{"id":33013,"date":"2025-05-13T17:21:57","date_gmt":"2025-05-13T15:21:57","guid":{"rendered":"https:\/\/dupmecp2.eu\/?post_type=tribe_events&p=33013"},"modified":"2025-08-13T11:02:41","modified_gmt":"2025-08-13T09:02:41","slug":"spotkanie-rodzinne-manchester-2025","status":"publish","type":"tribe_events","link":"https:\/\/dupmecp2.eu\/pl\/wydarzenie\/spotkanie-rodzinne-manchester-2025\/","title":{"rendered":"Zjazd rodzinny 2025 w Manchesterze"},"content":{"rendered":"

Po raz kolejny w tym roku MECP2 duplication UK b\u0119dzie gospodarzem MDS Family Day w Manchesterze w sobot\u0119 8 listopada 2025 roku. Spotkanie odb\u0119dzie si\u0119 w hotelu DoubleTree Hilton bezpo\u015brednio przy lotnisku w Manchesterze.<\/p>\n

Dr Davut Pehlivan z Texas Children's Hospital i zesp\u00f3\u0142 Ionis do\u0142\u0105cz\u0105 do spotkania, aby przedstawi\u0107 aktualne informacje na temat post\u0119pu bada\u0144 nad leczeniem.<\/p>\n

Szczeg\u00f3\u0142owy program zostanie og\u0142oszony tak szybko, jak to mo\u017cliwe. Nale\u017cy jednak pami\u0119ta\u0107, \u017ce program rozpocznie si\u0119 o godzinie 8:30.<\/p>\n

Cz\u0142onkowie naszego stowarzyszenia b\u0119d\u0105 r\u00f3wnie\u017c obecni i ch\u0119tnie pomog\u0105 w t\u0142umaczeniu na j\u0119zyk francuski lub niemiecki.<\/p>\n

Rejestracja jest bezp\u0142atna i nale\u017cy jej dokona\u0107 tutaj: https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSd-dLHjDTq7vidZazCnLTeQKbwF5NXLoCdVW9_OYHQyrc24SA\/viewform?usp=send_form<\/p>\n

Je\u015bli chcia\u0142by\u015b sp\u0119dzi\u0107 noc lub weekend w hotelu, przygotowano specjaln\u0105 stawk\u0119 dla os\u00f3b bior\u0105cych udzia\u0142 w MECP2 Family Day. Oto link do dokonania rezerwacji: Hilton Event Email<\/a><\/p>\n

We wsp\u00f3\u0142pracy ze stowarzyszeniem MECP2 Duplication Syndrome Deutschland e.V. oferujemy zwrot koszt\u00f3w podr\u00f3\u017cy rodzinom bior\u0105cym udzia\u0142 w MDS Family Day 2025.
\nRodziny mog\u0105 ubiega\u0107 si\u0119 o wsparcie w wysoko\u015bci do 400 euro na rodzin\u0119 na pokrycie cz\u0119\u015bci koszt\u00f3w podr\u00f3\u017cy i zakwaterowania. Planujesz wzi\u0105\u0107 udzia\u0142 w MDS Family Day w Manchesterze i szukasz wsparcia w pokryciu koszt\u00f3w podr\u00f3\u017cy?<\/p>\n

Z\u0142\u00f3\u017c wniosek o pomoc, wype\u0142niaj\u0105c formularz: https:\/\/forms.office.com\/e\/c1fcABTZTE<\/p>","protected":false},"excerpt":{"rendered":"

Po raz kolejny w tym roku MECP2 duplication UK b\u0119dzie gospodarzem MDS Family Day w Manchesterze w sobot\u0119 8 listopada 2025 roku. Spotkanie odb\u0119dzie si\u0119 w hotelu DoubleTree Hilton [...].<\/p>","protected":false},"author":1,"featured_media":16284,"template":"","meta":{"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[],"class_list":["post-33013","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nR\u00e9union des familles 2025 \u00e0 Manchester - DupMECP2<\/title>\n<meta name=\"description\" content=\"Family meeting MECP2 duplication syndrome 2023 Manchester UK\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dupmecp2.eu\/pl\/wydarzenie\/spotkanie-rodzinne-manchester-2025\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"R\u00e9union des familles 2025 \u00e0 Manchester - DupMECP2\" \/>\n<meta property=\"og:description\" content=\"Family meeting MECP2 duplication syndrome 2023 Manchester UK\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dupmecp2.eu\/pl\/wydarzenie\/spotkanie-rodzinne-manchester-2025\/\" \/>\n<meta property=\"og:site_name\" content=\"DupMECP2\" \/>\n<meta property=\"article:modified_time\" content=\"2025-08-13T09:02:41+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dupmecp2.eu\/wp-content\/uploads\/2023\/05\/Manchester-e1717442236808.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1169\" \/>\n\t<meta property=\"og:image:height\" content=\"399\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Szacowany czas czytania\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minuty\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/dupmecp2.eu\/event\/family-meeting-manchester-2025\/\",\"url\":\"https:\/\/dupmecp2.eu\/event\/family-meeting-manchester-2025\/\",\"name\":\"R\u00e9union des familles 2025 \u00e0 Manchester - 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