{"id":32666,"date":"2025-01-04T16:48:00","date_gmt":"2025-01-04T15:48:00","guid":{"rendered":"https:\/\/dupmecp2.eu\/?p=32666"},"modified":"2025-02-18T16:54:48","modified_gmt":"2025-02-18T15:54:48","slug":"nowi-czlonkowie","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/pl\/nowi-czlonkowie\/","title":{"rendered":"Poznaj nowych cz\u0142onk\u00f3w naszego zespo\u0142u"},"content":{"rendered":"<p>Pod koniec 2024 roku powitali\u015bmy w zespole dw\u00f3ch nowych cz\u0142onk\u00f3w: Klausa Salentina z Niemiec, mieszkaj\u0105cego w Tajlandii, oraz Brun\u0119 Silv\u0119 z Portugalii. Klaus i Bruna wsp\u00f3\u0142pracuj\u0105 z nami przy r\u00f3\u017cnych projektach maj\u0105cych na celu promowanie i podnoszenie \u015bwiadomo\u015bci na temat zespo\u0142u duplikacji genu MECP2.  <\/p>\n\n<p>Zapraszamy do zapoznania si\u0119 z nimi poprzez ich prezentacj\u0119:<\/p>\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p><strong>Bruna Silva, Portugalia <\/strong><\/p>\n\n<p>Cze\u015b\u0107, nazywam si\u0119 Bruna Silva i jestem odpowiedzialna za komunikacj\u0119 w DupMECP2. Odpowiadam g\u0142\u00f3wnie za posty w mediach spo\u0142eczno\u015bciowych, ale pomagam r\u00f3wnie\u017c we wszystkich sprawach zwi\u0105zanych z komunikacj\u0105, wi\u0119c je\u015bli wy\u015blesz nam wiadomo\u015b\u0107, by\u0107 mo\u017ce b\u0119dziesz mia\u0142 okazj\u0119 ze mn\u0105 porozmawia\u0107! Po studiach dziennikarskich i medialnych w Londynie sp\u0119dzi\u0142em czas podr\u00f3\u017cuj\u0105c po Europie, pracuj\u0105c nad projektami wolontariackimi jako nauczyciel j\u0119zyka angielskiego. Obecnie mieszkam w mojej rodzinnej Portugalii.<br\/>Praca z DupMECP2 i opracowywanie materia\u0142\u00f3w podnosz\u0105cych \u015bwiadomo\u015b\u0107 na temat zespo\u0142u daje mi mo\u017cliwo\u015b\u0107 dalszego rozwijania pracy, kt\u00f3ra ma wp\u0142yw na \u015bwiat. Jestem bardzo dumny, \u017ce mog\u0119 by\u0107 cz\u0119\u015bci\u0105 tak wspania\u0142ej organizacji, kt\u00f3ra koncentruje si\u0119 na pomaganiu dzieciom na ca\u0142ym \u015bwiecie i informowaniu rodzin.     <\/p>\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p><strong>Klaus Salentin, Tajlandia <\/strong><\/p>\n\n<p>Jako kierownik projektu w DupMECP2 koncentruj\u0119 si\u0119 na opracowywaniu strategii realizacji naszych misji, pozyskiwaniu funduszy i rzecznictwie. Moja praca polega na znajdowaniu mo\u017cliwo\u015bci finansowania, nawi\u0105zywaniu partnerstw i prowadzeniu kampanii maj\u0105cych na celu podnoszenie \u015bwiadomo\u015bci na temat zespo\u0142u duplikacji genu MECP2. Maj\u0105c do\u015bwiadczenie w zarz\u0105dzaniu projektami i wspieraniu pacjent\u00f3w, intensywnie pracowa\u0142em w dziedzinie chor\u00f3b rzadkich i bada\u0144 klinicznych. Moje do\u015bwiadczenie obejmuje rekrutacj\u0119 pacjent\u00f3w do bada\u0144 nad rzadkimi chorobami, budowanie relacji ze \u015bwiadczeniodawcami i popraw\u0119 interakcji mi\u0119dzy pacjentami a szpitalami. Role te udoskonali\u0142y moje umiej\u0119tno\u015bci w zakresie komunikacji, wsp\u00f3\u0142pracy i strategii pomocy, kt\u00f3re teraz wnosz\u0119 do mojej pracy, aby wywrze\u0107 realny wp\u0142yw na spo\u0142eczno\u015b\u0107 MECP2.     <\/p>","protected":false},"excerpt":{"rendered":"<p>En fin d&rsquo;ann\u00e9e 2024, nous a accueilli deux nouveaux membres dans l&rsquo;\u00e9quipe : Klaus Salentin originaire d&rsquo;Allemagne, habitant en Thailande, et Bruna Silva venant du Portugal. Klaus et Bruna travaillent [&hellip;]<\/p>","protected":false},"author":1,"featured_media":30924,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[218],"tags":[],"class_list":["post-32666","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dupmecp2-fr"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Rencontrez les nouveaux membres de notre \u00e9quipe - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/pl\/nowi-czlonkowie\/?lang=fr\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rencontrez les nouveaux membres de notre \u00e9quipe - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"En fin d&rsquo;ann\u00e9e 2024, nous a accueilli deux nouveaux membres dans l&rsquo;\u00e9quipe : Klaus Salentin originaire d&rsquo;Allemagne, habitant en Thailande, et Bruna Silva venant du Portugal. Klaus et Bruna travaillent [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/pl\/nowi-czlonkowie\/?lang=fr\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:published_time\" content=\"2025-01-04T15:48:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-02-18T15:54:48+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/12\/Logo-HD_5400x3600-scaled.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"2560\" \/>\n\t<meta property=\"og:image:height\" content=\"1707\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Caroline\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Napisane przez\" \/>\n\t<meta name=\"twitter:data1\" content=\"Caroline\" \/>\n\t<meta name=\"twitter:label2\" content=\"Szacowany czas czytania\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minuty\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/dupmecp2.eu\/nouveaux-membres\/?lang=fr#article\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/nouveaux-membres\/?lang=fr\"},\"author\":{\"name\":\"Caroline\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee\"},\"headline\":\"Rencontrez les nouveaux membres de notre \u00e9quipe\",\"datePublished\":\"2025-01-04T15:48:00+00:00\",\"dateModified\":\"2025-02-18T15:54:48+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/nouveaux-membres\/?lang=fr\"},\"wordCount\":390,\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/nouveaux-membres\/?lang=fr#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/12\/Logo-HD_5400x3600-scaled.jpg\",\"articleSection\":[\"Chez DupMECP2\"],\"inLanguage\":\"pl-PL\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/nouveaux-membres\/?lang=fr\",\"url\":\"https:\/\/dupmecp2.eu\/nouveaux-membres\/?lang=fr\",\"name\":\"Rencontrez les nouveaux membres de notre \u00e9quipe - 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