{"id":31074,"date":"2024-12-01T22:34:32","date_gmt":"2024-12-01T21:34:32","guid":{"rendered":"https:\/\/dupmecp2.eu\/ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos\/"},"modified":"2024-12-04T20:34:08","modified_gmt":"2024-12-04T19:34:08","slug":"ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/pl\/ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos\/","title":{"rendered":"Roz\u015bwietl sw\u00f3j Navidad i urzeczywistnij swoje marzenia"},"content":{"rendered":"<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background has-text-align-center wp-element-button\" href=\"https:\/\/visufund.com\/dupmecp2-xmas-2024\" style=\"border-radius:15px;background-color:#f7a13f\">\u00a1Ilumina nuestro \u00e1rbol de Navidad!<\/a><\/div>\n<\/div>\n\n<h2 class=\"wp-block-heading\"><strong>\u00a1Esta temporada navide\u00f1a, hag\u00e1mosla un momento maravilloso ayudando a los dem\u00e1s! <\/strong><\/h2>\n\n<p>En DupMECP2, nos dedicamos a apoyar a los ni\u00f1os con MECP2 y sus familias lo mejor que podamos y durante todo el a\u00f1o. <\/p>\n\n<p>El s\u00edndrome de duplicaci\u00f3n MECP2 es un s\u00edndrome raro y devastador. <strong>Nuestro equipo trabaja incansablemente para crear conciencia sobre los trastornos gen\u00e9ticos raros, desmitificar la investigaci\u00f3n y brindar a las familias los recursos y el apoyo que necesitan.<\/strong><\/p>\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h3 class=\"wp-block-heading\"><strong>Pero no podemos hacer lo que hacemos solos. \u00a1Necesitamos tu ayuda!  <\/strong><\/h3>\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"has-text-align-left\">El a\u00f1o pasado, con la ayuda de nuestros miembros, personal, familiares y amigos, pudimos ofrecerles innumerables eventos, actividades y materiales que ayudaron a crear conciencia sobre el s\u00edndrome de duplicaci\u00f3n MECP2. <\/p>\n\n\n\n<p class=\"has-text-align-left\">Con su ayuda, en 2024 pudimos crear un seminario web de dos partes sobre el estudio ATTUNE, brindando a las familias y cuidadores informaci\u00f3n valiosa.<\/p>\n\n\n\n<p>El objetivo de este recurso era ofrecer informaci\u00f3n clara y accesible sobre los ensayos cl\u00ednicos que pronto comenzar\u00e1n y ayudar a las familias a prepararse para el futuro. Tambi\u00e9n nos enorgulleci\u00f3 mucho poder ayudar econ\u00f3micamente a las familias a sufragar los costos de terapias y dispositivos m\u00e9dicos costosos. <\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Witamy w Lasst uns MDS heilen - DupMECP2\" width=\"800\" height=\"450\" data-src=\"https:\/\/www.youtube.com\/embed\/Uz-4yW966Zg?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" class=\"lazyload\" data-load-mode=\"1\"><\/iframe>\n<\/div><\/figure>\n<\/div>\n<\/div>\n\n<div style=\"height:66px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h2 class=\"wp-block-heading\"><strong>\u00bfC\u00f3mo puedes ayudar?<\/strong><\/h2>\n\n<p>Este a\u00f1o, puedes marcar la diferencia de una manera verdaderamente significativa. <strong>Te invitamos a unirte a nosotros para hacer realidad tus sue\u00f1os en esta temporada navide\u00f1a. <\/strong>Muestre su apoyo a nuestras misiones decorando nuestro \u00e1rbol de Navidad virtual.<\/p>\n\n<h3 class=\"wp-block-heading\"><strong>Cada luz del \u00e1rbol ilumina nuestras esperanzas, muestra su apoyo y nos permite hacer una diferencia para nuestros peque\u00f1os h\u00e9roes.<\/strong><\/h3>\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p><\/p>\n\n\n\n<p>Al decorar nuestro \u00e1rbol de Navidad virtual, puedes ayudar a mejorar la vida de los ni\u00f1os y las familias. Cada adorno que coloques en el \u00e1rbol nos ayuda a: <\/p>\n<\/blockquote>\n\n<ul class=\"wp-block-list\">\n<li><strong>Apoyar a las familias brind\u00e1ndoles informaci\u00f3n y actualizaciones, as\u00ed como tambi\u00e9n respaldar los costos de las terapias.<\/strong><\/li>\n\n\n\n<li><strong>Concientizaci\u00f3n sobre el s\u00edndrome de duplicaci\u00f3n MECP2 y el trastorno gen\u00e9tico raro<\/strong><\/li>\n\n\n\n<li><strong>Acelerar la investigaci\u00f3n de tecnolog\u00edas innovadoras para encontrar una cura<\/strong><\/li>\n<\/ul>\n\n<div style=\"height:66px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h2 class=\"wp-block-heading\"><strong>\u00bfC\u00f3mo funciona?<\/strong><\/h2>\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<ol class=\"wp-block-list\">\n<li>Visita nuestro \u00e1rbol de navidad virtual.<\/li>\n\n\n\n<li>Elija una o m\u00e1s estrellas o adornos.<\/li>\n\n\n\n<li>Deja un deseo de Navidad y sube una foto para personalizar tu mensaje en nuestro \u00e1rbol (opcional) <\/li>\n\n\n\n<li>Comparte el enlace con tus amigos para amplificar tu buena acci\u00f3n y crear una cascada.<\/li>\n<\/ol>\n<\/div>\n<\/div>\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background has-text-align-center wp-element-button\" href=\"https:\/\/visufund.com\/dupmecp2-xmas-2024\" style=\"border-radius:15px;background-color:#f7a13f\">\u00a1Ilumina nuestro \u00e1rbol!<\/a><\/div>\n<\/div>\n\n<div style=\"height:43px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h3 class=\"wp-block-heading has-text-align-center\">Hagamos que esta temporada sea m\u00e1gica y significativa.<\/h3>\n\n<div style=\"position: relative; width: 100%; overflow: hidden; padding-top: 100%;\"><iframe style=\"position: absolute; top: 0; left: 0; bottom: 0; right: 0; width: 100%; height: 100%; border: none;\" data-src=\"https:\/\/visufund.com\/38640?embed=1&#038;tourloop=1\" title=\"P\u00e1gina de Visufund\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" class=\"lazyload\" data-load-mode=\"1\"><\/iframe><\/div>\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-a89b3969 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" href=\"https:\/\/visufund.com\/dupmecp2-xmas-2024\" style=\"border-radius:15px;background-color:#f7a13f\">\u00a1Apoya nuestras misiones!<\/a><\/div>\n<\/div>\n\n<div style=\"height:69px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>\u00a1Esta temporada navide\u00f1a, hag\u00e1mosla un momento maravilloso ayudando a los dem\u00e1s! En DupMECP2, nos dedicamos a apoyar a los ni\u00f1os con MECP2 y sus familias lo mejor que podamos y [&hellip;]<\/p>","protected":false},"author":1,"featured_media":30890,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[116],"tags":[],"class_list":["post-31074","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-recaudacion-de-fondos"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Ilumina tu \u00e1rbol de Navidad y haz realidad nuestros sue\u00f1os - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/pl\/ilumina-tu-arbol-de-navidad-y-haz-realidad-nuestros-suenos\/?lang=es\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ilumina tu \u00e1rbol de Navidad y haz realidad nuestros sue\u00f1os - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"\u00a1Esta temporada navide\u00f1a, hag\u00e1mosla un momento maravilloso ayudando a los dem\u00e1s! 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