{"id":33550,"date":"2025-09-27T07:07:05","date_gmt":"2025-09-27T05:07:05","guid":{"rendered":"https:\/\/dupmecp2.eu\/?p=33550"},"modified":"2025-10-01T10:17:38","modified_gmt":"2025-10-01T08:17:38","slug":"newsletter-wrzesien-2025","status":"publish","type":"post","link":"https:\/\/dupmecp2.eu\/pl\/newsletter-wrzesien-2025\/","title":{"rendered":"Biuletyn informacyjny wrzesie\u0144 2025 r."},"content":{"rendered":"<p>To ju\u017c sz\u00f3sty numer naszego biuletynu.<\/p>\n\n\n\n<p>W tym wydaniu znajdziesz..: <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Nasi bohaterowie\n<ul class=\"wp-block-list\">\n<li>Wakacje z niepe\u0142nosprawnym dzieckiem: dlaczego licz\u0105 si\u0119 bardziej ni\u017c my\u015blisz?<\/li>\n\n\n\n<li>Darowizny upami\u0119tniaj\u0105ce bliskich<\/li>\n<\/ul>\n<\/li>\n\n\n\n<li>Dzia\u0142ania w spo\u0142eczno\u015bci\n<ul class=\"wp-block-list\">\n<li>REMEDS: PLATFORMA REJESTRACJI MEDYCZNEJ I BADA\u0143 dla zespo\u0142u duplikacji genu MECP2&nbsp;<\/li>\n\n\n\n<li>Wyniki ankiety: rodziny os\u00f3b z MDS gotowe na badania kliniczne<\/li>\n<\/ul>\n<\/li>\n\n\n\n<li>Najwa\u017cniejsze wyniki bada\u0144\n<ul class=\"wp-block-list\">\n<li>Badanie ATTUNE: 6 o\u015brodk\u00f3w klinicznych obecnie otwartych na rekrutacj\u0119<\/li>\n\n\n\n<li>Obiecuj\u0105ce wst\u0119pne wyniki badania HERO dla zespo\u0142u<\/li>\n\n\n\n<li>Nowy post\u0119p w poszukiwaniu leczenia: UMass Chan udziela licencji na technologi\u0119 siRNA &nbsp;<\/li>\n<\/ul>\n<\/li>\n\n\n\n<li>Zapisz dat\u0119 <\/li>\n\n\n\n<li>Podsumowanie wydarze\u0144 z przesz\u0142o\u015bci<\/li>\n\n\n\n<li>Nasi sponsorzy<\/li>\n<\/ul>\n\n\n\n<div style=\"height:29px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>P.S. Nie wahaj si\u0119 skontaktowa\u0107 z nami w sprawie swoich komentarzy, historii lub sugestii. Tw\u00f3j g\u0142os si\u0119 liczy, a my jeste\u015bmy tutaj, aby s\u0142ucha\u0107 i wspiera\u0107 Ci\u0119 na ka\u017cdym kroku.  <\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link has-background wp-element-button\" href=\"https:\/\/mailchi.mp\/dupmecp2\/newsletter-sept-2025-fr\" style=\"border-radius:11px;background-color:#f7a13f\">Zobacz biuletyn<\/a><\/div>\n<\/div>\n\n\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>Voici le sixi\u00e8me num\u00e9ro de notre newsletter. Dans ce num\u00e9ro, vous retrouverez: P.S. N\u2019h\u00e9sitez pas \u00e0 nous contacter avec vos commentaires, vos histoires ou vos suggestions. Votre voix compte et [&hellip;]<\/p>","protected":false},"author":1,"featured_media":29183,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[48],"tags":[222],"class_list":["post-33550","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-newsletters","tag-newsletter"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Newsletter Septembre 2025 - DupMECP2<\/title>\n<meta name=\"description\" content=\"Voici le cinqui\u00e8me num\u00e9ro de notre newsletter. Dans ce num\u00e9ro, vous pourrez lire des articles sur Aleix et ses parents, les temps forts de la recherche, nos activit\u00e9s et les prochains \u00e9v\u00e8nements. Assurez-vous de souscrire \u00e0 notre newsletter pour rester inform\u00e9 des nouvelles de la communaut\u00e9!\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/pl\/newsletter-wrzesien-2025\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Newsletter Septembre 2025 - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"Voici le cinqui\u00e8me num\u00e9ro de notre newsletter. Dans ce num\u00e9ro, vous pourrez lire des articles sur Aleix et ses parents, les temps forts de la recherche, nos activit\u00e9s et les prochains \u00e9v\u00e8nements. Assurez-vous de souscrire \u00e0 notre newsletter pour rester inform\u00e9 des nouvelles de la communaut\u00e9!\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/pl\/newsletter-wrzesien-2025\/\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:published_time\" content=\"2025-09-27T05:07:05+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-10-01T08:17:38+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/09\/News-letter-Design-news.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1080\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Caroline\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Napisane przez\" \/>\n\t<meta name=\"twitter:data1\" content=\"Caroline\" \/>\n\t<meta name=\"twitter:label2\" content=\"Szacowany czas czytania\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minuty\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/\"},\"author\":{\"name\":\"Caroline\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee\"},\"headline\":\"Newsletter Septembre 2025\",\"datePublished\":\"2025-09-27T05:07:05+00:00\",\"dateModified\":\"2025-10-01T08:17:38+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/\"},\"wordCount\":182,\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/09\/News-letter-Design-news.jpg\",\"keywords\":[\"Newsletter\"],\"articleSection\":[\"Newsletters\"],\"inLanguage\":\"pl-PL\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/\",\"url\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/\",\"name\":\"Newsletter Septembre 2025 - DupMECP2\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/09\/News-letter-Design-news.jpg\",\"datePublished\":\"2025-09-27T05:07:05+00:00\",\"dateModified\":\"2025-10-01T08:17:38+00:00\",\"description\":\"Voici le cinqui\u00e8me num\u00e9ro de notre newsletter. Dans ce num\u00e9ro, vous pourrez lire des articles sur Aleix et ses parents, les temps forts de la recherche, nos activit\u00e9s et les prochains \u00e9v\u00e8nements. Assurez-vous de souscrire \u00e0 notre newsletter pour rester inform\u00e9 des nouvelles de la communaut\u00e9!\",\"breadcrumb\":{\"@id\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#breadcrumb\"},\"inLanguage\":\"pl-PL\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#primaryimage\",\"url\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/09\/News-letter-Design-news.jpg\",\"contentUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/09\/News-letter-Design-news.jpg\",\"width\":1080,\"height\":1080},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Accueil\",\"item\":\"https:\/\/dupmecp2.eu\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Newsletters\",\"item\":\"https:\/\/dupmecp2.eu\/category\/newsletters\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Newsletter Septembre 2025\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/dupmecp2.eu\/#website\",\"url\":\"https:\/\/dupmecp2.eu\/\",\"name\":\"DupMECP2\",\"description\":\"EU\",\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/dupmecp2.eu\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pl-PL\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/dupmecp2.eu\/#organization\",\"name\":\"DupMECP2\",\"url\":\"https:\/\/dupmecp2.eu\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/\",\"url\":\"\",\"contentUrl\":\"\",\"caption\":\"DupMECP2\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/\"}},{\"@type\":\"Person\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee\",\"name\":\"Caroline\",\"sameAs\":[\"https:\/\/dupmecp2.eu\"],\"url\":\"https:\/\/dupmecp2.eu\/pl\/author\/417a2385dc37aa45\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Biuletyn informacyjny wrzesie\u0144 2025 - DupMECP2","description":"To ju\u017c pi\u0105te wydanie naszego biuletynu. W tym wydaniu mo\u017cna przeczyta\u0107 o Aleixie i jego rodzicach, najwa\u017cniejszych wydarzeniach badawczych, naszych dzia\u0142aniach i nadchodz\u0105cych wydarzeniach. Upewnij si\u0119, \u017ce subskrybujesz nasz biuletyn, aby by\u0107 na bie\u017c\u0105co z aktualno\u015bciami spo\u0142eczno\u015bci!","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/dupmecp2.eu\/pl\/newsletter-wrzesien-2025\/","og_locale":"pl_PL","og_type":"article","og_title":"Newsletter Septembre 2025 - DupMECP2","og_description":"Voici le cinqui\u00e8me num\u00e9ro de notre newsletter. Dans ce num\u00e9ro, vous pourrez lire des articles sur Aleix et ses parents, les temps forts de la recherche, nos activit\u00e9s et les prochains \u00e9v\u00e8nements. Assurez-vous de souscrire \u00e0 notre newsletter pour rester inform\u00e9 des nouvelles de la communaut\u00e9!","og_url":"https:\/\/dupmecp2.eu\/pl\/newsletter-wrzesien-2025\/","og_site_name":"DupMECP2","article_published_time":"2025-09-27T05:07:05+00:00","article_modified_time":"2025-10-01T08:17:38+00:00","og_image":[{"width":1080,"height":1080,"url":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/09\/News-letter-Design-news.jpg","type":"image\/jpeg"}],"author":"Caroline","twitter_card":"summary_large_image","twitter_misc":{"Napisane przez":"Caroline","Szacowany czas czytania":"2 minuty"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#article","isPartOf":{"@id":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/"},"author":{"name":"Caroline","@id":"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee"},"headline":"Newsletter Septembre 2025","datePublished":"2025-09-27T05:07:05+00:00","dateModified":"2025-10-01T08:17:38+00:00","mainEntityOfPage":{"@id":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/"},"wordCount":182,"publisher":{"@id":"https:\/\/dupmecp2.eu\/#organization"},"image":{"@id":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#primaryimage"},"thumbnailUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/09\/News-letter-Design-news.jpg","keywords":["Newsletter"],"articleSection":["Newsletters"],"inLanguage":"pl-PL"},{"@type":"WebPage","@id":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/","url":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/","name":"Biuletyn informacyjny wrzesie\u0144 2025 - DupMECP2","isPartOf":{"@id":"https:\/\/dupmecp2.eu\/#website"},"primaryImageOfPage":{"@id":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#primaryimage"},"image":{"@id":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#primaryimage"},"thumbnailUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/09\/News-letter-Design-news.jpg","datePublished":"2025-09-27T05:07:05+00:00","dateModified":"2025-10-01T08:17:38+00:00","description":"To ju\u017c pi\u0105te wydanie naszego biuletynu. W tym wydaniu mo\u017cna przeczyta\u0107 o Aleixie i jego rodzicach, najwa\u017cniejszych wydarzeniach badawczych, naszych dzia\u0142aniach i nadchodz\u0105cych wydarzeniach. Upewnij si\u0119, \u017ce subskrybujesz nasz biuletyn, aby by\u0107 na bie\u017c\u0105co z aktualno\u015bciami spo\u0142eczno\u015bci!","breadcrumb":{"@id":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#breadcrumb"},"inLanguage":"pl-PL","potentialAction":[{"@type":"ReadAction","target":["https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/"]}]},{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#primaryimage","url":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/09\/News-letter-Design-news.jpg","contentUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2024\/09\/News-letter-Design-news.jpg","width":1080,"height":1080},{"@type":"BreadcrumbList","@id":"https:\/\/dupmecp2.eu\/newsletter-septembre-2025\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Accueil","item":"https:\/\/dupmecp2.eu\/"},{"@type":"ListItem","position":2,"name":"Newsletters","item":"https:\/\/dupmecp2.eu\/category\/newsletters\/"},{"@type":"ListItem","position":3,"name":"Newsletter Septembre 2025"}]},{"@type":"WebSite","@id":"https:\/\/dupmecp2.eu\/#website","url":"https:\/\/dupmecp2.eu\/","name":"DupMECP2","description":"UE","publisher":{"@id":"https:\/\/dupmecp2.eu\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/dupmecp2.eu\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pl-PL"},{"@type":"Organization","@id":"https:\/\/dupmecp2.eu\/#organization","name":"DupMECP2","url":"https:\/\/dupmecp2.eu\/","logo":{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/","url":"","contentUrl":"","caption":"DupMECP2"},"image":{"@id":"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/"}},{"@type":"Person","@id":"https:\/\/dupmecp2.eu\/#\/schema\/person\/b41e8cbba153cd974ee340386af279ee","name":"Caroline","sameAs":["https:\/\/dupmecp2.eu"],"url":"https:\/\/dupmecp2.eu\/pl\/author\/417a2385dc37aa45\/"}]}},"_links":{"self":[{"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/posts\/33550","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/comments?post=33550"}],"version-history":[{"count":4,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/posts\/33550\/revisions"}],"predecessor-version":[{"id":33556,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/posts\/33550\/revisions\/33556"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/media\/29183"}],"wp:attachment":[{"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/media?parent=33550"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/categories?post=33550"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/tags?post=33550"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}