{"id":17681,"date":"2023-07-05T21:02:12","date_gmt":"2023-07-05T19:02:12","guid":{"rendered":"https:\/\/dupmecp2.eu\/un-evenement-emouvant-pour-sensibiliser-et-soutenir-lassociation-dupmecp2-lasst-uns-mds-heilen\/"},"modified":"2025-09-03T17:18:23","modified_gmt":"2025-09-03T15:18:23","slug":"wydarzenie-podnoszenie-swiadomosci-wsparcie-dupmecp2","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/pl\/wydarzenie-podnoszenie-swiadomosci-wsparcie-dupmecp2\/","title":{"rendered":"Wzruszaj\u0105ce wydarzenie maj\u0105ce na celu podniesienie \u015bwiadomo\u015bci i wsparcie organizacji charytatywnej"},"content":{"rendered":"

18 czerwca w Gramatneusiedl (Dolna Austria) odby\u0142o si\u0119 niezwyk\u0142e wydarzenie, kt\u00f3re podkre\u015bli\u0142o ducha hojno\u015bci i wsp\u00f3lnoty. W ramach przeja\u017cd\u017cki rowerowej zorganizowanej przez miasto Gramatneusiedl, nasze stowarzyszenie zosta\u0142o poproszone o obs\u0142ug\u0119 stoiska z \u017cywno\u015bci\u0105.<\/p>\n\n

Susanne i Gerald, szanowani cz\u0142onkowie zarz\u0105du, byli sercem tej wycieczki.<\/p>\n\n

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Zorganizowali i zarz\u0105dzali stoiskiem gastronomicznym, na kt\u00f3rym mo\u017cna by\u0142o kupi\u0107 jedzenie i napoje w zamian za dobrowoln\u0105 darowizn\u0119. Ka\u017cdy datek przekazany podczas wydarzenia wspiera\u0142 inicjatywy stowarzyszenia. Stoisko dzia\u0142a\u0142o pe\u0142n\u0105 par\u0105, a ponad setka odwiedzaj\u0105cych okaza\u0142a swoj\u0105 solidarno\u015b\u0107 i wsparcie.<\/p>\n\n

Obecni byli Matteo, odwa\u017cny 5-latek i Philipp, odporny 25-latek, obaj z zespo\u0142em duplikacji genu MECP2. Ich inspiruj\u0105ca obecno\u015b\u0107 podkre\u015bli\u0142a wyzwania stoj\u0105ce przed osobami cierpi\u0105cymi na t\u0119 rzadk\u0105 chorob\u0119 i wzmocni\u0142a znaczenie misji wydarzenia.<\/p>\n\n

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Do sukcesu tego wydarzenia przyczyni\u0142a si\u0119 nieoceniona pomoc przyjaci\u00f3\u0142 i sympatyk\u00f3w, kt\u00f3rzy zg\u0142osili si\u0119 do organizacji i prowadzenia stoiska, dumnie nosz\u0105c barwy stowarzyszenia. Wydarzenie okaza\u0142o si\u0119 niezapomnianym sukcesem.<\/p>\n\n

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Chcieliby\u015bmy r\u00f3wnie\u017c doceni\u0107 wk\u0142ad firmy Stiegl, kt\u00f3ra zapewni\u0142a wszystkie napoje! Ponadto serwowano pyszne wypieki, w tym kaw\u0119, oraz pasty do smarowania.<\/p>\n\n

Patrz\u0105c wstecz na to wydarzenie, Gerald m\u00f3wi: \"Ich bin \u00fcberw\u00e4ltigt und unendlich dankbar\" (Jestem przyt\u0142oczony i niesko\u0144czenie wdzi\u0119czny). Gerald jest przyt\u0142oczony liczb\u0105 wolontariuszy, kt\u00f3rzy po\u015bwi\u0119cili sw\u00f3j czas i energi\u0119, wdzi\u0119czny za \u017cyw\u0105 i przyjemn\u0105 atmosfer\u0119 podczas ca\u0142ego wydarzenia, zdumiony du\u017c\u0105 liczb\u0105 odwiedzaj\u0105cych, kt\u00f3rzy do niego do\u0142\u0105czyli, poruszony ogromn\u0105 ch\u0119ci\u0105 wniesienia wk\u0142adu i dokonania zmian oraz zach\u0119cony ciekawo\u015bci\u0105 i zainteresowaniem odwiedzaj\u0105cych, aby dowiedzie\u0107 si\u0119 wi\u0119cej o chorobie.<\/p>\n\n

Susanne r\u00f3wnie\u017c wyrazi\u0142a swoje uczucia, wykrzykuj\u0105c: \"Was f\u00fcr ein toller Tag. Ich konnte und wollte meine Freudentr\u00e4nen nicht unterdr\u00fccken\" (Co za pi\u0119kny dzie\u0144. Nie mog\u0142am i nie chcia\u0142am powstrzyma\u0107 \u0142ez rado\u015bci).<\/p>\n\n

Wyrazi\u0142a swoj\u0105 szczer\u0105 wdzi\u0119czno\u015b\u0107 wszystkim tym, kt\u00f3rzy sprawili, \u017ce wydarzenie to odnios\u0142o ogromny sukces dla ich stowarzyszenia. Podsumowuj\u0105c wydarzenie, Susanne powiedzia\u0142a: \"F\u00fcr mich war dieser Tag einer der emotionalsten seit Beginn unserer Reise. (Dla mnie by\u0142 to jeden z najbardziej emocjonalnych dni od pocz\u0105tku naszej podr\u00f3\u017cy).<\/p>\n\n

M\u00f3wi: \"Es gibt kaum etwas Schlimmeres als Hoffnungslosigkeit und sein Kind leiden zu sehen\" (Nie ma nic gorszego ni\u017c poczucie beznadziejno\u015bci i patrzenie na cierpienie swojego dziecka).<\/p>\n\n

Ich podr\u00f3\u017c trwa nadal z now\u0105 nadziej\u0105 i determinacj\u0105 dla ich syna Philippa, wiedz\u0105c, \u017ce nie s\u0105 sami.<\/p>\n\n

Susanne podsumowuje: \"Danke vielmals an alle, die diesen Tag zu so einem guten Tag f\u00fcr unseren Verein machten. 1000 Dank\" (Wielkie podzi\u0119kowania dla wszystkich, kt\u00f3rzy sprawili, \u017ce by\u0142 to tak wspania\u0142y dzie\u0144 dla stowarzyszenia).<\/p>\n\n

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Dzi\u0119ki wsp\u00f3lnym wysi\u0142kom organizator\u00f3w, wolontariuszy, odwiedzaj\u0105cych i sponsor\u00f3w, organizacja charytatywna zebra\u0142a \u0142\u0105cznie 1500 euro, demonstruj\u0105c niesamowit\u0105 si\u0142\u0119 jedno\u015bci i wsp\u00f3\u0142czucia, gdy s\u0105 one skierowane na szczytny cel.<\/p>\n\n

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Chcieliby\u015bmy podzi\u0119kowa\u0107 Leni, Barbarze, Ingrid, Ninie, Robertowi, Hubertowi, Gerlinde, Albertowi, Susanne, Andi-Bub, Emilianowi i Marie za ich nieocenion\u0105 pomoc.<\/p>\n\n

Nasze stowarzyszenie chcia\u0142oby jeszcze raz podzi\u0119kowa\u0107 firmie Stiegl za hojne przekazanie napoj\u00f3w. Chcieliby\u015bmy r\u00f3wnie\u017c podzi\u0119kowa\u0107 firmie ubezpieczeniowej Klapa za zorganizowanie imprezy i umo\u017cliwienie nam zaprezentowania naszego stowarzyszenia oraz cukierni Hirnich za dostarczenie ciast.<\/p>\n\n

Wielkie podzi\u0119kowania dla Liebesblick za pi\u0119kne materia\u0142y (koszulki, torby, naklejki).<\/p>\n\n

Na koniec wielkie podzi\u0119kowania dla Silvie, kt\u00f3ra zasponsorowa\u0142a koszulki naszego stowarzyszenia!<\/p>\n\n

Prasa te\u017c tam by\u0142a! Wydarzenie zosta\u0142o opublikowane w dw\u00f3ch lokalnych gazetach. <\/p>\n\n

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Przeczytaj artyku\u0142 N\u00d6N<\/a><\/div>\n\n\n\n
Przeczytaj artyku\u0142 Servus Nachbar<\/a><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"

Le 18 juin, Gramatneusiedl (Basse-Autriche) a accueilli un \u00e9v\u00e9nement remarquable qui a mis en \u00e9vidence l’esprit de g\u00e9n\u00e9rosit\u00e9 et de communaut\u00e9. Dans le cadre de la balade \u00e0 v\u00e9lo organis\u00e9e […]<\/p>","protected":false},"author":1,"featured_media":16380,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[219],"tags":[],"class_list":["post-17681","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements"],"yoast_head":"\nUn \u00e9v\u00e9nement \u00e9mouvant pour sensibiliser et soutenir l'association - DupMECP2<\/title>\n<meta name=\"description\" content=\"Un \u00e9v\u00e9nement \u00e9mouvant en Autriche pour sensibiliser et soutenir l'association "Lasst uns MDS heilen". 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