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MECP2 duplication syndrome is a rare disease that is not well known by the general public and health professionals. It is therefore important to describe it and talk about it in order to identify new cases. This will allow a better understanding of the disease and to make it known to a larger number of people.
The media talks about the diagnosis, the management and the life of children with MECP2 duplication syndrome in press articles and television programs.
With the syndrome being rare, it is known by very few investors. It is important to fund projects to advance research, support families, improve care, and help the development of our association.
Fundraising allows us to finance various projects. They call upon your network and help increase recognition of MECP2 duplication syndrome.
You can support the projects of our association through donations to improve the quality of life of the children with MECP2 duplication syndrome and contribute to projects to advance research, support families, allow the improvement of care, or help the development of our association.
This holiday season, let’s make it a wonderful time by helping others! At
On November 25, 2023, our charity concert with the band “Live & Pur”
We are preparing a compilation of our past fundraises. To learn more, come back later…
