{"id":32980,"date":"2024-12-03T13:42:10","date_gmt":"2024-12-03T12:42:10","guid":{"rendered":"https:\/\/dupmecp2.eu\/resume-de-la-conference-sur-la-famille-2024-a-houston\/"},"modified":"2025-02-21T19:14:13","modified_gmt":"2025-02-21T18:14:13","slug":"podsumowanie-konferencji-rodzin-2024","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/pl\/podsumowanie-konferencji-rodzin-2024\/","title":{"rendered":"Podsumowanie konferencji rodzinnej 2024"},"content":{"rendered":"<p><strong>DupMECP2 wzi\u0105\u0142 udzia\u0142 w konferencji rodzinnej w dniach 25 i 26 pa\u017adziernika 2024 r. w Duncan Neurological Research Institute w Houston w Teksasie.<\/strong><\/p>\n\n<p>David Covini wzi\u0105\u0142 udzia\u0142 w konferencji i rozmawia\u0142 z ekspertami i rodzinami na temat post\u0119p\u00f3w w opiece nad pacjentami i odkrywaniu lek\u00f3w. (Dowiedz si\u0119 wi\u0119cej o naszym udziale w konferencji w Houston).<br\/>Konferencja by\u0142a zar\u00f3wno pouczaj\u0105ca, jak i g\u0142\u0119boko poruszaj\u0105ca. David mia\u0142 okazj\u0119 pozna\u0107 oddanych badaczy, takich jak Davut Pehlivan i Huda Zoghbi, kt\u00f3rych pasja i zaanga\u017cowanie s\u0105 naprawd\u0119 inspiruj\u0105ce. By\u0142a to r\u00f3wnie\u017c okazja do nawi\u0105zania kontakt\u00f3w z nowymi rodzinami i wzmocnienia naszej spo\u0142eczno\u015bci.   <\/p>\n\n<p><br\/><strong>\"Po raz drugi mia\u0142em szcz\u0119\u015bcie spotka\u0107 zapalonych i b\u0142yskotliwych naukowc\u00f3w o wielkim sercu, co nie zawsze idzie w parze\".<\/strong>m\u00f3wi David, wspominaj\u0105c dwa intensywne dni.<\/p>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1920\" height=\"1080\" src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited.jpg\" alt=\"\" class=\"wp-image-32907\" srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited.jpg 1920w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-300x169.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-1024x576.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-768x432.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston2024-edited-1536x864.jpg 1536w\" sizes=\"(max-width: 1920px) 100vw, 1920px\" \/><\/figure>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<p>Jako dumny z\u0142oty sponsor konferencji doceniamy fakt, \u017ce wydarzenie koncentruje si\u0119 na post\u0119pie naukowym i wsparciu dla rodzin. Nasze dyskusje, w szczeg\u00f3lno\u015bci z zespo\u0142em Ionis i dr Zhenya Ivakine (projekt CRISPR Cas9 w Toronto), by\u0142y bardzo owocne i pomog\u0105 w rozwoju kluczowych projekt\u00f3w badawczych. Z niecierpliwo\u015bci\u0105 czekamy na przysz\u0142\u0105 wsp\u00f3\u0142prac\u0119, kt\u00f3ra wy\u0142oni\u0142a si\u0119 z tych rozm\u00f3w.<br\/>NRI wkr\u00f3tce udost\u0119pni nagrane prezentacje i slajdy.   <\/p>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1920\" height=\"1080\" data-src=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited.jpg\" alt=\"\" class=\"wp-image-32937 lazyload\" data-srcset=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited.jpg 1920w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-300x169.jpg 300w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-1024x576.jpg 1024w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-768x432.jpg 768w, https:\/\/dupmecp2.eu\/wp-content\/uploads\/2025\/02\/Houston-5-edited-1536x864.jpg 1536w\" data-sizes=\"(max-width: 1920px) 100vw, 1920px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1920px; --smush-placeholder-aspect-ratio: 1920\/1080;\" \/><\/figure>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<div style=\"height:27px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>","protected":false},"excerpt":{"rendered":"<p>DupMECP2 a particip\u00e9 \u00e0 la Conf\u00e9rence des familles les 25 et 26 octobre 2024, au Duncan Neurological Research Institute \u00e0 Houston, Texas. David Covini a particip\u00e9 \u00e0 la conf\u00e9rence et [&hellip;]<\/p>","protected":false},"author":1,"featured_media":32903,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[219],"tags":[],"class_list":["post-32980","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>R\u00e9sum\u00e9 de la conf\u00e9rence des familles 2024 - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/pl\/podsumowanie-konferencji-rodzin-2024\/?lang=fr\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"R\u00e9sum\u00e9 de la conf\u00e9rence des familles 2024 - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"DupMECP2 a particip\u00e9 \u00e0 la Conf\u00e9rence des familles les 25 et 26 octobre 2024, au Duncan Neurological Research Institute \u00e0 Houston, Texas. 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