{"id":26034,"date":"2024-05-06T19:33:30","date_gmt":"2024-05-06T19:33:30","guid":{"rendered":"https:\/\/dupmecp2.eu\/apercu-de-la-vie-avec-le-syndrome-de-duplication-du-gene-mecp2\/"},"modified":"2024-05-07T18:47:56","modified_gmt":"2024-05-07T18:47:56","slug":"przeglad-zycia-z-zespolem-duplikacji-genu-mecp2","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/pl\/przeglad-zycia-z-zespolem-duplikacji-genu-mecp2\/","title":{"rendered":"Przegl\u0105d \u017cycia z zespo\u0142em duplikacji genu MECP2"},"content":{"rendered":"<p>\"Die ganze Woche\" odwiedzi\u0142o rodzin\u0119 Curic. Mama Jana odwa\u017cnie podzieli\u0142a si\u0119 swoj\u0105 histori\u0105 \u017cycia z zespo\u0142em duplikacji genu MECP2. <\/p>\n\n<div data-wp-interactive=\"core\/file\" class=\"wp-block-file\"><object data-wp-bind--hidden=\"!state.hasPdfPreview\" hidden class=\"wp-block-file__embed\" data=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/05\/Die-Ganze-Woche_30042024_Jan.pdf\" type=\"application\/pdf\" style=\"width:100%;height:600px\" aria-label=\"Osadzone z Die Ganze Woche_30042024_Jan.\"><\/object><a id=\"wp-block-file--media-210a8d03-bd84-480e-96bb-87d8c97c3acb\" href=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/05\/Die-Ganze-Woche_30042024_Jan.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Die Ganze Woche_30042024_Jan<\/a><a href=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/05\/Die-Ganze-Woche_30042024_Jan.pdf\" class=\"wp-block-file__button wp-element-button\" download=\"\" aria-describedby=\"wp-block-file--media-210a8d03-bd84-480e-96bb-87d8c97c3acb\">Pobierz<\/a><\/div>\n\n<p>Wa\u017cne jest, aby opowiada\u0107 takie historie, aby podnosi\u0107 \u015bwiadomo\u015b\u0107 na temat tego zespo\u0142u. Wa\u017cne jest r\u00f3wnie\u017c, aby pokaza\u0107, jak wa\u017cne jest wsp\u00f3lne dzia\u0142anie, aby zapewni\u0107 dzieciom takim jak Jan lepsz\u0105 przysz\u0142o\u015b\u0107. <\/p>\n\n<p>Chcesz pom\u00f3c? Zosta\u0144 cz\u0142onkiem i pom\u00f3\u017c nam rozwija\u0107 badania i rozpocz\u0105\u0107 pr\u00f3by kliniczne zespo\u0142u. <\/p>\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background wp-element-button\" href=\"https:\/\/dupmecp2.eu\/pl\/mitglied-werden\/?lang=de\" style=\"border-radius:15px;background-color:#f7a13f\">Zosta\u0144 cz\u0142onkiem<\/a><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>\u00ab Die ganze Woche \u00bb a rendu visite \u00e0 la famille Curic. La maman de Jan a courageusement partag\u00e9 son histoire avec le syndrome de duplication du g\u00e8ne MECP2. Il [&hellip;]<\/p>","protected":false},"author":1,"featured_media":26028,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[45,174],"tags":[],"class_list":["post-26034","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medias","category-temoignage"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Aper\u00e7u de la vie avec le syndrome de duplication du g\u00e8ne MECP2 - DupMECP2<\/title>\n<meta name=\"description\" content=\"\u00ab Die ganze Woche \u00bb a rendu visite \u00e0 la famille Curic. 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