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David Covini, president
“Genetics make us unique, yet ordinary individuals. It rarely makes us as extraordinary as all children with MECP2 duplication are.”
David Covini, president
Share experiences with families awaiting diagnosis and improve the lives of children.
Monitor the progress of research projects and inform families of scientific advances.
Identify projects and participate in their funding through fundraising and donations while raising awareness of the syndrome among the general public and physicians.