{"id":15730,"date":"2023-03-19T10:08:20","date_gmt":"2023-03-19T10:08:20","guid":{"rendered":"https:\/\/dupmecp2.eu\/?post_type=tribe_events&#038;p=15730"},"modified":"2023-03-20T12:11:31","modified_gmt":"2023-03-20T12:11:31","slug":"kwestionariusz-dotyczacy-przygotowania-webinariow-na-temat-zespolu-duplikacji-genu-mecp2","status":"publish","type":"tribe_events","link":"https:\/\/dupmecp2.eu\/pl\/wydarzenie\/kwestionariusz-dotyczacy-przygotowania-webinariow-na-temat-zespolu-duplikacji-genu-mecp2\/","title":{"rendered":"Kwestionariusz dotycz\u0105cy przygotowania webinari\u00f3w na temat zespo\u0142u duplikacji genu MECP2"},"content":{"rendered":"<p>\"DupMECP2.eu - Lasst uns MDS heilen\", we wsp\u00f3\u0142pracy z innymi organizacjami mi\u0119dzynarodowymi, wsp\u00f3\u0142pracuje z Ionis Pharmaceuticals nad seri\u0105 webinari\u00f3w maj\u0105cych na celu podkre\u015blenie kluczowych temat\u00f3w zwi\u0105zanych z opracowywaniem lek\u00f3w. Wsp\u00f3lnie chcemy zapewni\u0107 spo\u0142eczno\u015bci pacjent\u00f3w edukacj\u0119, wsparcie i zasoby potrzebne do zrozumienia procesu opracowywania lek\u00f3w na rzadkie choroby. W tym celu Ionis opracowuje seri\u0119 webinari\u00f3w dotycz\u0105cych gotowo\u015bci klinicznej.<\/p>\n<p>Aby konkretnie ukierunkowa\u0107 tre\u015b\u0107 przysz\u0142ych webinari\u00f3w i dostosowa\u0107 je do pyta\u0144 rodzin, zbieramy opinie od spo\u0142eczno\u015bci zespo\u0142u duplikacji MECP2.<\/p>\n<p>Skorzystaj z okazji, aby pom\u00f3c w kszta\u0142towaniu webinar\u00f3w, aby lepiej spe\u0142nia\u0142y wszelkie oczekiwania. Ankieta jest anonimowa, a jej wype\u0142nienie nie powinno zaj\u0105\u0107 wi\u0119cej ni\u017c 5-10 minut.\u00a0<u>Twoje komentarze b\u0119d\u0105 bardzo przydatne, aby\u015bmy mogli rozpocz\u0105\u0107 projektowanie webinar\u00f3w.<\/u>\u00a0Ankieta b\u0119dzie otwarta\u00a0<strong>do 26 marca 2023 r.<\/strong>.<\/p>\n<p>ANKIETA JEST OTWARTA DLA WSZYSTKICH I DOST\u0118PNA W J\u0118ZYKU ANGIELSKIM, NIEMIECKIM, FRANCUSKIM, W\u0141OSKIM I HISZPA\u0143SKIM. Udost\u0119pnij j\u0105 innym dotkni\u0119tym chorob\u0105 rodzinom, cz\u0142onkom rodziny i przyjacio\u0142om, kt\u00f3rzy mog\u0105 by\u0107 zainteresowani dowiedzeniem si\u0119 wi\u0119cej o Ionis i nadchodz\u0105cych badaniach klinicznych.<\/p>\n<p>Ankiet\u0119 mo\u017cna znale\u017a\u0107 tutaj:\u00a0<a href=\"https:\/\/forms.office.com\/Pages\/ResponsePage.aspx?id=hq_44ZXuGEe9DTdbNzZsg3nLPaw2nYVHh0pzG16xwXpUOU9HQ1dTRjFLOEpTR0JWVDdRRkNGQzlYUS4u\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/forms.office.com\/Pages\/ResponsePage.aspx?id=hq_44ZXuGEe9DTdbNzZsg3nLPaw2nYVHh0pzG16xwXpUOU9HQ1dTRjFLOEpTR0JWVDdRRkNGQzlYUS4u<\/a><\/p>\n<p>Dzi\u0119kujemy za po\u015bwi\u0119cony czas. W razie jakichkolwiek pyta\u0144 prosimy o kontakt.<\/p>","protected":false},"excerpt":{"rendered":"<p>\"DupMECP2.eu - Lasst uns MDS heilen\", we wsp\u00f3\u0142pracy z innymi organizacjami mi\u0119dzynarodowymi, wsp\u00f3\u0142pracuje z Ionis Pharmaceuticals nad seri\u0105 webinari\u00f3w maj\u0105cych na celu podkre\u015blenie kluczowych temat\u00f3w w [...].<\/p>","protected":false},"author":1,"featured_media":15731,"template":"","meta":{"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[],"class_list":["post-15730","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Questionnaire pour la pr\u00e9paration de webinaires sur le syndrome de duplication du g\u00e8ne MECP2 - DupMECP2<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/pl\/wydarzenie\/kwestionariusz-dotyczacy-przygotowania-webinariow-na-temat-zespolu-duplikacji-genu-mecp2\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Questionnaire pour la pr\u00e9paration de webinaires sur le syndrome de duplication du g\u00e8ne MECP2 - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"\u00ab\u00a0DupMECP2.eu &#8211; Lasst uns MDS heilen\u00a0\u00bb, en collaboration avec d&rsquo;autres organisations internationales, travaille avec Ionis Pharmaceuticals sur une s\u00e9rie de webinaires con\u00e7us pour mettre en lumi\u00e8re les sujets cl\u00e9s dans [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/pl\/wydarzenie\/kwestionariusz-dotyczacy-przygotowania-webinariow-na-temat-zespolu-duplikacji-genu-mecp2\/\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:modified_time\" content=\"2023-03-20T12:11:31+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/03\/thumbnail_7F951328-0655-4721-95F7-8CAF32D3C8E6-e1679314223677.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"719\" \/>\n\t<meta property=\"og:image:height\" content=\"712\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Szacowany czas czytania\" \/>\n\t<meta name=\"twitter:data1\" content=\"1 minuta\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/\",\"url\":\"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/\",\"name\":\"Questionnaire pour la pr\u00e9paration de webinaires sur le syndrome de duplication du g\u00e8ne MECP2 - DupMECP2\",\"isPartOf\":{\"@id\":\"https:\/\/dupmecp2.eu\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/03\/thumbnail_7F951328-0655-4721-95F7-8CAF32D3C8E6-e1679314223677.jpg\",\"datePublished\":\"2023-03-19T10:08:20+00:00\",\"dateModified\":\"2023-03-20T12:11:31+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/#breadcrumb\"},\"inLanguage\":\"pl-PL\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/#primaryimage\",\"url\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/03\/thumbnail_7F951328-0655-4721-95F7-8CAF32D3C8E6-e1679314223677.jpg\",\"contentUrl\":\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/03\/thumbnail_7F951328-0655-4721-95F7-8CAF32D3C8E6-e1679314223677.jpg\",\"width\":719,\"height\":712},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Accueil\",\"item\":\"https:\/\/dupmecp2.eu\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Events\",\"item\":\"https:\/\/dupmecp2.eu\/events\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Questionnaire pour la pr\u00e9paration de webinaires sur le syndrome de duplication du g\u00e8ne MECP2\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/dupmecp2.eu\/#website\",\"url\":\"https:\/\/dupmecp2.eu\/\",\"name\":\"DupMECP2\",\"description\":\"EU\",\"publisher\":{\"@id\":\"https:\/\/dupmecp2.eu\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/dupmecp2.eu\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pl-PL\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/dupmecp2.eu\/#organization\",\"name\":\"DupMECP2\",\"url\":\"https:\/\/dupmecp2.eu\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/\",\"url\":\"\",\"contentUrl\":\"\",\"caption\":\"DupMECP2\"},\"image\":{\"@id\":\"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Kwestionariusz dotycz\u0105cy przygotowania webinari\u00f3w na temat zespo\u0142u duplikacji genu MECP2 - DupMECP2","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/dupmecp2.eu\/pl\/wydarzenie\/kwestionariusz-dotyczacy-przygotowania-webinariow-na-temat-zespolu-duplikacji-genu-mecp2\/","og_locale":"pl_PL","og_type":"article","og_title":"Questionnaire pour la pr\u00e9paration de webinaires sur le syndrome de duplication du g\u00e8ne MECP2 - DupMECP2","og_description":"\u00ab\u00a0DupMECP2.eu &#8211; Lasst uns MDS heilen\u00a0\u00bb, en collaboration avec d&rsquo;autres organisations internationales, travaille avec Ionis Pharmaceuticals sur une s\u00e9rie de webinaires con\u00e7us pour mettre en lumi\u00e8re les sujets cl\u00e9s dans [&hellip;]","og_url":"https:\/\/dupmecp2.eu\/pl\/wydarzenie\/kwestionariusz-dotyczacy-przygotowania-webinariow-na-temat-zespolu-duplikacji-genu-mecp2\/","og_site_name":"DupMECP2","article_modified_time":"2023-03-20T12:11:31+00:00","og_image":[{"width":719,"height":712,"url":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/03\/thumbnail_7F951328-0655-4721-95F7-8CAF32D3C8E6-e1679314223677.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_misc":{"Szacowany czas czytania":"1 minuta"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/","url":"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/","name":"Kwestionariusz dotycz\u0105cy przygotowania webinari\u00f3w na temat zespo\u0142u duplikacji genu MECP2 - DupMECP2","isPartOf":{"@id":"https:\/\/dupmecp2.eu\/#website"},"primaryImageOfPage":{"@id":"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/#primaryimage"},"image":{"@id":"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/#primaryimage"},"thumbnailUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/03\/thumbnail_7F951328-0655-4721-95F7-8CAF32D3C8E6-e1679314223677.jpg","datePublished":"2023-03-19T10:08:20+00:00","dateModified":"2023-03-20T12:11:31+00:00","breadcrumb":{"@id":"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/#breadcrumb"},"inLanguage":"pl-PL","potentialAction":[{"@type":"ReadAction","target":["https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/"]}]},{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/#primaryimage","url":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/03\/thumbnail_7F951328-0655-4721-95F7-8CAF32D3C8E6-e1679314223677.jpg","contentUrl":"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/03\/thumbnail_7F951328-0655-4721-95F7-8CAF32D3C8E6-e1679314223677.jpg","width":719,"height":712},{"@type":"BreadcrumbList","@id":"https:\/\/dupmecp2.eu\/event\/questionnaire-pour-la-preparation-de-webinaires-sur-le-syndrome-de-duplication-du-gene-mecp2\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Accueil","item":"https:\/\/dupmecp2.eu\/"},{"@type":"ListItem","position":2,"name":"Events","item":"https:\/\/dupmecp2.eu\/events\/"},{"@type":"ListItem","position":3,"name":"Questionnaire pour la pr\u00e9paration de webinaires sur le syndrome de duplication du g\u00e8ne MECP2"}]},{"@type":"WebSite","@id":"https:\/\/dupmecp2.eu\/#website","url":"https:\/\/dupmecp2.eu\/","name":"DupMECP2","description":"UE","publisher":{"@id":"https:\/\/dupmecp2.eu\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/dupmecp2.eu\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pl-PL"},{"@type":"Organization","@id":"https:\/\/dupmecp2.eu\/#organization","name":"DupMECP2","url":"https:\/\/dupmecp2.eu\/","logo":{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/","url":"","contentUrl":"","caption":"DupMECP2"},"image":{"@id":"https:\/\/dupmecp2.eu\/#\/schema\/logo\/image\/"}}]}},"_links":{"self":[{"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/tribe_events\/15730","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/users\/1"}],"version-history":[{"count":0,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/tribe_events\/15730\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/media\/15731"}],"wp:attachment":[{"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/media?parent=15730"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/tags?post=15730"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/dupmecp2.eu\/pl\/wp-json\/wp\/v2\/tribe_events_cat?post=15730"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}