{"id":31074,"date":"2024-12-01T22:34:32","date_gmt":"2024-12-01T21:34:32","guid":{"rendered":"https:\/\/dupmecp2.eu\/ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos\/"},"modified":"2024-12-04T20:34:08","modified_gmt":"2024-12-04T19:34:08","slug":"ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/pl\/ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos\/","title":{"rendered":"Roz\u015bwietl sw\u00f3j Navidad i urzeczywistnij swoje marzenia"},"content":{"rendered":"<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background has-text-align-center wp-element-button\" href=\"https:\/\/visufund.com\/dupmecp2-xmas-2024\" style=\"border-radius:15px;background-color:#f7a13f\">\u00a1Ilumina nuestro \u00e1rbol de Navidad!<\/a><\/div>\n<\/div>\n\n<h2 class=\"wp-block-heading\"><strong>\u00a1Esta temporada navide\u00f1a, hag\u00e1mosla un momento maravilloso ayudando a los dem\u00e1s! <\/strong><\/h2>\n\n<p>W DupMECP2 po\u015bwi\u0119camy si\u0119 wspieraniu dzieci z MECP2 i ich rodzin najlepiej jak potrafimy przez ca\u0142y rok. <\/p>\n\n<p>Zesp\u00f3\u0142 duplikacji MECP2 to powa\u017cny i niszczycielski zesp\u00f3\u0142. <strong>Nuestro equipo trabaja incansablemente para crear conciencia sobre los trastornos gen\u00e9ticos raros, desmitificar la investigaci\u00f3n y brindar a las familias los recursos y el apoyo que necesitan.<\/strong><\/p>\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h3 class=\"wp-block-heading\"><strong>Ale nie mo\u017cemy zrobi\u0107 tego sami. \u00a1Necesitamos tu ayuda!  <\/strong><\/h3>\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"has-text-align-left\">W minionym roku, z pomoc\u0105 naszych cz\u0142onk\u00f3w, os\u00f3b prywatnych, rodzin i przyjaci\u00f3\u0142, mogli\u015bmy zaoferowa\u0107 niezliczone wydarzenia, aktywno\u015bci i materia\u0142y, kt\u00f3re pomog\u0142y w budowaniu \u015bwiadomo\u015bci na temat zespo\u0142u duplikacji MECP2. <\/p>\n\n\n\n<p class=\"has-text-align-left\">Z ich pomoc\u0105 w 2024 r. stworzyli\u015bmy dwucz\u0119\u015bciowe seminarium internetowe na temat badania ATTUNE, dostarczaj\u0105c rodzinom i opiekunom cennych informacji.<\/p>\n\n\n\n<p>Celem tej ankiety by\u0142o dostarczenie jasnych i przyst\u0119pnych informacji na temat bada\u0144 klinicznych, kt\u00f3re wkr\u00f3tce si\u0119 rozpoczn\u0105, oraz pomoc rodzinom w przygotowaniu si\u0119 na przysz\u0142o\u015b\u0107. Tambi\u00e9n nos enorgulleci\u00f3\u00f3 mucho poder ayudar econ\u00f3micamente a las familias a sufragar los costos de terapias y dispositivos m\u00e9dicos costos. <\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Witamy w Lasst uns MDS heilen - DupMECP2\" width=\"800\" height=\"450\" data-src=\"https:\/\/www.youtube.com\/embed\/Uz-4yW966Zg?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" class=\"lazyload\" data-load-mode=\"1\"><\/iframe>\n<\/div><\/figure>\n<\/div>\n<\/div>\n\n<div style=\"height:66px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h2 class=\"wp-block-heading\"><strong>W czym mo\u017cemy pom\u00f3c?<\/strong><\/h2>\n\n<p>W tym roku r\u00f3\u017cnica mo\u017ce by\u0107 naprawd\u0119 znacz\u0105ca. <strong>Zapraszamy do zjednoczenia si\u0119 z nami, aby urzeczywistni\u0107 swoje marzenia w tym czasie navide\u00f1a. <\/strong>Wesprzyj nasze misje, dekoruj\u0105c nasz wirtualny symbol Navidad.<\/p>\n\n<h3 class=\"wp-block-heading\"><strong>Ka\u017cdy promie\u0144 s\u0142o\u0144ca o\u015bwietla nasze oczekiwania, pokazuje nasze wsparcie i pozwala nam robi\u0107 r\u00f3\u017cnic\u0119 dla naszych ma\u0142ych bohater\u00f3w.<\/strong><\/h3>\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p><\/p>\n\n\n\n<p>Dekoruj\u0105c nasze wirtualne drzewko bo\u017conarodzeniowe, pomagasz poprawi\u0107 jako\u015b\u0107 \u017cycia dzieci i ich rodzin. Ka\u017cda ozdoba umieszczona na choince pomaga nam: <\/p>\n<\/blockquote>\n\n<ul class=\"wp-block-list\">\n<li><strong>Wspiera\u0107 rodziny, dostarczaj\u0105c im informacji i aktualnych informacji, a tak\u017ce zwraca\u0107 uwag\u0119 na koszty terapii.<\/strong><\/li>\n\n\n\n<li><strong>Concientizaci\u00f3n sobre el s\u00edndrome de duplicaci\u00f3n MECP2 y el trastorno gen\u00e9tico raro<\/strong><\/li>\n\n\n\n<li><strong>Zintensyfikowanie bada\u0144 nad innowacyjnymi technologiami w celu znalezienia lekarstwa<\/strong><\/li>\n<\/ul>\n\n<div style=\"height:66px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h2 class=\"wp-block-heading\"><strong>Jak to dzia\u0142a?<\/strong><\/h2>\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<ol class=\"wp-block-list\">\n<li>Odwied\u017a nasz\u0105 wirtualn\u0105 stron\u0119 navidad.<\/li>\n\n\n\n<li>Wybierz jedn\u0105 lub wi\u0119cej gwiazdek lub ozd\u00f3b.<\/li>\n\n\n\n<li>Z\u0142\u00f3\u017c \u017cyczenia noworoczne i prze\u015blij zdj\u0119cie, aby spersonalizowa\u0107 wiadomo\u015b\u0107 w naszym symbolu (opcjonalnie) <\/li>\n\n\n\n<li>Podziel si\u0119 tym linkiem ze znajomymi, aby wzmocni\u0107 swoje dobre dzia\u0142ania i stworzy\u0107 kaskad\u0119.<\/li>\n<\/ol>\n<\/div>\n<\/div>\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background has-text-align-center wp-element-button\" href=\"https:\/\/visufund.com\/dupmecp2-xmas-2024\" style=\"border-radius:15px;background-color:#f7a13f\">\u00a1Ilumina nuestro \u00e1rbol!<\/a><\/div>\n<\/div>\n\n<div style=\"height:43px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h3 class=\"wp-block-heading has-text-align-center\">Mamy nadziej\u0119, \u017ce ten rok b\u0119dzie wspania\u0142y i znacz\u0105cy.<\/h3>\n\n<div style=\"position: relative; width: 100%; overflow: hidden; padding-top: 100%;\"><iframe style=\"position: absolute; top: 0; left: 0; bottom: 0; right: 0; width: 100%; height: 100%; border: none;\" data-src=\"https:\/\/visufund.com\/38640?embed=1&#038;tourloop=1\" title=\"Strona Visufund\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" class=\"lazyload\" data-load-mode=\"1\"><\/iframe><\/div>\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" href=\"https:\/\/visufund.com\/dupmecp2-xmas-2024\" style=\"border-radius:15px;background-color:#f7a13f\">\u00a1Apoya nuestras misiones!<\/a><\/div>\n<\/div>\n\n<div style=\"height:69px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>\u00a1Esta temporada navide\u00f1a, hag\u00e1mosla un momento maravilloso ayudando a los dem\u00e1s! En DupMECP2, nos dedicamos a apoyar a los ni\u00f1os con MECP2 y sus familias lo mejor que podamos y [&hellip;]<\/p>","protected":false},"author":1,"featured_media":30890,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[116],"tags":[],"class_list":["post-31074","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-recaudacion-de-fondos"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Ilumina tu \u00e1rbol de Navidad y haz realidad nuestros sue\u00f1os - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/pl\/ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos\/?lang=es\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ilumina tu \u00e1rbol de Navidad y haz realidad nuestros sue\u00f1os - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"\u00a1Esta temporada navide\u00f1a, hag\u00e1mosla un momento maravilloso ayudando a los dem\u00e1s! 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