawili, \u017ce wydarzenie odnios\u0142o ogromny sukces dla ich stowarzyszenia. My\u015bl\u0105c o tym wydarzeniu, Susanne powiedzia\u0142a: \"F\u00fcr mich war dieser Tag einer der emotionalsten seit Beginn unserer Reise.\" (Dla mnie ten dzie\u0144 by\u0142 jednym z najbardziej emocjonalnych od pocz\u0105tku naszej podr\u00f3\u017cy).<\/p>\n\n\n\n

Wyznaje: \"Es gibt kaum etwas Schlimmeres als Hoffnungslosigkeit und sein Kind leiden zu sehen\". (Nie ma nic gorszego ni\u017c poczucie beznadziei i patrzenie na cierpienie swojego dziecka).<\/p>\n\n\n\n

Ich podr\u00f3\u017c trwa nadal z now\u0105 nadziej\u0105 i determinacj\u0105 dla ich syna Philippa, wiedz\u0105c, \u017ce nie s\u0105 sami.<\/p>\n\n\n\n

Susanne podsumowuje: \"Danke vielmals an alle, die diesen Tag zu so einem guten Tag f\u00fcr unseren Verein machten. 1000 Danke\" (Wielkie podzi\u0119kowania dla wszystkich, kt\u00f3rzy uczynili ten dzie\u0144, tak dobrym dniem dla stowarzyszenia).<\/p>\n\n\n\n

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Dzi\u0119ki wsp\u00f3lnym wysi\u0142kom organizator\u00f3w, wolontariuszy, odwiedzaj\u0105cych i wspieraj\u0105cych sponsor\u00f3w, stowarzyszenie zebra\u0142o \u0142\u0105cznie 1500 euro, pokazuj\u0105c niesamowit\u0105 si\u0142\u0119 jedno\u015bci i wsp\u00f3\u0142czucia, gdy s\u0105 skierowane na szczytny cel.<\/p>\n\n\n\n

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Dzi\u0119kujemy Leni, Barbarze, Ingrid, Ninie, Robertowi, Hubertowi, Gerlinde, Albertowi, Susanne, Andi-Bub, Emilianowi i Marie za nieocenion\u0105 pomoc.<\/p>\n\n\n\n

Nasze stowarzyszenie chcia\u0142oby ponownie podzi\u0119kowa\u0107 firmie Stiegl za hojne przekazanie napoj\u00f3w. Ponadto chcieliby\u015bmy podzi\u0119kowa\u0107 biuru ubezpieczeniowemu Klapa za organizacj\u0119 i mo\u017cliwo\u015b\u0107 zaprezentowania naszego stowarzyszenia oraz cukierni Hirnich za dostarczenie ciast.<\/p>\n\n\n\n

Dzi\u0119kujemy r\u00f3wnie\u017c Liebesblick za pi\u0119kne materia\u0142y (koszulki, torby, naklejki).<\/p>\n\n\n\n

Na koniec wielkie podzi\u0119kowania dla drogiej Silvie, kt\u00f3ra zasponsorowa\u0142a koszulki naszego stowarzyszenia!!!<\/p>\n\n\n\n

Prasa r\u00f3wnie\u017c by\u0142a obecna! Wydarzenie zosta\u0142o opisane w dw\u00f3ch lokalnych gazetach. <\/p>\n\n\n\n

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\"\"<\/a><\/figure>\n\n\n\n
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do artyku\u0142u N\u00d6N<\/a><\/div>\n\n\n\n
do artyku\u0142u Servus Nachbar<\/a><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"

On June 18th, Gramatneusiedl (Lower Austria) hosted a remarkable event that showcased the spirit of generosity and community. Within the bike tour was organized by the city of Gramatneusiedl, our […]<\/p>","protected":false},"author":1,"featured_media":16375,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[216],"tags":[],"class_list":["post-17668","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-event"],"yoast_head":"\nA heartwarming event spreading awareness and support for the association - DupMECP2<\/title>\n<meta name=\"description\" content=\"A heartwarming event in Austria spreading awareness and support for the association \u201cLasst uns MDS heilen\u201d Learn more about the inspiring missions, MECP2 duplication syndrome, and the supportive community behind this event.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/pl\/serdeczne-wydarzenie-szerzace-swiadomosc-i-wsparcie-dla-stowarzyszenia-lasst-uns-mds-heilen\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A heartwarming event spreading awareness and support for the association - 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